Thank you!!!!

Thank you again for supporting the 15th annual Taste of Utah!  I am happy to report that the event raised over 320,000 for CF!  I am so grateful for all of your support and hope that you will continue to support CF events throughout next year. 

  

The CF Foundation is always striving to make the Taste event a great experience for everyone.  Please take a moment to fill out the survey and let us know what you thought about the event! 

  

https://www.surveymonkey.com/s/5FZXGYY

  

Again, Thank you to ALL involved! Lots of tomorrows were added this year. Xo

  

So grateful!!!

"When you look at Life through eyes of gratitude, the world becomes a magical and amazing place."-Jennifer Gayle My eyes are beyond grateful, for not only today but each and every day. I am in love with this magical, amazing thing called life! I am beyond blessed with amazing family and friends. The people in my life are my favorite things...and after that, well nothing else matters. Enjoy your Thanksgiving! I hope it's Magical and Amazing!! Xo ❤

1/2 Bday

Woop woop!!!

I'm 34tunate and a HALF today!!!

My heart is SO very Grateful today, and every day!!!

Adding Tomorrows

This is the video they showed at Taste. 

Digital Bytes Production & Design did such an Amazing job!! 

http://youtu.be/D7hpKeNuq5o

FTTT

Face Time/Treatment Time

So I've wanted to start this mentoring program for quite some time. I finally implemented it the other night with Drae. I'm not sure who had more fun, Drae or I. 

She is so cute, she was doing everything I was doing. She would take big breaths when I told her to, she would cough when I coughed, she even spit in a cup when I did. 

I think it's so great for the littles to see someone else doing a treatment too. They don't have a chance to see that, so I think FTTT is going to be a great chance for them not to feel so isolated. 

If I can help them take bigger breaths or spit out mucus, well then to me it will be a successful day! 

Drae says we are BFFs and she thinks its pretty cool that I have Cystic Fibrosis too.

 

I can "Taste" it!! A cure is SO close

Taste of Utah was last weekend what an incredible successful evening. Thank you to ALL involved. We are so close but we are not there yet. It's events like this and all involved who are going to help make CF stand for CURE FOUND! 

I'm not sure of totals yet, but I know we raised a ton of money for CF. Which equals more tomorrows for me and all my CF friends. 

I had the pleasure of being the ambassador with CF for the evening and ha the chance to speak. 

"This is your chance guys your chance to add tomorrows to so many lives. We will do great things with those tomorrows, we just need the chance. I promise you we won't let you down." That was the last line of my speech.... It's a promise I attend to keep. 

Here are some pics from the evening it's not letting my post videos so Ill try doing that again later. 

Some Healthy tips I swear by...

Can you Say Slacker!!!

I will not neglect my blog

I will not neglect my blog


I need to write that 1000 times!!!

Its been a crazy year!!!

I have lots of updates but first things first its that dreaded time of year again....
FLU & COLD SEASON!!!! Cough, Cough, Sneeze!! YUCK!!!!

I thought I wold re post me healthy tips I swear by....

Some Things that I do to help keep me healthy that I swear by...

1. Frequent hand-washing, when you can't wash Purell!!

2. "Hands-off-the-face" approach. Resist all temptations to touch any part of face. If I have a itch I will use the inside of my shirt to itch it or a tissue.

3. Gargle with warm salt water.... I always gargle at the end of every night. Simple gargling prevents proliferation. In a way, gargling with warm salt water has the same effect on a healthy individual that Tamiflu has on an infected one. Don't underestimate this simple, inexpensive and powerful preventative method.

4. A daily sinus rinse... Again I always do mine before I start my nightly treatments. I use a packet per nostril! Similar to 3 above, salt water is very effective In bringing down viral population.

5. Boost your natural immunity with foods that are rich in Vit C and D or take a vit C and D supplement. I take many vitamins I think its very important to keep up on all your vitamin levels so you can stay healthy.

6. Drink as much warm liquids as you can. This is a pretty easy step I love my Starbucks!!! Some yummy examples and some of my favs are coffee, hot choc, tea, or a hot chai. Drinking warm liquids has the same effect as gargling, but in the reverse direction. They wash off proliferating viruses from the throat into the stomach where they cannot survive.

Another thing if you're sick refrain from hugging or shaking peoples hands the worst is when you hug someone and then they are hacking up a lung a second later and telling you how sick they are... Um thanks for the hug!! 

ELBOWS people its ALL about the BOWS!!!!!

Stay Healthy out there!!! If your sick be selfish, please don't share your boogs! 

Happy Birthday Oscar!

Can't believe he is 9!!! 

Megan Mobley

This month's Hero of Hope Living with CF, Megan Mobley, 25, is an inspirational young woman. Megan is passionate about her involvement in the CF community, raising over $4,000 last year with a new goal of $5,000 for this year. She hopes that the money she raises will help continue research that may one day find a cure. Megan also speaks to parents with newly diagnosed children to talk about her experience and encourage them to stay positive.

 

"Speaking to parents with newly diagnosed children is really important to me and something I love to do. I'm very positive with the parents I talk to. I tell them how active I am and how I'm still able to do the things I love to do. I also encourage them to think about CF care 20 years ago compared to now. We have come so far, and the landscape is only going to get better."   

Learn more about Megan

Visit http://www.heroesofhope.com to access Megan's personal Heroes of Hope webpage. 

To nominate your Hero 

Visit http://www.heroesofhope.com/nominate

May is CF Awareness Month

Never take a simple breath for granted!

Cystic Fibrosis affects about 30,000 in the US and about 70,000 world wide. It is a genetic disease affecting the lungs and the digestive system. It creates a thick sticky mucus which builds up in our bodies. The sticky mucus causes lung infections and eventually causes decreased lung capacity. The average life expectancy is about 37 now, thanks to all the medical advancements made available to us by the CF Foundation. There still is no cure! We are closer now than ever, so we need to keep the momentum up and fundraise like crazy!! Great things are happening!!

If you want to know more visit www.cff.org

Thanks Chilis

What a great way to start off Cystic Fibrosis Awareness Month!!!

WWTD

What Would Tiffany Do?

Buy everyone coffee!! Her favorite, Starbucks of course! So if you find yourself at a Starbucks today buy a stranger their coffee in her honor!

Can't believe it's been two years! I miss her!

Headed to Starbucks....

Emily to Ellen 2013

May is Cystic Fibrosis Awareness month!! Get ready, great things are happening!

My friend Emily Schaller is campaigning to get on the Ellen show to help raise CF awareness... Lets help make that happen! #emilytoellen2013

Muck Busters!

Check out Genentech’s new Muck Busters iPhone game at ow.ly/jG5ss its a great tool for CFers to learn more about the disease and encourage adherence in a fun, interactive way!

Users navigate a colorful world battling stubborn enemies including bacteria, white blood cells, and mucus, and overcome obstacles, like blocked airways, with help from fun characters representing Pulmozyme, bronchodilators, hydrators, and antibiotics. Best of all, there is a component that allows users to create a profile which offers tools to help users keep track of their CF treatments.

Go check it out. I just downloaded it to my phone. Ill prob check it out during my afternoon treatment.