Monday, April 28, 2008
Thursday, April 24, 2008
MOM HAPPY _ _st BIRTHDAY!!! Have fun in Sin city.... Enjoy the sun for the both of us! I love you lots and I hope that you have the best day ever. I hope the next year is your best year yet! Thanks for being so fabulous, I am so lucky to have you as my mom!! XOX
Wednesday, April 23, 2008
Tuesday, April 22, 2008
Friday, April 18, 2008
Wednesday, April 16, 2008
To pass the Cystic Fibrosis Awareness Resolution--and help us find a cure or control for CF--members of Congress need to understand what it means to have the disease. You are their most important resource. Members of Congress will back our efforts because YOU ask them to.
Ask your member of Congress to sign on to the CF Awareness Resolution today!
Thanks for your support!!
Monday, April 14, 2008
Thursday, April 10, 2008
Wednesday, April 9, 2008
Sunday, April 6, 2008
Us trying out our new skates
Thursday, April 3, 2008
YAY!!!! I am so excited!!!!!!!!!!! Madonna's new Album "HARD CANDY" is in stores April 29th. You can pre-order it now onAmazon. Her first single to be released is titled 4 minutes, featuring Justin Timberlake. 4 minutes is available on itunes now!!!
Well They are not to happy with me but Oscar is so handsome and Lilly is so petty now! At first they get very excited and they jump right in....
Wednesday, April 2, 2008
Tuesday, April 1, 2008
Here is the next upcoming Web Cast produced by the Cystic fibrosis Foundation. I am already signed up also if you go to the foundations web site they have a list of archived Web Casts. I really like these they give you a chance to hear from other centers and other docs and they update you on all the new developments....
|CF Lung Health Anthology:|
Smoke Exposure, Exercise, Chronic Meds and ACT
A Live Virtual CF Education Day Web Cast
Wednesday, April 30, 2008
8 p.m. ET
(7 p.m. CT; 6 p.m. MT; 5 p.m. PT)
Click here to register
Join the Cystic Fibrosis Foundation for a live 60-minute Web cast. This year's Web cast series will be in a new four part format. Each part will feature an expert discussing the latest information on a topic of their expertise. Questions can be submitted in advance or during the Web cast to be answered at the end of each segment. The April 30th Web Cast will feature:
- Michael Schechter, MD, MPH, from Emory will discuss the hazards of second-hand smoke for people with CF and the best ways to avoid it.
- Anne Mejia Downs, PT, MPH, CCS, from the University of Indianapolis will talk about exercise and cystic fibrosis. She’ll give tips on what to do, how it fits in with other therapies and daily life.
- Patrick Flume, MD, from the Medical University of South Carolina will discuss the recommended therapies that people with CF can use to maintain lung health, according to recently published CFF guidelines for the use of chronic cystic fibrosis medications.
- Mary Lester, RRT, from the Medical University of South Carolina will demonstrate techniques for airway clearance (ACT). She will show the different forms of airway clearance and give tips for how to fit this therapy into daily life.
About this Web Cast Series
Produced by the Cystic Fibrosis Foundation, this innovative series of Web casts brings the cystic fibrosis community together in a “Virtual CF Education Day” forum to learn from the experts about living with CF and the latest in CF research. Each Web cast features different members of the CF healthcare team, or experts in CF research, from across the United States.
The Web cast forum offers an opportunity for questions from the CF community to be answered. This educational tool helps to empower people with CF, families and friends to take an active part in CF care through increased knowledge about the research and the highest quality care.