Sunday, April 25, 2010

it's official

The count down has Officially started!!!!
Woop Woop 31derful is a MONTH away!!! :)

Saturday, April 24, 2010

Happy Birthday Mom!

Happy Birthday Mom!!!! I hope you have the most AMAZING day!
My cute friend Sarah wrote this poem... I thought it was perfect... I had to "somerize" it a lil tho.

I don’t know where to start this, So I guess I’ll use the start

The part where you had a sick baby, I know it broke your heart

All the medications, You had to make me take

The clapping and the enzymes, The strength you sometimes faked

Through my teenage years, I know I was a pain

Thank you for putting up with me, Though driving you insane

Every time you’d hear me cough, I know it would stop your heart

When I’d get an infection, It must have torn you apart…

Thank you for teaching me, That CF was not an excuse

And making me take my pills, When I tried to refuse

You are my CF momma, No words can explain

The strength you possess inside, That gets you through the pain…

To teach me to love others, As much as I love myself

And sometimes you taught me, To put my pride up on the shelf

I know sometimes you blame yourself,

For that gosh darned faulty gene

I want to know that I wouldn’t, Change it for anything

That gene made me who I am today

A strong amazing girl

I wouldn’t change one thing

About my CF world

I have met terrific people, I help doing an amazing thing

All because of that one, Gosh darned faulty gene!!!

Mom Thank you SO much for always being there for me I love you and am so blessed to have you in my life. I thank God for giving me you and Dad everyday!!! I am the luckiest girl I know!

Xo infinity!!!!


Thursday, April 22, 2010

Hero of the Month

Paul Quinton Ph.D. is a professor of pediatrics at University of California San Diego, and a professor of biomedical sciences at University of California Riverside, where he works to advance the understanding of the chronic illness, cystic fibrosis (CF). Dr. Quinton's interest in this genetic disease stems from his own diagnosis with CF when he was 19 years old. While he is 65 years old, the median lifespan for CF is 37 years. Dr. Quinton is recognized for his work in discovering the defect in the CF gene that prevents chloride molecules from entering and exiting affected cells. His research explained why the sweat of patients with CF is abnormally salty and has helped us understand that this illness is a disease of abnormal salt movement that is associated with abnormal mucus. We recently had the opportunity to talk to Paul, and learn a little bit more about this tremendous Hero of Hope.

To read more about him and hear his podcast click HERE

Wednesday, April 21, 2010



Did you watch Glee last night? It was ABSOLUTELY MADGICAL!!!!! I loved it if you missed it... Well you missed out, you should watch it on demand or online. Glee is a good lil show I have never seen it before. Might have to start watching it. Their Madonna tribute was class act!

Here's a lil sneak peek....

Monday, April 19, 2010

Favorite Dress... Pug O war and a lil in between

This weekend lots of time outdoors and lots of ball was played. Its 75 today and beautiful... For those of you that really know me I am wearing "THE DRESS" today first day of the season :) Ill fill you all in...

You know that one article of clothing that you can't wear enough... Well I have this dress you all have seen me in it it's the one I am wearing in both pics on this blog with my babies the header and the one wear they are dressed up. Yep the turquoise one... I ABSOLUTELY LOVE it!!! It even made it's debut when I was in the TOBI calendar. It fits great is SO comfy and no bra needed. I bought it in NY at H&M 4 years ago and I haven't been able to find anything like it since, that is why it seems to gets cycled in at least once a week in the spring/summer. We all started calling it "The Dress" So just know that I am So comfortable today ;) My mom always is on the look out for something comparable (I think she gets sick of seeing me in it). But honestly nothing comes close. Patty and Kathy I am going to see if your mom can duplicate it for me in other colors when she gets here. I have heard she is Very talented. Then I can wear it EVERYDAY!!!! :)

I also have a Jimmy Buffet T shirt that I seem to wear a ton too... Only in private tho its one of my pj tees. It has holes and I wore it while painting once. oops I am not a neat painter. It started out being a bright yellow it is now a light yellow peach....

I rode my Vespa ALL over this weekend too... Loving this Spring weather. My house is getting hot I refuse to turn the air on tho and I cant open windows because we have these beautiful but VERY STINKY trees that line my street I will have to take a pic. But they are in FULL bloom and In FULL stink!

Video of the babies playing Pug O War I never get tired of watching them do this...

Makena has taken after me in the grab bag closet wardrobe approach to dressing ;) She thought my Vespa was pretty cool!

Thursday, April 15, 2010


Took the Vespa for a spin today..... It was GREAT! Lots of people were out mowing the lawns. Love all the smells I can smell when I am riding. My favorite is riding when the sprinklers are going and the BBQ are cooking. MMMMM

Spring has sprung! I love the sun...

So do the babies, we have been enjoying the outdoors. Allergies are starting don't forget to use your Nettis, your nose will Thank you!

Have a great day!

Friday, April 9, 2010

Look what comes out

2 days after my bday....

So I am sure there will be a midnight showing the day after me bday... Might have to plan a lil something~

31derful is going to be SO GREAT!

Tuesday, April 6, 2010

Sticky & Sweet

YAY!!! It's finally here Madonna's Sticky and Sweet Tour Dvd and Cd is in stores today I am headed out to go get mine! I highly recommend everyone getting this. Seems like just yesterday I was watching it live in San Diego. It was AMAZING!!!

I am wearing one of my Madonna tee's today to celebrate :)

In San Diego
I was SO excited!

Today is Also My Bro's 32nd Birthday! So Crazy... Happy Birthday Big Bro! We are Irish twins only 13 months apart and the best of buds! Xo

Sunday, April 4, 2010

He is


He is Risen indeed!!!

Go out and make it a great day...
Love Lots and Be good to others!
Happy Easter! Xo

Friday, April 2, 2010

Be good

On Good Friday!

So today I challenge everyone to perform 3 acts of kindness to 3 different people. It can be anything even a simple text out of the blue.

Anything to put a smile on someone's face. :)

Thursday, April 1, 2010

3 am

Can't sleep.....

The sheep thing isn't working

The easy listening itune mix I made isn't working
The babies are snoring away, No fair!

Can't seem to shut off my brain.

Any suggestions?