Wednesday, September 30, 2009

CELEBRATION 36 songs 30 videos

What more could you ask for??? It's fantastically fabulous!

Madonna's Ultimate Greatest Hits Album has been released as a Deluxe Edition on iTunes, and features all of the 36 songs + 2 exclusive bonus tracks, (including 'It's So Cool' and the Benny Benassi Remix of 'Celebration') as well as 30 videos! Make sure to download your copy of it now! I am loving mine and all the videos!!!

Monday, September 28, 2009

I am SO honored!

My friend Lisa over at Pug Posse is So damn cute! Check out her blog she has a full house with 4 pugs a horse 2 cute daughters and an amazing husband. Brad is in the joint right now so please say some prayers for him to have a speedy recovery. Lisa sent me an amazing care package when I was in the joint, I think she owns every love to breathe necklace and today she got a new tattoo... I love ya Leese! Xox

Saturday, September 26, 2009

Emily to Ellen

Emily’s newest challenge is a cross-country ride from Chicago to Los Angeles where she hopes to appear on the Ellen DeGeneres Show to raise awareness of cystic fibrosis with a large national audience. As you can see from the photos included, Emily shares a striking resemblance to Ellen DeGeneres and is a huge fan of the talk show host. Emily has maintained her health by becoming incredibly physically fit. Her fitness regime includes running, drumming, and biking. Two weeks ago, Emily took her Third Annual City to City Ride, 335 miles in four days from Detroit to Chicago on her bicycle. Her plan had been to return from that ride and then one month later begin her trek to Los Angeles. However, Emily’s Achilles tendon has been injured and now she is unable to make that ride as she had been planning to do. A lung infection in July, required antibiotics which have the unfortunate side effect of weakening tendons, and thus the Achilles injury, making a 2000-mile bicycle ride impossible.

Fortunately, Emily doesn’t recognize the word “impossible” and within minutes of hearing this potentially devastating news, Emily had a new plan…..”I’ll ride a Vespa instead!” Emily will be riding a very cool Vespa, from Chicago to L.A. which is critical in making her dream come true.

** Update** Emily will be riding 30-40 each morning and then finishing it up on the Vespa. Physcial thearpy has really been paying off and Em's achilles is on the mend.
Emily has received a great deal of press locally and nationally. She has appeared in a Forbes Magazine article, New York Times article, and a recent local article from the Detroit Free Press as well as an announcement of her recent Applebee's "Real Burgers for Real Heros” award.

Keep up to date with the ride at, and also follow SPIN Magazines coverage at!

She'll be collecting donations for the Cystic Fibrosis Foundation too. You can donate, track the ride and stay in touch with Emily at!

9.22 Chicago to Davenport, Iowa
9.23 Davenport to Osceola, Iowa
9.24 Osceola to Lincoln, NE
9.25 Lincoln to Trenton, NE
9.26 Trenton to Denver, CO
9.28 Denver to Steamboat Springs, UT
9.29 Steamboat Springs to Vernal, UT
9.30 Vernal to Salt Lake City, UT
10.1 Salt Lake City to Fillmore, UT
10.2 Fillmore to Caliente, NV
10.3 Caliente to Las Vegas, NV
10.5 Las Vegas to Ridgecrest, CA
10.6 Ridgecrest to Burbank, CA

Friday, September 25, 2009

Jimmy Choos for a year!!!

All of the proceeds from ticket sales go to the CF Foundation and support medical research to cure or control Cystic Fibrosis.

For this event, they partnered with Jimmy Choo, the luxury shoe designer, to put on an opportunity drawing for “A Year of Jimmy Choo” and a One-of-a-Kind Handbag. Only 300 tickets will be sold, so the odds of winning this package are pretty strong! Each ticket costs $100, so they are hoping to raise $30,000 through this drawing! The package is valued at over $4,000 and includes a pair of Jimmy Choos for each season (four pairs total) and a one-of-a-kind snakeskin purse.

Click here to go to a link to the event Web site, which has information about the opportunity drawing and prize:

Reunited and it feels so good!

So the video is bad, it was early 8 am. The babies and I were still SO sleepy... I don't know who is more excited me or them. They are following me everywhere I go, they aren't leaving my side at all. I am so glad they are back! :)

What the CFF recommends

CF Foundation Provides Guidance on Seasonal and H1N1 Influenza

September 22, 2009

The CF Foundation is closely monitoring the seasonal and H1N1 (swine) flu situation.

The Foundation recommends that all people with cystic fibrosis and individuals living with them follow the recommendations of the Centers for Disease Control and Prevention (CDC) on both seasonal and H1N1 flu prevention and vaccination.

Based on the CDC’s recommendations, the Foundation urges everyone with CF and those who live in the same household to:

  1. Get the seasonal flu vaccine as soon as possible.
  2. Get the H1N1 vaccine when it becomes available in October.
  3. Minimize the spread of germs by:
    • Washing your hands often with soap and water or alcohol-based hand gel.
    • Using a tissue when coughing or sneezing, then washing your hands.
    • Avoid touching your eyes, nose and mouth since germs are spread that way.
    • Staying away from others if you are ill.
  4. Watch for symptoms of the flu and if they appear, call your doctor. Symptoms include:
    • Body aches and headache
    • Fatigue
    • Fever and chills
    • Increased cough
    • Sore throat

Seasonal and H1N1 Flu Vaccines

The seasonal flu vaccine is an important step in protecting against seasonal flu. Vaccination is especially important for people at high risk of serious flu complications, such a people with CF.

The seasonal flu vaccine will not protect you against the H1N1 flu.

A new vaccine against H1N1 flu is being developed. The CDC states that the vaccine will be available in October.

People at greatest risk for H1N1 flu – such as those with CF – should receive the H1N1 vaccine as soon as it is available.

Vaccinations for people with CF are available at CF care centers. Household members of people with CF also should receive the seasonal and the H1N1 flu vaccinations. You can find the closest place to receive the flu vaccine from the American Lung Association’s Flu Clinic Locator Web site.

The best way to protect against seasonal and H1N1 flu is by practicing good infection control. For more information on infection control or vaccinations, talk to your CF doctor.

Thursday, September 24, 2009


It feels so good to be home! I got home yesterday and did all my out of the joint chores, cleaned sheets, switched out toothbrush and O2 tubing, Pari jets the list goes on. No sense of getting old bugs again :)

Today I am off to get a massage and a couple errands and then My babies are coming home! I can't wait to snuggle them. They are going to freak out when they see me I will try to get video of it. I hope you all have a great day! Xo

Monday, September 21, 2009

I did it!!

I did 24 min on the tread mill then I completed my goal of 10 min on the stair stepper!

Woop! Woop!

Friday, September 18, 2009

B O R E D !!!

TGIF, although weekends in the joint are pretty boring....

I am staying the full 2 wks. Thank goodness for my visitors, internet and magazines!

I blew after 1 week and blew a 38!! Woop Woop highest since sometime in 07. My workouts in here are going great and I even ventured to the stair stepper. I did 3 min on it yesterday with my heart rate at 171 and my 02 at 92 on 3 liters. My goal is to do 10 min by the time I bust out. I did 6 min today so I think I will accomplish my goal.

Yesterday I had a the pleasure of having coffee at the starbucks here with Dr Bob Beall the president of the Cystic Fibrosis Foundation. What an amazing man, he is an inspiration and is so dedicated to finding that cure. His wife is now the proud owner of a Love to Breathe necklace. There are so many great things headed our way. There are over 30 drugs in the pipeline, which is so promising for all.

Thank you to everyone that has sent me cards and care packages. I appreciate it more than you know~
Have a great weekend!

Photo booth is always a great way to kill some time :)

Sunday, September 13, 2009

a lil glimpse of Hollywood

My Germ Warrior self loves this sign! I had to add my own touches
the view from my bed... pics of my babies!

My front door

Wednesday, September 9, 2009

long day...

Ugh! I am so sleepy I can't believe it's only 7 pm... My eyes feel like I have been in Chlorinated water all day with them wide open. It could have something to do with me scrubbing my room down with those mega duty sani wipes, you name it it was scrubbed. I have my own pulse ox so I don't have to use the one everyone else does. Being the germ warrior I am I got hooked up with my very own stethoscope and blood pressure cuff life is good. :)

Im all settled and the room 2602 has been transformed into a mini Hollywood

I have Rodeo Drive on my left and Hollywood Blvd in front of me and Vine street on the right ;)

So The University of Utah is SO fancy now (they have been remodeling for 3 or 4 years) we have escalators and apparently the cafeteria hosts a different restaurant every day. Tomorrow is sushi from Asian Star so I can hardly wait I will let ya know if it's any good. Ill post pics tomorrow of my lil Hollywood and whatever else I find fascinating. There is a starbucks in the lobby too, so I am set!

The Thipple is accessed and the drugs are flowing. Killing mucus left and right :) Thanks for all your well wishes!

My poor babies haven't eaten a thing today they know their mommy is in the joint :( I talked to them on the speaker phone and poor Osc was running around freaking out trying to find me. Breaks my heart! I miss them already! Their with their daddy so they are in good hands it just takes them time to adjust.

I got my drug schedule all worked out so complicated... my sched is 5am 1pm and 9 pm and another drug every 12hrs at 8 and 8. Vitamins at 11 and 7 so they don't interfere with Cipro. 4 breathing treatments a day, Rehab is at 9 am so I will be hitting the treadmill bright and early not to mention a blood draw at 7 am, so I am sure it will be a sleepless night...

Thank goodness for the internet and my visitors to keep me sane! Xo

Tuesday, September 8, 2009

9 am

on 9-9-09...

I will be off parole :(

18 months on parole it was a good run... but now it's time to clean the twins out.

I will let ya all know details (room # etc.) as soon as I know the 411

I just got done packing I forgot how much stuff I take there here are just a few items that are packed away
  • answering machine
  • Giant size bottle of Purell
  • Pulse ox
  • blankets & pillow
  • computer
  • ipod and speaker
  • books and all things to keep me sane
  • treats

The theme is Hollywood and Madge since her new album comes out at the end of this month

Friday, September 4, 2009


Me on the field last season trying to look important
Our View

We hold the longest winning streak in the nation! GO UTES!!!!

Utah UTES won again last night 35-17!

Tuesday, September 1, 2009

10 ways to be H1N1 SAvvy

This summer, the virus has been surprisingly tenacious in the U.S., refusing to fade away as flu viruses usually do. And health officials predict a surge of cases this fall, perhaps very soon as schools reopen.

A White House report from an expert panel suggests that from 30 percent to half the population could catch swine flu during the course of this pandemic and that from 30,000 to 90,000 could die.

So how worried should you be and how do you prepare? The Associated Press has tried to boil down the mass of information into 10 things you should know to be flu-savvy.

1. No cause for panic.

So far, swine flu isn't much more threatening than regular seasonal flu.

During the few months of this new flu's existence, hospitalizations and deaths from it seem to be lower than the average seen for seasonal flu, and the virus hasn't dramatically mutated. That's what health officials have observed in the Southern Hemisphere where flu seasonis now winding down.

Still, more people are susceptible to swine flu and U.S. health officials are worried because it hung in so firmly here during the summer — a time of year the flu usually goes away.

2. Virus tougher on some.

Swine flu is more of a threat to certain groups — children under 2, pregnant women, people with health problems like asthma, diabetes and heart disease. Teens and young adults are also more vulnerable to swine flu.

Ordinary, seasonal flu hits older people the hardest, but not swine flu. Scientists think older people may have some immunity from exposure years earlier to viruses similar to swine flu.

3. Wash your hands often and long.

Like seasonal flu, swine flu spreads through the coughs and sneezes of people who are sick. Emphasize to children that they should wash with soap and water long enough to finish singing the alphabet song, "Now I know my ABC's..." Also use alcohol-based hand sanitizers.

4. Get the kids vaccinated.

These groups should be first in line for swine flu shots, especially if vaccine supplies are limited — people 6 months to 24 years old, pregnant women, health care workers.

Also a priority: Parents and caregivers of infants, people with those high-risk medical conditions previously noted.

5. Get your shots early.

Millions of swine flu shots should be available by October. If you are in one of the priority groups, try to get your shot as early as possible.

Check with your doctor or local or state health department about where to do this. Many children should be able to get vaccinated at school. Permission forms will be sent home in advance.

6. Immunity takes awhile.

Even those first in line for shots won't have immunity until around Thanksgiving.

That's because it's likely to take two shots, given three weeks apart, to provide protection. And it takes a week or two after the last shot for the vaccine to take full effect.

The regular seasonal flu shot should be widely available in September. People over 50 are urged to be among the first to get that shot.

7. Vaccines are being tested.

Health officials presume the swine flu vaccine is safe and effective, but they're testing it to make sure.

The federal government has begun studies in eight cities across the country to assess its effectiveness and figure out the best dose. Vaccine makers are doing their own tests as well.

8. Help! Surrounded by swine flu.

If an outbreak of swine flu hits your area before you're vaccinated, be extra cautious.

Stay away from public gathering places like malls, sports events and churches. Try to keep your distance from people in general. Keep washing those hands and keep your hands away from your eyes, nose and mouth.

9. What if you get sick?

If you have other health problems or are pregnant and develop flu-like symptoms, call your doctor right away. You may be prescribed Tamiflu or Relenza. These drugs can reduce the severity of swine flu if taken right after symptoms start.

If you develop breathing problems (rapid breathing for kids), pain in your chest, constant vomiting or a fever that keeps rising, go to an emergency room.

Most people, though, should just stay home and rest. Cough into your elbow or shoulder. Stay home for at least 24 hours after your fever breaks. Fluids and pain relievers like Tylenol can help with achiness and fever. Always check with a doctor before giving children any medicines. Adult cold and flu remedies are not for them.

10. No swine flu from barbecue.

You can't catch swine flu from pork — or poultry either (even though it recently turned up in turkeys in Chile). Swine flu is not spread by handling meat, whether it's raw or cooked.

Source: U.S. Centers for Disease Control and Prevention, New York City Department of Health and Mental Hygiene.


On the Net:

CDC swine flu basics: