Sunday, July 26, 2015

Take The Time To Breathe

"Clouds come floating into my life, no longer to carry rain or usher storm, but to add color to my sunset sky"-Rabindranath Tagore 

Sunset is my absolute favorite color! 

Take the time this week to really be in the moment and breathe. Find a place where you can do just that, because really that's what it all comes down to is needing time to breathe. 

Breathe out Love! Xo❤️

Friday, July 24, 2015

A Decision Within

I had the honor of being a guest writer on the incredible Breathe Bravely 
I love reading Ashley's blog and seeing how she finds beauty in every breath she takes. Ashley and I both have CF, we share an unspeakable bond I can't quite explain. An understanding, and a love that's shared deep within us, a "CysterHood" to know each other is a blessing. We are a like in so many ways, yet so different at the same time. We have this one thing that connects us, that puts us in the company of some of the strongest, most amazing people. Our common thread isn't something you want to have, but there isn't a choice and we make the best of it. 
Ashley is one of the many reasons I am grateful for my CF journey. Thank you Ash for the opportunity to be a guest on your blog. 
Breathe out Love! Xo❤️

Wednesday, July 15, 2015

The Habit Burger Grill

Best Lunch EVER!! We raised a lil over $1100 for the CF Foundation. The Habit Burger Grill is SO amazing I am beyond grateful to all of you. They seriously hire the kindest people to work there. If you have a chance go check them out, they officially open tomorrow. They are located over by Target off Fort Union. You won't be disappointed! Get the fried green beans they are honestly life changing!!  Thank you again so much to everyone who came out and got their grub on.... and to everyone at the Habit thank you from the bottom of my heart! 

Breathe out Love! Xo❤️

Thursday, July 2, 2015


I have been waiting for a day of this magnitude for quite some time.... I am beyond grateful. Today's news for the CF community brings many emotions but most of all happy tears, I am so happy for all those who will benefit from Orkambi. I am grateful for all involved to help make Orkambi possible including the patients who were in the studies and for the patients who went before the FDA in May to tell their story. We are SO close to that sought after cure, but the reality is we aren't there yet. We need to continue to fight and fight hard! I will not stop until everyone will benefit from a drug of this kind, or even better when headlines read CF stands for CURE FOUND! 
Breathe out Love! Xo❤️