Wednesday, June 25, 2008

$1 Ribs on July 3rd

Hey Everyone!

Come down to Famous Dave’s in West Jordan to support The Cystic Fibrosis Foundation.  

Channel 2 will be holding their survivor casting auditions and ribs are only a dollar from noon to 4 p.m.  All proceeds go to the Cystic Fibrosis Foundation so come down get some grub and watch the wacky auditions.  Also, watch channel 2 from 6 to 8 a.m. where Matt Meese will be the spokesperson for CF!

Date:  July 3rd 2008 (Next Thursday) 
Time:  Noon to 4 p.m. 
Location:  7273 S. Plaza Center Dr. West Jordan, UT  84084 (Jordan Landing)

Friday, June 20, 2008


"Footprints in history aren't made sitting down" Are the words she lived by.....Haley you made more footprints in your 12 years then most people ever will in a full lifetime.

Breathe Easy Haley!! To read more about Haley click Here

Thursday, June 19, 2008

Aztreonam Study

Ok so its been one week since I have been on Aztreonam. I love it! It takes 2 to 3 min to inhale and can I just tell you how great  that is compared to the 45 min that TOBI takes. I feel great it's been hard to tell a difference just because the air quality is bad right now and my asthma has been acting up due to the air but I really think its making a difference. I do PFT's in the beginning of Aug so I guess that will be when we know for sure but I am hoping to blow the same or better then last time so I don't have to go into the joint.

Study Name: Expanded Access Program for Aztreonam Lysine for Inhalation 

Study Category: Anti-infection Therapies 

Study Sponsor: Gilead Sciences 

Age Requirements: 6 to 12 years old, 13 to 17 years old, 18 years old and over 

Recruitment Status: Recruiting 

Study Drug(s): aztreonam lysine 

Study Type: Clinical Trial 


Aztreonam Lysine for Inhalation is now available to people with CF who meet specific criteria through an expanded 

access program. Although not yet approved by the FDA for general use, Aztreonam Lysine for Inhalation will be 

available to patients with chronic Pseudomonas aeruginosa airway infection who have limited treatment options and 

are at risk for disease progression. 

Wednesday, June 18, 2008

Third day on house arrest!!!! Praying for some rain

Data courtesy of Utah Department of Environmental Quality - Air Monitoring Center 

Utah Air Quality Summary | National Air Quality Summary
Green  0 - 50

Yellow  51 - 100

Orange  101 - 150
Unhealthy for Sensitive Groups
Red  151 - 200

Purple  201 - 300

Very Unhealthy
Maroon  301 - 500

Action Day Action Day
click on the icon in city forecast area for more details
Salt Lake City

June 18, 2008
June 18, 2008
June 19, 2008
AQI observed at 14:00 MDT:45Good
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Primary Pollutant
Unhealthy for Sensitive GroupsAction Day
Health Message: Active children and adults, and people with lung disease, such as asthma, should reduce prolonged or heavy exertion outdoors.
Forecast Not Available
*Tomorrow's forecast is generally available by 4:15 pm EDT.

Sunday, June 15, 2008

Happy Father's Day

Happy Father Day Dad!!! I love you and appreciate all your love and support! I am so lucky to have you as my Dad!

Saturday, June 7, 2008

Highlights from the pug party

Oscar & Lilly had a great time at the pug party there were about 40 pugs there... Their favorite was a lil pug named Otis. There was even a kiddie pool there for the pugs to cool down in. Lilly loved it but Oscar was to concerned about his ball. He loves his soccer ball!

Wednesday, June 4, 2008

Tuesday, June 3, 2008

Happy Bday my handsome lil boy I mean BIG BOY!

Today is Oscar's Bday and he turns 4!! What a BIG BOY!! Lilly and I are going to take him to the dog park today and we are going to play outside. Last night he got to play with his buddy Aj and I think Lilly may have a lil crush on Aj she is such a flirt. So since Oscar turns 4 we had a BIG BOY photo shoot for him and he borrowed some of Grandpas bow ties he did such a good job here are some of the pics...

Grandpa let him use his "LUCKY" bow tie complete with shamrocks

Here Oscar is sporting a Nicole Miller one of a kind

Sunday, June 1, 2008

My lil ballerina

 Makena had her very first dance recital and she was a star!!! She went around and around and around. The best part was the only thing to get her out on the stage was a sucker that Tammy had brought for her. Smart thinking Tam it worked!