Thursday, May 16, 2013

Megan Mobley

This month's Hero of Hope Living with CF, Megan Mobley, 25, is an inspirational young woman. Megan is passionate about her involvement in the CF community, raising over $4,000 last year with a new goal of $5,000 for this year. She hopes that the money she raises will help continue research that may one day find a cure. Megan also speaks to parents with newly diagnosed children to talk about her experience and encourage them to stay positive.


"Speaking to parents with newly diagnosed children is really important to me and something I love to do. I'm very positive with the parents I talk to. I tell them how active I am and how I'm still able to do the things I love to do. I also encourage them to think about CF care 20 years ago compared to now. We have come so far, and the landscape is only going to get better."   

Learn more about Megan
Visit to access Megan's personal Heroes of Hope webpage. 

To nominate your Hero 

Wednesday, May 1, 2013

May is CF Awareness Month

Never take a simple breath for granted!

Cystic Fibrosis affects about 30,000 in the US and about 70,000 world wide. It is a genetic disease affecting the lungs and the digestive system. It creates a thick sticky mucus which builds up in our bodies. The sticky mucus causes lung infections and eventually causes decreased lung capacity. The average life expectancy is about 37 now, thanks to all the medical advancements made available to us by the CF Foundation. There still is no cure! We are closer now than ever, so we need to keep the momentum up and fundraise like crazy!! Great things are happening!!

If you want to know more visit