Brad Johns

This month's Hero of Hope Living with CF, Brad Johns, age 39, is an extraordinary man who was diagnosed with CF when he was a young boy. Living with CF all his life, Brad has a positive attitude that helps him overcome any obstacle. Brad is a hardworking teacher who is currently working on his doctorate in education. Working to further his education, Brad stays on top of his treatments with the support from his loving family. Never allowing CF to get in his way, Brad has accomplished so much throughout his life and has no plans on slowing down.

"Now that I am 39-years-old, I make sure I stay on top of my treatments so that I can lead the healthiest life possible. I would tell someone my age that it is important to have a positive attitude and keep focusing on the right things that keep you staying well. I always tell people to be more productive in life so that they can keep their body healthy. You have to find the time to do your treatments and get into that routine and stick with it each and every day. I don't necessarily like sitting with my vest on and doing my breathing treatments while my kids are playing in the house, but I have to remind myself that if I don't do my  treatments than I'm not only cheating myself, but I'm cheating my family."

To read more about Brad Click Here

To nominate your Hero Click Here

Madonna ROCKED it!!!

Seriously?!??!?! SO amazing!!!! I was screaming, squealing, singing, dancing, peeing in my pants, and coughing with excitement!!!! She was amazing!!! She rocked it!!! NO one and I repeat NO ONE will ever top that performance!

I have watched it over and over again thank goodness for Tivo!! I am still on a serious Madonna high! I can't wait for her tour!!! I hope you all enjoyed it too! L-U-V Madonna Y-O-U  you wanna!!!! Xo

L-U-V Madonna!!!!

Yahoo!!!! The Big "Madge"ical news I was talking about yesterday....

I just pre ordered MDNA! Is it March 26th yet?!?!??!

Most of you know I LOVE Madonna. It's an exciting weekend for ALL Madonna fans.

*Today you can pre order her MDNA album the deluxe edition... Check

*You can buy her Single Give you all my Luvin featuring Nicki Minaj an M.I.A.... Check
 I have been listening it to it ALL morning on repeat!!! I love it! Can't wait to get the whole album.

*And you can go see her film W.E about Wallace Simpson that she directed. Well that is if you live where it is playing. I am so bummed I can't find it anywhere in Utah :(


Then Sun finally a halftime worth watching Madonna will be performing. I cannot wait!!!! Woop Woop!

So what are you waiting for go get on Itunes and buy "Give me all your Luvin" and preorder MDNA :)

The groundhog doesn't know!

So today is groundhog day.... Um can a groundhog even really see? 

I think this year global warming trumps the groundhog.... just sayin, Sorry Phil

So apparently he, I think his name is Phil saw his shadow and we have 6 more weeks of winter. Well coming from snow country and considering we haven't had any snow, well I'll take it. But come the triple triple in May if there is snow on the ground I will not be to happy. For all those wondering what Triple Triple it's the theme of my next Birthday. I had my Double Double when I turned 22 and well double numbers only happens every 11 years so it's definitely worth celebrating. Who am I kidding every day is worth celebrating... even today, Groundhog day!!

So Happy day to ALL of you!! Get out there and celebrate BIG!!!

Just in case you didn't notice 3 days in a row on here!! Yep, I am patting myself on the back. I'll be back tomorrow too, BIG weekend in store HUGE!!!!!! Lets just say it'll be Madgical ;)

So Smooth

I joined the smoothie movement!!! With some help from my friend Jess I am up and running. I didn't own a blender so after a ton of research I decided on the Ninja Master. I am pretty excited about it and it was only $34 so you can't go wrong with that.

Today I made my first one...

Above is a pic of me prepping my pitcher. The Ninja master has a motor on top that you pulse yourself and has a dual blade system one on the bottom and one in the middle to get the job done.

Im not one for recipes so I kind of just threw in some stuff, here is what I used...

~2 cups of spinach
~1 frozen banana
~5 strawberries
~1 cup of blueberries
~3 baby carrots
~1 cup of coconut milk
~1tsp of flax seed
~1tsp of Chia seeds

It was very yummy, it looks very gross but I promise so yummy and so healthy!  I am going to start doing a smoothie a day.  I had mine for breakfast today but I'm thinking it'll be more of a afternoon snack.

Does anyone have any recipes that you like to whip up? I am excited to throw more things in and try new flavors. Ill keep you posted.

Awesome news brings me back

I'm back!!! Ok so I needed to take a lil break from blogging I figured Jan would be perfect since there's not to much gong on...

However, there has been so many great things happening. I posted about Dottie she's pretty much AMAZING!!

Then today I woke up to some very exciting news in the CF community. Kalydeco formerly known as Vertex 770 was approved by the FDA 3 months early. You can read more about Kalydeco HERE. I am so excited for all my friends with the mutation G551D about 4% of the CF population have this unique mutation. This pill called "Bluelightening" by my good friend Emily,  is taken twice daly and basically will address the underlying cause of CF for this mutation. So exciting!!!

The mutation I have is Double Delta F508 which is the most common mutation about 90% of the CF population have this. There is currently still research being done to find something for Delta F508 including a second phase trail combining Kalydeco with vertex 809. Kalydeco is opening up doors, its great progress.

So YAY!!! Go out and celebrate!!!! Spread awareness and fundraise we are SO close!

Dottie Lessard

This month's Hero of Hope Living with CF, Dottie Lessard, 44, is an inspiring woman whose CF journey has been truly inspirational. Dottie inspires young kids and teenagers with CF to stay fit and empowers them to take control of their health through her foundation "Dottie's Dream." Dottie is also a life coach, speaker and creator of Empower Pro Nutrition as well as an author. Weight lifting is what inspired Dottie to share her passion of exercise with everyone and hopes to continue motivating people with CF to remain active and positive and to never let CF get in their way of fulfilling their dreams.

"When I'm having a bad day I think to myself, why it is still tougher for me? I see people who are doing the same thing as me and it's hard to deal with. I try to be the best person out there and try my best to inspire someone else. I decide my own statistics and I figured out my own way to live my life to the fullest. Knowledge is the most important key and with that power you have the ability to look forward to the future. You have to think to yourself, how can we do this? Don't ever stop pushing and thriving for what you believe in. You have to find a way to stay strong. Live your life, embrace your challenges and gain strength by them. Don't let CF or your transplant define you."

Dottie is SO AMAZING!!!! I have had the pleasure of meeting her in real life, she is so inspiring... a true Hero. To read more about Dottie Click Here

To nominate your Hero Click Here