Monday, January 16, 2017

CF Bacteria Is Stressful

Very interesting read from Cystic Fibrosis News Today...

I believe the more awareness and education on CF bacterias would be beneficial and help alleviate some of the stresses for parents or patients when they hear that pseudo or other bacterias are present. 

I think there is a lot of pressure on parents when they find out their child is growing out a bacteria. They usually blame themselves or immediately wonder what they could have done differently. The reality is that these bacterias are everywhere and there is steps you can do to help prevent being exposed but if our lungs want to grow out a bacteria they will find the power to do so. I'm pretty sure that even if we lived in a germ free bubble the bacteria would still somehow manage to get in at some point. 

Everyone I know in the CF community does the best that they can do. There's the extreme germ a phobe to the relaxed take life by the horns approach there is no right or wrong approach you just have to find what works best for you and your lifestyle. Hopefully with better understanding of these bacterias minds will be put to ease that even after all the work the patient or parent has done CF will still strike. So just keep doing your best, stay strong and positive and together we will fight when CF does strike. Breathe out Love! Xo❤

Wednesday, January 4, 2017

New Year... Keep Being You

I have spent the last couple of days reflecting on this last year.... Whether it was through laughter or tears I am so grateful to have had each and every moment that I did and so lucky to have spent them with some of the most fabulous people. There were some amazing moments in 2016 that took my breath away... in fact there are way too many to count or sum up in just nine photos. Each day is such a blessing, even the bad days can help you learn and grow. 

"If you're lucky enough to be different, never change."-Taylor Swift

Just Be You... Don't make goals to change yourself make goals to better yourself. You should never have to change who you are to fit in... be different! Be proud of who you are and own it. BE YOU! Happy 2017 everyone!! Thank you for your love and continued support. I hope this year brings you good health, happiness, lots of love and many moments that take your breath away. Keep being you. Breathe out Love! Xo❤️