
I created Love To Breathe®️ in 2001 to be a positive voice in the CF community, to help educate and raise awareness about cystic fibrosis, and spread love whenever I can!
Wednesday, September 30, 2009
Monday, September 28, 2009
I am SO honored!

Saturday, September 26, 2009
Emily to Ellen

Fortunately, Emily doesn’t recognize the word “impossible” and within minutes of hearing this potentially devastating news, Emily had a new plan…..”I’ll ride a Vespa instead!” Emily will be riding a very cool Vespa, from Chicago to L.A. which is critical in making her dream come true.
Emily has received a great deal of press locally and nationally. She has appeared in a Forbes Magazine article, New York Times article, and a recent local article from the Detroit Free Press as well as an announcement of her recent Applebee's "Real Burgers for Real Heros” award.
Keep up to date with the ride at www.letsrockcf.org, www.e2e4cf.com and also follow SPIN Magazines coverage at spinearth.tv!
She'll be collecting donations for the Cystic Fibrosis Foundation too. You can donate, track the ride and stay in touch with Emily at www.E2E4CF.com!
Friday, September 25, 2009
Jimmy Choos for a year!!!
All of the proceeds from ticket sales go to the CF Foundation and support medical research to cure or control Cystic Fibrosis.
For this event, they partnered with Jimmy Choo, the luxury shoe designer, to put on an opportunity drawing for “A Year of Jimmy Choo” and a One-of-a-Kind Handbag. Only 300 tickets will be sold, so the odds of winning this package are pretty strong! Each ticket costs $100, so they are hoping to raise $30,000 through this drawing! The package is valued at over $4,000 and includes a pair of Jimmy Choos for each season (four pairs total) and a one-of-a-kind snakeskin purse.
Reunited and it feels so good!
What the CFF recommends
CF Foundation Provides Guidance on Seasonal and H1N1 Influenza
September 22, 2009
The CF Foundation is closely monitoring the seasonal and H1N1 (swine) flu situation.
The Foundation recommends that all people with cystic fibrosis and individuals living with them follow the recommendations of the Centers for Disease Control and Prevention (CDC) on both seasonal and H1N1 flu prevention and vaccination.
Based on the CDC’s recommendations, the Foundation urges everyone with CF and those who live in the same household to:
- Get the seasonal flu vaccine as soon as possible.
- Get the H1N1 vaccine when it becomes available in October.
- Minimize the spread of germs by:
- Washing your hands often with soap and water or alcohol-based hand gel.
- Using a tissue when coughing or sneezing, then washing your hands.
- Avoid touching your eyes, nose and mouth since germs are spread that way.
- Staying away from others if you are ill.
- Watch for symptoms of the flu and if they appear, call your doctor. Symptoms include:
- Body aches and headache
- Fatigue
- Fever and chills
- Increased cough
- Sore throat
Seasonal and H1N1 Flu Vaccines
The seasonal flu vaccine is an important step in protecting against seasonal flu. Vaccination is especially important for people at high risk of serious flu complications, such a people with CF.
The seasonal flu vaccine will not protect you against the H1N1 flu.
A new vaccine against H1N1 flu is being developed. The CDC states that the vaccine will be available in October.
People at greatest risk for H1N1 flu – such as those with CF – should receive the H1N1 vaccine as soon as it is available.
Vaccinations for people with CF are available at CF care centers. Household members of people with CF also should receive the seasonal and the H1N1 flu vaccinations. You can find the closest place to receive the flu vaccine from the American Lung Association’s Flu Clinic Locator Web site.
The best way to protect against seasonal and H1N1 flu is by practicing good infection control. For more information on infection control or vaccinations, talk to your CF doctor.
Thursday, September 24, 2009
Ahhhhh
It feels so good to be home! I got home yesterday and did all my out of the joint chores, cleaned sheets, switched out toothbrush and O2 tubing, Pari jets the list goes on. No sense of getting old bugs again :)