The road to recovery...

THANK YOU, THANK YOU, THANK YOU!!!!

For all your prayers and positive thoughts.... The heart and lungs were a perfect match! One of Sharlie's surgeons even called them "pristine".

I am so happy for her and the life she will soon have. Sharlie is healing and doing well but having lots of pain and nausea. She is a fighter and is so strong I know she will be healed in no time. Please continue to pray and send her positive thoughts for a speedy recovery.

Remember if you want updates you can click here

Xo

Feb 16th

A GREAT DAY FOR MIRACLES!!!

Sharlie got the call last night and is currently in the OR at Stanford receiving a new heart and lungs as I type. The pic above is Shar last night waiting to hear if it was a go and reading all her amazing messages from what seems like the world.... She is SO loved!!!! You can also see she is wearing her Sharlies Angels tee... I put mine on last night too and am not taking it off until after her surgery. ;)

Please keep her in your prayers and send her positive thoughts as well as the surgeon team and the donor's family. Please also keep Sharlie's family in your thoughts and prayers. This waiting business is nerve racking and is filled with lots of emotion, but most of all HOPE and Excitement!!!! I cannot wait for Shar to begin her new incredible journey where she can BREATHE!!!

I love you Shar SO SO VERY MUCH!! BCF 4EVA!!!! XO8!!!!!!!!!!!!!!!!!!!!!!

There will be updates on Sharlies Angels Facebook page so follow that!!

Be An Angel....

A Sharlie's Angel!

Many of you may remember my post about Sharlie recieving the great news that she was accepted at Stanford to get a new heart and a new set of lungs. Well if you don't remember you can click here.

Well many of Sharlie's Angels have rallied and helped fundraise for her next BIG miracle. You can check out her fundraising page here. There have been lemonade stands, craft sites, a benefit called Air supply you can read all about those on Sharlie's blog which is titled Sharlie's Angels. I know she feels that everyone in her life is truly an angel but in reality she is our angel. We are all SO blessed and SO lucky to know her and I know she inspires many each day including myself.

I wanted to help out to in some way, so after brainstorming some ideas I came up with an idea to paint a Sharlie's Angels painting. I thought I would auction it off on my blog and all proceeds would go towards Shar's transplant. So below is a close up of the painting and a description...

This painting is titled Sharlie's Angels and it is painted with acrylic paints and on a 16x20 canvas. Here's a close up pic of it....

So the highest bidder will receive this 16x20 painting. You have until Dec 1st to bid, that way I can get it in the mail in case you want to give it as a Christmas gift. Just leave a comment or email mail me at somer@lovetobreathe.com with your bid. I will update this blog post to let you know what the bid is at every day unless the bid remains the same.

I will start the bidding at $100. Good Luck and Happy Bidding! Xo

Bid is now at $500 back to Jason. 2 min left!!!  Bidding will close tomorrow at 5pm Mountain time.


Closed~~~~~ Congrats Jason!!! Thank you for helping Sharlie with her transplant. Consider yourself one of Sharlie's new Angels :)

The Best Gift

Is the gift of life... What a miracle it is!

I am so excited for my friend Julie she got some new shiny lungs early in the am on Sun. She is doing very well in her recovery and I can't wait for her to begin her new journey. You can follow her blog here. She was already up and walking today she is so strong!

She is having a celebration concert on May 9th to help raise funds for her medical bills, there will also be a silent auction. You can get tickets now, they are on sale on her blog. So what are you waiting for go get them and help celebrate this miracle.

This is a pic of Julie and I a couple years ago at Taste of Salt Lake.

Update on Tanya

Tanya got the vent out today!!! Yay!! She is on Bi Pap and is satting at 99 on that!!! YAY She is in good spirits and looks great!! I love ya T you look so fabulous!!! We are all so proud of you!!! You can check her blog for updates HERE

Prayer Request!!

Please pray for Tanya! She hit a bump on her road to recovery. Part of one of her lungs collapsed and she had to be put back on the vent. They also had to re place a chest tube to drain some fluid from her lungs. She is strong but could use some positive thoughts and prayers sent her way! Keep your chin up T.... I am praying that this is just a lil bump and you will be back on your way outta the joint in no time!

Update on Tanya

So they remov​ed all her chest​ tubes​ today​ and took her off the vent!!!!! WOOP WOOP!!!!!! She is worn out but is breat​hing on her own with her new breathers!! EXCELLENT JOB T!!!!! Keep up the GREAT work!! I am so VERY proud of you!!!! I ask for you to continue to keep her in your prayers!!

Update on Tanya

She is doing amazing!! She stood for a bit today and the camera that went down into her new breathers showed how beautiful they looked. Please pray she gets some rest tonight and tomorrow they are hoping to take her off the vent. Thanks for all your thoughts and prayers keep them coming so she can have a speedy recovery and bust out of the joint!

She is staying strong!

Pleas​e keep Tanya​ and her famil​y in your praye​rs for a speed​y recov​ery!​!​

Tanya​ had a rough​ night​,​ she is a littl​e down today​.​ She will not be taken​ of vent today​.​ They want to see how her lungs​ are doing​ first​.​ They do that by putti​ng a small​ camer​a down the venti​lator​ tube.​ 

She has been taken​ off some of the medic​ation​s.​ They are havin​g a littl​e troub​le regul​ating​ her blood​ press​ure but we are told that is norma​l becau​se the body is fight​ing again​st the tube for the venti​lator​ and the treme​ndous​ shock​ to her littl​e body.​

ROCK STAR!!!

Tanya is a Rockstar!!! She is doing so great she is communicating and they predict the vent will be out tonight! I am so happy for her and her family! Please continue to keep her and her family in your prayers.

Also please pray for a speedy recovery for T and pray for the donors family as they go through the grieving process.

PRAYER REQUEST!!

FINAL​LY!​!​!​!​!​!​

AFTER​ 241 days Tanya​ got her new breat​hers!​!​ Her twins​ came from New Mexic​o how perfe​ct is that!​ For those​ of you that don'​t know New Mexic​o is pract​icall​y her 2nd home.​.​.​.​.​.​ Ok well 3rd home the joint​ is proba​bly her 2nd home :)


Pleas​e pray for T she went into surge​ry at 6:30 am She shoul​d be finis​hed aroun​d 2 or 3 this after​noon.​ Also pleas​e keep the donor​ famil​y in your praye​rs as they griev​e the loss of their​ loved​ one. I am so thank​ful they decid​ed to give the gift of life!​

I will updat​e as soon as I know more!​

Breathing on her own with brand new lungs!

She is AMAZING!!!!!!! At 10:05 PT this evening, Sara took her first free breath with her new lungs! The Respiratory Therapist pulled out the breathing tube, she gasped and coughed and spit -- and she was on her own!

Her throat is still very sore, and she doesn't have much voice, but she's able to talk a little bit. No fluids allowed, so she's only able to have her mouth swabbed out with some sterile water to try to refresh her. And she's still in quite a bit of pain from her sutures and chest tubes (and surgery!), but is handling it all amazingly well (as any who know her would expect)!

Quick Update on My Cyster Sara

She is in ICU and doing well!!! The surgery was a success!!!

She is a fighter please still keep her in your prayers as she goes through the recovery process!! Also please remember to pray for the donor family as they go through the grieving process.

Prayer Request for my Cyster Sara

My CF Cyster Sara is currently in surgery - She received the call last night around 8:45 pm! Her and her amazing Hubby arrived at UCLA about 2:40 am and they finally separated the two of them around 5:30 am. Mike got the call from the scrub nurse that the lungs had arrived, they looked good, and they were proceeding to start the actual surgery - it was 7 am.

Mike was updated that the surgery is going very well - she went under smoothly, everything is running as expected, and they are working on getting the lungs in.The surgery will probably go til 2 pm. 

Please pray that the surgery goes well and that My Cyster will have a speedy recovery! She has been waiting over 2 years and 30 days for these new lungs I am so happy that she finally got her miracle. Please also pray for the donor family as they are dealing with their loss. I am so thankful that they made the decision to donate and to give the gift of life.

For my Super Hero

Will 

I have been waiting for this moment!!! I am so excited you got to have a Pepsi. Your progress over the last couple weeks has been amazing!! I pray that you reach your goal and you are out of the joint by the end of July. Now I know your not a big Madonna fan but this commercial was priceless and well your love for pepsi is huge so I just thought maybe you would like Madonna that much more. This commercial was filmed in 89. I am so proud of you Will keep on keeping on!!

Prayer Request...

Please take a second and say a prayer for my friend Will. 

He has had some complications with his recovery and is back in the ICU and getting some help from the vent. It's just a lil bump in the road, he is so strong and he will get through all this and it will be so worth it!! His family is by his side and his mom is the most positive person I know! Terri, Tom and Will you are all in my payers!

The Amazing Will Harbison!

YES!!!! MY Super hero is at it again....

He got the vent out!!! He is walking the halls!!!! He got a GIANT Pepsi and watched the final four games yesterday!!! 

Will I am so proud of you!!! You are AMAZING!!! Keep up the great job! You and your family continue to be in my thoughts and prayers. You are going to be out of the joint in no time!!

Happy Birthday Nate (CF Husband)

For those of you that have been following the Confessions of  a CF husband blog.....

It's a go!!!!

Tricia is being prepped for surgery! It could be a dry run but it is sounding like this pair is perfect! Pray for her, the TX team and her donor family.

Today is Nates Bday too! I don't think he could of asked for a better gift.

What a Miracle!

UPDATE: The surgery was a success!!! She should be off the vent later today or tomorrow, and breathing with her new lungs.... Please still keep her and her family and the donors family in your prayers.

Inspired!!

Okay so I decided to give this blogging thing a chance. 

My good friend Terri Harbison inspires me every day thru her blog on my "super hero". So I figured I would give it a shot, I have also have found it is a great tool to communicate with family, friends and to the CF community. Last night I posted my first "Test" blog. It wasn't as bad as I was thinking. I am still trying to figure most of it out so be patient.

LOTS OF HEARTS!