Sunday, September 9, 2012

Roomies 4 Life!

I can't believe it's been 15 years since we all shared a dorm/apartment together. So many fun, crazy, silly, awesome memories from that year. We are bonded for life!!

We all tried to get together this summer when everyone was in town but life is crazy. I'm glad some of us were able to still meet up. Love these girls!!

Saturday, September 8, 2012

The Perfect Day

August 10, 2012 I drove up to Logan with my friends Amanda and Ron to see Tanya get married. It was a beautiful day and she was a beautiful bride and she was so happy she glowed.

It was probably the happiest/saddest wedding I had been to. I am so glad that Tanya was able to have her special day with Jake it meant so much to her to be able to walk down that aisle.



Amanda, T and I 

Cysters... Stephany, T and I

The Happy couple and their first dance Jake picked her up for this one she was getting tired. 

Tanya teasing Jake with the cake

ALWays BE TRue


I finally came up with a saying that has a subliminal message as well for my girls...

ALWays BE TRue

ALW are Astra's initials and TR are Tiff's initials and the BE stands for Breathe Easy....

I had a bracelet made and I never take it off a constant reminder of my Angels and to
ALWays BE True!

Has it really been 3 moths?!?!

Holy cow! I cannot believe what a slacker I am.

Well I have some catching up to do. How is already Sept.? I am looking forward to cooler temps this summer was a scorcher. I am a little tired of being a human salt lick ;) The babies on the other hand love my salty legs.


This Lil Mr turned 8 in June I am not even sure how that happened. Just the other day I got something in the mail from my vet that said how to take care of your senior pet for Lilly, I got Oscars last year makes me sad both my babies are seniors :(

I went and saw Sheryl Crow in June. I saw her last year too she always puts on a great show.

July was even hotter and the air was SO smokey from all the fires everywhere... Thank goodness I had some amazing visitors that were in town. I was SO excited to be able to meet up with Sharlie when she was here for her family reunion. She looks Amazing and is running circles around everyone so exciting to watch all the new things she is able to do with her new lungs and heart. I love my BCF!!!!

I went over to my bros on July 4th for a bit but I headed home before fireworks. The 4th isn't one of my favorite holidays too smokey and I was SO over fireworks this year. I'm a very protective of my babies and they hate fireworks too, so I try and keep my music on a lil louder so they don't hear them.



All of the Lander fam was in town in July so we jumped on the opportunity to get a updated fam photo and of course its not a fam photo without Ricki and I in matching dresses....



Ricki and I plan matching outfits most of the time... So it was pretty funny when I went to pick her up to go to the farmers market without discussing our wardrobe prior, and we still managed to wear matching outfits. Great minds think a like...

I hope everyone had a great summer full of fun memories and lots of time spent with loved ones. Xo

Monday, June 4, 2012

The Triple Triple

Woop Woop!!!

I am 33 aka the Triple Triple, you know me ever year there has to be a theme!

I had a blast celebrating with friends and family. My friends surprised me with the cutest Madonna themed cake and it was so yummy too. We have some friends that are very talented when it comes to cake making skills click here and you can see some of their creations.

Here are a couple pics from my bday weekend...












Monday, May 7, 2012

We are getting SO close!!!



Phase 2 Study of Kalydeco and VX-809 in Combination Shows Promising Interim Results

May 7, 2012
Vertex Pharmaceuticals Inc. today announced promising interim results from a Phase 2 clinical trial of its cystic fibrosis drug Kalydeco™ and VX-809, a CF drug in development.

The results showed a significant improvement in lung function in people with two copies of the most common CF mutation who received the two drugs in combination. Both Kalydeco and VX-809 are designed to treat the underlying cause of CF. Complete results from the Phase 2 trial are expected this summer.

The ongoing Phase 2 study enrolled 108 people, ages 18 and older, who have one or two copies of the Delta F508 mutation. Today’s results are based on data from about half of the study participants after they had completed 56 days of treatment.

Vertex plans to begin a pivotal trial of Kalydeco and VX-809 in people with two copies of the Delta F508 mutation, pending final study results. Pivotal trials are typically designed to gather data that could be used by the U.S. Food and Drug Administration (FDA) to decide whether or not to approve a potential drug.
"We are eagerly awaiting the full results, and are pleased that Vertex is accelerating its plans for a pivotal study of the combination treatment in those with two copies of Delta F508," said Robert J. Beall, Ph.D., president and CEO of the CF Foundation.

The CF Foundation played a key role in the development of Kalydeco and VX-809, providing significant scientific, clinical and financial support.

About 50 percent of people with CF in the United States have two copies of the Delta F508 mutation. About 40 percent of people with CF in the United States have one copy.

Earlier this year, the FDA approved Kalydeco for people with the G551D mutation ages 6 and older. Kalydeco is the first drug that treats the underlying cause of CF — a defective gene and its protein product, known as CFTR.

Tuesday, May 1, 2012

Be Aware!

May is Cystic Fibrosis Awareness Month....

Here is a  cute video I thought I would share that does a good job explaining CF... Enjoy!