Monday, April 30, 2012

An Amazing story... Tune in or set your DVR's


65_RedRoses is a documentary that takes an unflinching look into the life of Eva Markvoort as she battles a fatal genetic disease called Cystic Fibrosis. At 23, Eva needs a double lung transplant to live. The film follows her journey to transplant while seeking support from her two online friends Kina and Meg who also have CF.

65_RedRoses premieres Thursday, May 3rd at 9/8c only on OWN.
http://www.oprah.com/own-doc-club/65RedRoses-Trailer
Read more: http://www.oprah.com/own-doc-club/65RedRoses-Trailer#ixzz1tZKpXv7M

Thursday, April 26, 2012

A Lil Spring Cleaning

Holy Cow I can't believe it's been over a month since I have posted on here. Can you say Slacker!!! Sorry Blog Land!

Well after a great run (17 months) I was admitted into the joint, the theme was "SPRING".

As you can remember I am thippless so it definitely made this stay a lil interesting. Let's just say at the end of the 2 weeks I was missing my Thipple (portacath). I thought maybe just maybe my arm veins would of had a chance to heal on their nice 7 year break of no piccs. I was banking on just getting a Picc, but no such luck.  My veins are horrible and I am not quite ready yet to get something permanent again. So I felt like I was 8 again as I went with peripheral IV's the whole time. Total stay 5 pokes and 4 IV's total, not to bad!


IV #1


The Fam came up Riv and Makena had a blast on my bed going up and down, They loved the large elevator and the revolving door too. It was better than Disneyland I think they said ;)

I was quite colorful after this stay 

My mom playing Draw Something

My IV bag that goes everywhere with me connected to it 24/7 my fancy arm bracelet and my lil reminder that Astra was watching out for me. Between her and Tiff I was taken care of I was in the last room Tiff was in Im sure she planned that. I am glad she didn't pull any funny Business... considering I was there for April Fool's ;)

My bam bam doo! I pretty much wore my hair like this every day... lookin good ;)

Had Madonna's new album on repeat the entire time.... Love it!

GNO joint style! SO MUCH FUN!!! Cards Sushi and GREAT company! 

SPRING theme!!! Loved this theme Good job Momma

blowing smoke rings! Its a true talent ;)

The day I got home left Fake spring to Real Spring! 

Its amazing how you can do nothing for 2 weeks but yet you get home you are so exhausted. This  makes the transition from joint life to real life a bit overwhelming. Hopefully I can go another 17 months or so before I have to do it again.

Thank you everyone that made this stay a great one.... my fabulous Docs, my amazing nurses, The best  family and friends EVER you guys are ALL AMAZING!!! Thank you! Xo