Tuesday, July 29, 2008

YAY!! No joint for me.... for now anyways!

Yay!!!  I am very HAPPY, I had to blow today (PFT'S) and I was a lil nervous even though I feel so much better then I did last week. Last week I was a lil under the weather and had some Hemoptysis(coughing up blood) My doc thinks it was just going from a very humid climate to a very dry climate. So I upped my Usana and stopped my meds for a bit and then I started them back up and included TOBI which is an inhaled antibiotic and things turned around!

I have an appt on Aug 18th however with the current events I just wanted to make sure I was doing ok. So I blew 1 point lower then May so I didn't have to be locked up. I will blow again on the 18th and we will go from there. In the mean time I will continue TOBI and then I am due to start back on Aztreonam around the 8th. Aztreonam is that study drug that I started in June. That one that takes only 3 minutes. It is a nice change from The 45 min that TOBI takes.

Friday, July 25, 2008

Words to live by.....

40 Golden Tips for a Better Life  

 1. Take a 10-30 minute walk every day. And while you walk, Smile. It is the ultimate anti-depressant.
2. Sit in silence for at least 10 minutes each day. Buy a lock if you have to.

 3. Buy a DVR and tape your late night shows and get more sleep.
4. When you wake up in the morning complete the following statement,

 'My purpose is to __________ today.'

 5. Live with the 3 E's -- Energy, Enthusiasm, and Empathy.
6. Play more games and read more books than you did in 2007.

7. Make time to practice Meditation or prayer. They provide us with daily fuel for our busy lives.
8. Spend time with people over the age of 70 and under the age of 6. - Appreciate their genuine nature, strength, and innocence. For real!
9. Dream more while you are awake.

 10. Eat more foods that grow on trees and plants and eat less food that is manufactured in plants.
11. Drink green tea and plenty of water. Eat blueberries, wild Alaskan Salmon, broccoli, almonds & walnuts
 12. Try to make at least three people smile each day.

 13. Clear clutter from your house, your car, your desk and let new and flowing energy into your life.

 14. Don't waste your precious energy on gossip, issues of the past, negative thoughts or things you cannot control. Instead invest your energy in the positive present moment.

 15. Realize that life is a school and you are here to learn. Problems are simply part of the curriculum that appear and fade away like algebra class but the lessons you learn will last a lifetime.
16. Eat breakfast like a king, lunch like a prince and dinner like a college kid.
  17. Smile and laugh more. It will keep the energy vampires away.
18. Life isn't fair, but it's still good.
19. Life is too short to waste time hating anyone.
20. Don't take yourself so seriously. No one else does.
21. You don't have to win every argument. Agree to disagree.
22. Make peace with your past so it won't spoil the present.
23. Don't compare your life to others'. You have no idea what their journey is all about.

 24. No one is in charge of your happiness except you.

 25. Frame every so-called disaster with these words: 'In five years, will this matter?'
26. Forgive everyone for everything.

 27. What other people think of you is none of your business.

 28. Nature heals everything.
29. However good or bad a situation is it will change.

30. Your job won't take care of you when you are sick. Your friends will. Stay in touch
 31. Get rid of anything that isn't useful, beautiful or joyful.

 32. Envy is a waste of time. You already have all you need.
33. The best is yet to come.

 34. No matter how you feel, get up, dress up and show up.
35. Do the right thing!
36. Call your family often. (Or email them to death!!!) Hey I'm thinking of ya!

 37. Each night before you go to bed complete the following statements: 
I am thankful for __________. 

 Today I accomplished _________.
38. Remember that you are too blessed to be stressed.

39. Enjoy the ride. Remember this is not Disney World and you certainly don't want a fast pass. You only have one ride through life so make the most of it and enjoy the ride.

40. May your troubles be less, May your blessings be more, May nothing but Happiness come through your door!

Wednesday, July 23, 2008

Prayer Request for Tricia

For those of you that have been following Confessions of a CF Husband they are in need of your prayers you can read the new update to their story HERE. Stay strong Nate and Tricia I know your prayers will be answered!

Tuesday, July 22, 2008

Hooray!!! SLC is in the green! Gotta love the rain!


July 22, 2008
July 22, 2008
July 23, 2008
Particles (PM2.5)
AQI observed at 08:00 MDT:41Good
current conditions map
yesterday's summary
month's archives
Primary Pollutant
Health Message: No health impacts are expected in this range.
Primary Pollutant
Health Message: No health impacts are expected in this range.
AQI observed at 08:00 MDT:34Good
current conditions map
yesterday's summary
month's archives
Secondary Pollutant
Health Message: No health impacts are expected in this range.
Secondary Pollutant
Health Message: No health impacts are expected in this range.

Newborn Screening for CF

Five States Step Up Efforts to Screen Newborns for Cystic Fibrosis

Four states--Arkansas, Kansas, Maine, and West Virginia--have joined 40 others and the District of Columbia in requiring that all newborns be screened for cystic fibrosis (CF) at birth. 

In addition, Utah has cleared the way to begin regular CF screening as well. Routine screening is expected to begin January 1, 2009.

“Newborn screening for cystic fibrosis is critically important because it allows doctors to diagnose the disease before a child becomes ill,” said Robert J. Beall, Ph.D., president and CEO of the Cystic Fibrosis Foundation. “Early diagnosis leads to a better chance for a healthier and longer life. Each of these states has taken an important step in the fight against cystic fibrosis.”

Monday, July 21, 2008

2008 Newport Beach Reunion

After 5 long years we were all reunited!!!!! We
 all have never had more fun!! ;) 

Bob and Peg made these shirts for us all to wear. This was the infamous line that Ricki had in Iron man. She was the flight attendant actually HOT FLIGHT ATTENDANT #1 to be exact and she says "Hot Sake" She is amazing!!

8 o'clock PEG!

From inside 4105 aka the Compound......... We had a full week of fun!! From stories of the good ol days, to legendary poop stories, to daily poop facts, grape fights, lots of 8 o’clocks, bike rides, drunken nights, individuals loving Rosie some even wanting to marry her, humidity, fabulous dinner nights, frustrating garbage can lids, not leaving the compound under any circumstances, great waves, 3rd annual talent show, Gunther ruining the fun, roasting mellows, infamous wine lessons from Craig, Ricki's talented singing voice, Lola’s claw, Stone boys all grown up, Shetland ponies, early mornings, coffee time, Lissa's book, Dolphins, Amy's late night walks, Diarrhea, Nat singing "Tell me why", body surfing, the boat ride, The gumball, Jack in the Box, and so many more great times….. Thank you Bobo and Peg it was better then Christmas! xoxox

Getting fancy

I hope you like the new look! 

Thanks Natty for the lesson on how to make my blog more cute :) Now I am just waiting for that e mail. Xo

Thursday, July 10, 2008

Seriously, How can you not love her??? The proof is in the pudding!!

Interesting Article.... move to a remote island or perma house arrest???

PA: Smog could get worse with global warming

By DINA CAPPIELLO, Associated Press WriterThu Jul 10, 8:30 PM ET

Global warming could worsen smog and stretch what typically is a summer pollution problem into the spring and fall, government scientists predicted Thursday.

Smog is most likely to get worse in the Northeast, lower Midwest, and mid-Atlantic regions of the country, where numerous counties and cities are already struggling to clean up the air, according to a draft analysis by the Environmental Protection Agency.

But in Texas and Southern California, already among the smoggiest areas in the country, the science is unclear, even conflicting. Smog there could get slightly better or become more severe, the analysis said.

Nonetheless, researchers said state officials should be factoring in the impact of global warming as they make plans to try to reduce smog, calling it a "climate penalty."

"These findings also indicate, that, where climate-change-induced increases in (smog) do occur, damaging effects on ecosystems, agriculture, and health will be especially pronounced, due to increases in the frequency of extreme pollution events," the analysis concluded. However, the prediction came with a caveat: the researchers did not take into account efforts to reduce smog that are already under way because of stricter environmental regulations.

EPA stressed that the document did not represent the agency's policies or position on global warming. On Friday, the agency is scheduled to officially respond to a Supreme Court ruling that said greenhouse gases could be regulated under the Clean Air Act if they pose a risk to human health or welfare.

The Bush administration has resisted linking global warming to public health problems.

The ill-effects of smog, however, have been long been recognized. Smog is formed when nitrogen oxides and volatile organic compounds released from cars, industry and plants mix in sunlight. It can irritate the respiratory system, reduce lung capacity and aggravate asthma. Global warming would make smog worse because it would cause plants to release more smog-forming organic compounds and spark more lightning storms, which create nitrogen oxides naturally.

Barry Wallerstein, executive director of the South Coast Air Quality Management District, which regulates air pollution in Orange County, Calif., and parts of Los Angeles, said the link between global warming and smog should compel EPA to control greenhouse gas emissions.


Be a part of Team Boomer

Wednesday, July 9, 2008

Still on house arrest...GRRRR!


Salt Lake/Davis County 3 - Day Forecast


    Wednesday    Thursday    Friday
Day One
Day 2
Day 3

Breathing on her own with brand new lungs!

She is AMAZING!!!!!!! At 10:05 PT this evening, Sara took her first free breath with her new lungs! The Respiratory Therapist pulled out the breathing tube, she gasped and coughed and spit -- and she was on her own!

Her throat is still very sore, and she doesn't have much voice, but she's able to talk a little bit. No fluids allowed, so she's only able to have her mouth swabbed out with some sterile water to try to refresh her. And she's still in quite a bit of pain from her sutures and chest tubes (and surgery!), but is handling it all amazingly well (as any who know her would expect)!

Tuesday, July 8, 2008

Quick Update on My Cyster Sara

She is in ICU and doing well!!! The surgery was a success!!!

She is a fighter please still keep her in your prayers as she goes through the recovery process!! Also please remember to pray for the donor family as they go through the grieving process.

Wow the air is beyond horrible!!

So lately my morning routine involves me checking the air quality on airnow.gov however this morning when I walked outside I couldn't even see the mountains that to me is a good indicator that the air we are all breathing is SHITTY!!!!! 

So needless to say I am back on house arrest! I got out for a few hours today for some dinner well and to stay sane. I just got back from San Fran and something tells me I should of stayed there. Funny with all the fires they are having their ozone and particle pollution levels were lower then Salt Lakes. I am headed to Newport Beach soon so I can breathe in some fresh ocean air!

Prayer Request for my Cyster Sara

My CF Cyster Sara is currently in surgery - She received the call last night around 8:45 pm! Her and her amazing Hubby arrived at UCLA about 2:40 am and they finally separated the two of them around 5:30 am. Mike got the call from the scrub nurse that the lungs had arrived, they looked good, and they were proceeding to start the actual surgery - it was 7 am.

Mike was updated that the surgery is going very well - she went under smoothly, everything is running as expected, and they are working on getting the lungs in.The surgery will probably go til 2 pm. 

Please pray that the surgery goes well and that My Cyster will have a speedy recovery! She has been waiting over 2 years and 30 days for these new lungs I am so happy that she finally got her miracle. Please also pray for the donor family as they are dealing with their loss. I am so thankful that they made the decision to donate and to give the gift of life.

Monday, July 7, 2008

For my Super Hero

I have been waiting for this moment!!! I am so excited you got to have a Pepsi. Your progress over the last couple weeks has been amazing!! I pray that you reach your goal and you are out of the joint by the end of July. Now I know your not a big Madonna fan but this commercial was priceless and well your love for pepsi is huge so I just thought maybe you would like Madonna that much more. This commercial was filmed in 89. I am so proud of you Will keep on keeping on!!

Save the Date.......November 8th

Saturday, July 5, 2008

One wish.... One cure!!

Tagged again!

Ok here was the other tag I got thanks Natty........

I've been trying to ignore this, but here it goes:

Favorite person (outside family): All my Friends!!!
Favorite food? Sushi and my cereal of choice these days is FROSTED MINI WHEATS
Quirks: O wow I have a ton!!! Germ a phobe is my #1 actually I am OCD about it, I obey the law I guess too honest sometimes, Can't drive under certain circumstances no matter what, Not a picky eater but then again there is only certain kinds of food I will eat, I could keep going I'll spare you.
How would the person who loves you most describe you in ten words or less? It would have to be my parents and the would describe me as their lil princess or favorite kid :)
Any regrets in life? Not one!
Favorite Charity/Cause? Cystic Fibrosis Foundaton, Love to Breathe
Favorite Blog recently? All of my blogging buddies
Something you can’t get enough of? My babies Oscar & Lilly
Worst job you’ve ever had? Golden Swirl??? But then I wouldn't of met my GSB so I guess I loved it after all
What job would you pay NOT to have? janitor
If you could be a fly on the wall, where? hmmm Probably the White house (oval office)
Favorite Bible verse right now? John 3:16 
Guilty Pleasure? CANDY
Got any confessions? Now why would I tell you that
If you HAD to spend $1,000 on YOURSELF, how would you spend it? Plane tickets
Favorite thing about your house? My bedroom
Least favorite thing about your house? Cleaning it
One thing you are bad at? Water Polo... Ok I have never really tried...
One thing you’re good at? Always having fun!!
If you could change something about your circumstances, what? Again not a thing!!
Who would you like to meet someday? Madonna, but not just meet her I want to get to know her!!
What makes you feel sexy? Getting fancy
Who is your real life hero? I have more then one and they know who they are!
When are you most relaxed? when I am getting a massage
What stresses you out? Germs
What can you not live without? My family, friends, Oscar, Lilly
Do you agree or disagree with the recent article that reported that blogs are authored by narcissists? I wold have to agree to disagree :)

Ok I tag Shar, Sara, and Cara Love ya guys have fun!!

Friday, July 4, 2008

I'm it!!!

Ok so I have putting this off for quite some time now.... I have been tagged by some great friends and I need to fulfill my duty and try and come up with 5 facts about my self that are pretty random that you may not know..... This is harder then you think!

#1 So you all know I am a mom to 2 adorable pugs Oscar & Lilly and they are so spoiled! But my latest idea that I think I will complete by the end of this summer is to make my guest bedroom into a  doggy room I want to put 2 toddler size beds in there and have their pics on the walls and then put one of my favorite quotes on the wall "The pug is proof that God has a sense of humor" The walls in that room are a light mintish green so I am trying to come up with something that will be unisex for them both. Without having to repaint.

#2 I think my worst fear is bees.... Knock on wood I have never been stung but I seem to attract them. Once I found one sitting on my shoulder and it was with me for about 6 min and stayed on there even when I went back indoors. Of course I didn't know it was there or I would of had a minor heart attack. Someone was so nice to point the lil guy out to me that is when I went into panic mode. 

#3 I have a list of a 100 things I want to complete before I die.... I recommend everyone make one it is so great to actually get to cross the items off, better then any to do list. They actually just made a movie about this called the bucket list, which I recommend. Anyways this might be a shock to many but the number one thing on that list is to not only meet Madonna herself but to also get to know her. I did have a dream last week that we were best friends so who knows it could happen.

#4 Another goal I had after completing high school was to be famous well I went to Utah State and trust me I wasn't going to get discovered in Logan Utah. So I am not sure how it came about but my dad new this producer in LA that arranged for me to do a screen test with Sage Stallone (Sylvester's son) we filmed it at Sylvesters house and the scene called for a kiss but I chickened out and we fudged it a bit :) Needless to say my career never took off.

#5 hmmm 1 more???? So I love Disneyland. I try to go every 3 years..... My favorite ride is Splash Mountain!! I am so excited for the next time I go I really want to stay in the castle. They just recently put a room on the top of the castle where tinkerbell lives. Can you imagine when the park closes you are still going to be inside. SO cool can't wait for that!! 

Phew... Ok Shar, Sara, and Cara I hope I met your expectations :) !!! That was a struggle. I tag Tanya, Erin, Natty and my GSB