Saturday, April 18, 2015

Love to Breathe Tokens

A year ago today I passed out my first Love to Breathe® Token, and they have been circulating ever since. My tokens are in over 23 countries and ALL 50 states... there are about 3,500 in circulation right now. This movement has been so amazing and so rewarding to watch unfold. I am in awe at how far they have spread in just over a year. My goal is that everyone can be touched in some way by these tokens. I created these tokens to spread more love in the world that so desperately needs it, and at the same time raise awareness for Cystic Fibrosis. The stories and the people I have met along this journey have been so rewarding and has filled my heart and soul with so much love. My heart smiles every time I get a email or hear how one of these tokens has made a difference to someone.... I am truly humbled. None of this would of been possible without you guys. 
Thank you from the bottom of my heart to everyone who has helped me spread love all over the world. Keep sharing and spreading the love. Together we can change the world and whatever you choose to do love will follow it through!! 
Breathe out Love! Xo❤️  

Monday, April 13, 2015

Tell your story

Just like the rose that grew from concrete.... "There's always a story. It's all stories, really. The sun coming up every day is a story. Everything's got a story in it. Change the story, change the world."-Terry Pratchett 

Your struggle is part of your story, so embrace it, tell it, and be proud of it. You write your own story, so don't let it knock you down. Get up, be brave, and show the world that you're stronger and more aware because of it. You're one of a kind, celebrate your story! 

Breathe out Love. Xo❤️ 


Friday, March 20, 2015

CFVLC2015

Today I was honored to speak on the Adult Panel at the #CFVLC2015 with Andy Lipman and Kristin Dun! I have thoroughly enjoyed getting to know these two, they inspire me and I know we will forever be bonded for life.

There were a lot of emotions today... It truly is an exciting time in the CF community. To speak to a room full of amazing individuals who all have the same goal as you was truly an honor. It's a unspeakable bond I can't quite explain. An understanding, and a love that's shared deep within us all. To know each other is a blessing. We have one thing that connects us all that puts us in the company of some of the most amazing people. Our common thread isn't something you want to have, but there isn't a choice and we make the best of it. We surround ourselves with these amazing people and we stick together. 

The CF community is strong, caring and committed. We fight together for one thing, a CURE!! We will continue to fight until that day that we can all be together!! 
Breathe out love! Xo ❤️ 

Thursday, February 12, 2015

Love To Breathe Award

It was an honor to present the Love To Breathe Award tonight to Jenn Kinsfather, the adult CF nurse at the University of Utah. I couldn't think of a more deserving, caring person. Jenn is everything this award stands for and more. Jenn is passionate about CF, she's out in the community making a difference and raising awareness, she is loved by so many in the CF community. Jenn ultimately wants CF to stand for CURE FOUND!! She always goes above and beyond for each patient and we are very grateful for that. Jenn has a huge heart and cares about each patient as individuals and a lot of patients myself included consider her not just as our nurse but as a wonderful friend. Her love and compassion for all her patients shows each and every day, not to mention her smile brightens every room she enters. We are very lucky!! Congratulations Jenn and thank you for ALL that you do!! 
Breathe out Love! Xo❤️                                     


Wednesday, January 21, 2015

Love Your Life

I scrolled by a quote yesterday,  I have read it over and over again... For some reason it really resonated with me and at the same time it really rubbed me the wrong way. The quote is...
"You are not obligated to do everything a healthy person does. You are not obligated to be an inspiration. You are not obligated to hide your illness in order to make other people comfortable. You are allowed to know your limits. You are allowed to have bad days. You are allowed to stay in bed if you can't get up to do anything but go to the bathroom. It is not your fault if other people leave you for your illness. It is not your fault you are sick. You don't have to apologize for something that is out of your control."-Unknown                                            

Everything about this quote is true... I have even had some of these thoughts and for a split second I will think about it, but I wouldn't give them any more thought than that. I am sure I will have some of these thoughts in the future, and maybe even one today. I will not hide my illness but I will always tell you I am fine, this is not to make others comfortable but to make myself comfortable.... Why dwell on bad thoughts or negative energy when I can guarantee you it could always be worse. I know I was given this life because I am strong enough to live it. So yes I AM obligated to TRY and do everything a healthy person does. I WANT to be an inspiration. I do know my limits and I FIGHT to surpass them every day. Everyone has limits everyone should try and learn and grow and become stronger from them. Of course I'm allowed to have bad days and believe me I do. In fact everyone is allowed to have bad days, I promise you tho on your worst day there will always, always be good. 
Having a disability doesn't give you a free pass to be mean, lazy, or rude. In fact it should make you more humble, sincere and more compassionate, it gives you a understanding and a drive to BE and to DO and of course LOVE more. I will never apologize for my CF it's made me who I am and for that I am so very grateful. If someone has a issue with your disability it is clearly just that, their issue. 
So today I will BE me and I will DO my very best. I will LOVE more and I will hold my head up high, smile and fight.... I will continue to be strong and I will sing!!! I will sing so loud, and maybe even do a lil dance and you better believe it will be to a Madonna song!!! Breathe out Love! Xo ❤️

Saturday, January 17, 2015

Trust your story

I'm grateful for my struggles, without them I wouldn't have found my strengths... Trust your story! 
Breathe out Love! Xo❤️ 

Thursday, January 1, 2015

Happy New Year


Love To Breathe® has had such an amazing year...I am so excited for what's to come in 2015! 
The goal isn't to live forever, but to create something that will. That is my goal for Love To Breathe®. When I created Love To Breathe back in 2001, I would have never imagined it would have come this far. I'm so happy to announce that my Love to Breathe Tokens are circulating in over 17 countries and ALL 50 states... there are about 2,500 in circulation right now. This movement has been so amazing to watch unfold. I created these tokens in Nov of 2013 so just a lil over a year ago, it's amazing to me to see how far they have spread. None of that would of been possible without you guys!!! Finally, after a lot of paper work and a lengthy process Love To Breathe is a registered Trademark. ® 
I am very passionate about Love To Breathe and its mission to spread Love and CF Awareness. Thank you everyone who has helped make this possible, together we are spreading love in a world that could absolutely use it. I couldn't think of a better way to shed light on Cystic Fibrosis, and raise awareness about this disease that has taken too many, way too soon. I will continue to fight and search for that sought after cure and not just for me, but for all my Cysters and Fibros.
I wasn't kidding...I really do want to change the world and I know I can't do it alone, so thank you ALL from the bottom of my heart for ALL your SUPPORT and LOVE!! Together we can change the world!!! Happy New Year!! 2❤️15!!! 
Breathe out Love! Xo ❤️