Shane takes the fam back to Makena Beach

1st Family Vacation....

Off to Maui

She is a model

A girl after my own heart... She loves the Bucks

Ahhhh... so cute they went to Makena beach and stood at the same place they got married and at the same time. So Romantic bro!!!

McNeill AZ Gang

THE GANG

THE DIAMONDBACK GAME

Down in AZ I got to spend some time with the McNeill gang. We had lots of fun watching Brooklyn poppin it and droppin it. She is getting so tall and such a lil princess. All the girls went to sushi on Fri night to our usual place Shogun we were all stuffed but came back to Diane slaving away in the kitchen with dessert for us all. Shan, Brooklyn and Uncle Jim and I headed to the ball park on Mon and watched the Diamondbacks pay a horrible game but the hot dogs were great and the ball park is incredible! We ended the night with some amazing cupcakes that I frosted myself. Thanks guys I had a ton of fun! See you soon....

Natural Vitamin D

Heaven in the desert.... I just got back from Az where I got some much needed Vitamin D. Being that it was my first sun of the season I had to take it easy out there. The 55 SPF on my face worked I didn't burn, however I am afraid I did get a new freckle. But you know what they say a girl without freckles is like a night without stars. I had a blast with Odie and Nannels!! Thank you guys for such an amazing time! I will never look at a ladder the same again :) 

EXCITING NEWS

We have some exciting news. We are pleased to tell you that, over the past seven days, Congress and the President took action on four separate bills that champion the rights and health of people with cystic fibrosis.

The Cystic Fibrosis Foundation played a hand in each of the following developments:

• The Senate officially recognized May 2008 as National Cystic Fibrosis Awareness Month.
  


• Congress passed the Genetic Information Nondiscrimination Act (GINA) today.This law makes it illegal for employers and insurance companies to discriminate based on genetic information.
  


• President Bush signed into law the Newborn Screening Saves Lives Act, which provides resources and funding for new and existing newborn screening programs through 2012.
  


• The House of Representatives reauthorized the Small Business Innovation Research (SBIR) program. This program awards grants to small biotechnology companies that conduct important CF research.
  

Each of these initiatives has tremendous potential to help people with CF. These bills help increase awareness of cystic fibrosis, focus research funding on CF, and establish critical legal protections to help people with the disease live longer, healthier lives. 

These successes would not be possible without you. Thank you for your diligence and dedication.

HAPPY NATIONAL NURSES DAY!!!!

I have so many AMAZING nurses in my life! I thank you all so much for all you do and for making a difference everyday!!!!! I appreciate your friendships and can't thank you enough for making 2E my home away from home the best it could be! YOU GUYS TRULY ARE THE BEST!!! THANK YOU FROM THE BOTTOM OF MY HEART!!

Thanks Erin

GREAT STRIDES is the Cystic Fibrosis Foundation's largest and most successful national fund-raising event. 

This year, My cousin Erin is walking in the GREAT STRIDES walk in Minneapolis on May 3, 2008. She has exceeded her goal of $500, this is AMAZING considering 90 cents from every dollar raised goes to funding research for that sought after cure!                                                               

Thank you Erin for all your love & support!!

To visit Erin's walk page click here . 

Yay!!! We did it

May Declared National Cystic Fibrosis Awareness Month

The Cystic Fibrosis Foundation praised the U.S. Senate for officially recognizing May as National Cystic Fibrosis Awareness Month and encouraging public awareness and understanding of CF.

Introduced by Senators Patty Murray (D-Wash.) and Jim Inhofe (R-Okla.), the legislation calls attention to cystic fibrosis, a fatal, genetic disease, and supports research to find a cure.

“We are thrilled to have the Senate’s support for our mission to find a cure for cystic fibrosis. We are making dramatic progress in the development of new therapies for the disease and in extending life expectancy,” said Robert J. Beall, Ph.D., president and CEO of the Foundation. “On behalf of all those affected by CF, we thank Senators Murray and Inhofe for their leadership and commitment to the cystic fibrosis community.”

Thank you everyone who wrote to their members of Congress!! It worked, together we all made a difference!!