Sunday, December 20, 2015

Back to "real life"



As I sit here and reflect on the last couple weeks and transition back into "real life" I am truly humbled!! Hospital life is tough, and it can be frustrating, CF is definitely something you can't fight alone. Having a support system is so important when it comes to facing any battle, no matter the size. 

I am blessed beyond measure to have the support system that I do.... From the medical staff, my CF team, my CF family, to all of you that follow my journey, my amazing friends, my wonderful family, and to the two that started it all and that have been with me every step of the way, my parents. You ALL play such a huge part in my life and continue to keep me going time and time again. 

When I was diagnosed with CF at 11 months old my parents were told to take me home and love me because I probably wouldn't live to see my 10th birthday. Right then and there my parents chose to fight and fight like hell. When I was old enough I adopted my parents philosophy and joined the fight.

I fight so hard day in and day out, not just for myself but for ALL of you. These last couple weeks have served as a good reminder why I fight so hard. My numbers weren't really where I wanted them to be when I left the joint this time around. I left at 27%, numbers are so frustrating and I try not to pay to much attention to them, which is easier said than done. 

The most important thing is that I feel better, my mucus is beautiful, and I am HOME!! Healing at home and being in my own environment makes me feel like I'm practically cured. ; ) 

I am confident when I go to my hospital follow up appointment I will see that 30 again. I am going on 7 weeks now of the full dose of Orkambi, I am noticing lil changes and I am still very hopeful. 

Thank you from the bottom of my heart for all of your support. I'm not sure you know how much it truly means to me. You ALL make fighting CF that much easier, and for that I am forever grateful. Breathe out Love! Xo❤️

Thursday, December 3, 2015

My CF Life



"Just because we are knocked down does not mean we are out. We still have breath in our lungs and tears flowing down - all signs that we are alive. Take a deep breath and be reminded that often our biggest struggles are the stepping stones to our greatest victories."-Rae Smith

The human body is amazing!!! I'm constantly blown away what my own body endures on a daily basis. 

This last week I have had fevers, hemoptysis, pleurisy you name it. I am breathing with only 28% of my lungs, my heart rate has been hovering around 130, my body seems to always be burning the candle at both ends. So sometimes I need to just stop and let my body rest and take a good old fashioned time out. I have been out of the joint for almost 2 years now, 22 months to be exact, which to me is a huge accomplishment. 

I don't wave that white flag often but I feel like I have given this lil rough patch of mine all the fight I can, I'm exhausted and need a lil extra help. It's funny how waving that flag can give me a sense of relief. I am hoping this two week stay in the joint with some aggressive high dose IV antibiotics will be just what my body needs to get over this lil hurdle.  

I work so hard day in and day out, every second that I spend on my health is so worth it. I am so blessed that my body keeps allowing me to live, to love, and to breathe, I will never stop fighting. CF is inconvenient, CF is exhausting, CF is not easy. However, CF has made me strong and has made me appreciate all the lil things in life. CF makes me fight harder, love more and truly appreciate life one breath at a time... CF is a blessing in an ugly disguise. This is my reality and its made me who I am today, for that I am so very grateful. 

I am beyond blessed to have this amazing support system that I do. With all of you behind me I know I'll be back to burning that candle in no time. CF will never stop throwing these sucker punches my way, but I know together we will show CF who's boss... Thank you once again for all your love and continued support. When I think about it CF really doesn't stand a chance. We got this!!! 

Breathe out Love! Xo❤️

Monday, November 23, 2015

A Lil Glimpse Of My Life With CF

The video that was played at Taste of Utah this weekend.... 


We are so close to a cure, but we aren't there yet. We have to keep the momentum going!! 
Breathe Out Love! ❤️

Sunday, November 22, 2015

Taste of Utah


With each breath roses grew. 
My garden gave me the most beautiful view.
The world can be so scary and dark. 
I'm thankful this rose allows me to see with my heart. 
-Somer Love 

This rose of mine has blessed me to see so much beauty in this world. Tonight my heart is overwhelmed with gratitude. As I looked around tonight I couldn't help but notice I was surrounded by a room full of beautiful people who gave so selflessly. It takes a village to live with CF and I couldn't be more blessed and proud to have the village that I do. 

There is so much work that goes into events like Taste of Utah. I thank every single one of you that had a hand in making tonight the success that it was. It's people like you that will make CF stand for CURE FOUND. I wish I could of spent more time with each of you that attended or volunteered tonight. This event takes all year to prepare for and it is seriously over in a blink of an eye. 

The donations for bid for a cure brought tears to my eyes. I am so very blessed!!! CF doesn't stand a chance with all of you fighting for a cure right by my side. I promise you we will see that day soon.... We just have to! I want nothing more than all my lil CF kiddos to have long healthy lives, and I promise you I will never stop fighting for that day we find our sought after cure. 
Breathe out Love! Xo❤️

Thursday, October 15, 2015

Healthy Tips I Swear By....

It's that dreaded time again ... Cough, cough, sneeze … Yuck! I’m prepared, though. And you can be too. Check out the top nine tips I swear by for staying healthy during cold and flu season.




https://www.facebook.com/lovetobreathe/posts/1163944993633713

Monday, October 12, 2015

Grateful For This Moment


I saw this quote and I can't stop thinking about it so I wanted to share it with you.... 

"Letting there be room for not knowing is the most important thing of all. When there's a big disappointment, we don't know if that's the end of the story. It may just be the beginning of a great adventure. Life is like that. We don't know anything. We call something bad; we call it good. But really we just don't know."-Pema Chรถdrรถn 

I guess we don't really know anything and that's ok. We say things are good and we say things are bad, but do we really know? I guess not, and that actually makes sense. All we can do is be in the moment, and take every moment after that as it comes. So for now, just be grateful for this very moment. 

Breathe out Love! Xo❤️

Friday, September 25, 2015

Orkambi



Although it may not be easy, there are times  where you just have to be okay with not knowing what will happen next... 

For the first time in a long time Orkambi gives me hope. Hope for a prolonged future, and hope that maybe I can live just a lil bit longer. I still have a lot of things I want to do here... I love my life. 

Will Orkambi be the right drug for me? Will it help me get off oxygen? Will it thin out my very thick mucus? Will I see my 40th birthday? Will I soon need a life saving double lung transplant? These are all questions I ask myself all the time. 

I have asked so many questions and I have read countless stories of everyone who has started Orkambi before me and the truth is everyone has had different experiences. We just don't know the answers to all of my questions because we simply won't know if Orkambi will help me until I give it a try. 

I have lived a very blessed life, having the opportunity to take this drug that I have waited my whole life for is just one more blessing I can add to my very long list. I am happily grateful for everything life has thrown my way and beyond grateful for all of you. I'm not sure if I have ever been more nervous about something, so if you have time or if you think about it if you could send some love, positive vibes, prayers or anything in between my way it would be greatly appreciated. 

As I swallow my first dose on Wed Sept 23, 2015 I was and continue to be focused on visualizing a positive outcome with minimal side effects. My heart is filled with hope that I will come out on the other side of these next couple weeks with stronger lungs and deeper breaths.... and most of all hope that I can stick around here just a lil bit longer. 

Sending you all so much love and from the bottom of my heart thank you, thank you, thank you for your continued love and support, you truly keep me going! So here we go.... Cheers to Orkambi and getting some answers to all of my questions. 

Breathe out Love! Xo❤️

Friday, September 18, 2015

Love To Breathe® Tokens




Today I went to a Starbucks in downtown Salt Lake to meet an amazing friend, so this wasn't my regular Starbucks. 

So I plopped my backpack on the counter as I was paying and my new friend Jon made a comment about having the same pin as me. I have pins on my O2 bag and I made one of my #LoveToBreatheTokens into a pin and there is only one like it, so you can imagine my confusion. 

So I asked him again while pointing to my token if this is the pin he was talking about... and apparently he doesn't have it as a pin, but he had just been passed one of my tokens. I was so shocked. So I pulled out a token from my pocket and smiled the BIGGEST smile ever and said, "its me... I'm the one that makes these tokens." Ha ha. I was literally so excited, and my mind was literally blown. Im pretty sure it's safe to say his mind was blown too. 

They are working guys!! My Love To Breathe® Tokens are being passed around. Jon at the downtown #Starbucks seriously made my day!!! If you're in the downtown Salt Lake area go visit Jon at the 600s Starbucks, you never know he may just pass on his token to you! 
Breathe out Love! Xo❤️


 



 

 

Friday, September 11, 2015

Just Love

"And in the end, we were all just human... drunk on the idea that love, only love, could heal our brokenness."  

Hard to believe it was 14 years ago. A day that started out with so much hate, finished with so much love. We all came together, we were all ONE. From first responders to all those who lost their lives we will never forget. This day 14 years ago forever changed us ALL in some way. 

Never take anything for granted, love a lil more, and live life to the absolute fullest. Remember that where there is hate, there will always be LOVE, and LOVE will always win; it will heal our brokenness. 
Breathe out Love! Xo❤

Thursday, September 3, 2015

In Memory of Brookes



I have met so many amazing people along my journey. Just the other day I received a message from my new friend Tanya. She shared with me the story of her brave son Brookes... this 
year would have been his 35th Birthday. Brookes had CF and passed away Sept. 3, 1988 at the age of eight, following one of the very first heart/lung transplants for CF patients in this country. He lived in Vermont where Milkweed is plentiful and he could often be seen opening up their pods filled with magical wishes and angel wings. 

In his memory she is asking others to plant milkweed in their own backyards to create a  way station for the Monarch butterflies. For information about monarchs, milkweed and way stations, go to www.monarchwatch.org. 

I have always been a huge fan of butterflies and never even knew about the importance of milkweed and way stations. Tanya is sending me some milkweed seeds so I can plant them in my backyard. Although my thumb is far from green I am honored to be a part of Brookes' story. If you happen to find yourself planting milkweed after reading this comment below with what State you live in, so Tanya can track Brookes' path of angel wings. 

I believe every experience doesn't just happen by chance and I found myself smiling when Tanya was telling me about the butterflies and milkweed. I was smiling because I remembered this photo I took last year when I attended a butterfly release just 8 days before Brookes 34th bday... I sent it to Tanya and she confirmed that the pic I took was indeed of milkweed. I'm pretty sure when I snapped that pic a year ago it was just my angels above keeping me on track. 
Breathe out Love! Xo

Friday, August 28, 2015

Fly High



"The man who has no imagination has no wings"-Muhammad Ali 

"Maybe life isn't about avoiding the bruises. Maybe it's about collecting the scars to prove you showed up for it."

I believe life is what you make it. So make sure you keep showing up for it time and time again. Get back up and keep trying! It'll be frustrating, but keep your goals in mind and stay focused... don't give up! Your struggles make you stronger, and you're strong! Don't wonder how hard you'll fall... Instead wonder how high you'll fly!! Because whatever life may throw your way all you can really do is spread your wings and fly! 

Breathe out Love! Xo❤️




Tuesday, August 25, 2015

Happy Birthday BC

Happy Birthday to this amazing woman.... 

It takes a village to maintain CF and I can't imagine growing up without her advice and expertise. I am blessed to call Barbara Chatfield aka "BC" a friend, not only is she a great friend but she was my pediatric CF Doc. I'm pretty sure I am responsible for a gray hair or two... Ha Ha!! I mean, she did have to put up with me throughout my teenage years. She deserves an award for that alone, so naturally in November of 2009 she was awarded the Love To Breathe® Award. 

"They say you have never really lived until you have done something for someone that can never repay you" and this quote couldn't be more true, I truly believe she is one of the many reasons why I, and I am sure many others are still here today. Happy Birthday BC! I hope your day is absolutely wonderful! 
Breathe out Love! Xo❤️  


 

 
 

Monday, August 17, 2015

Life is good

Happy Monday!! 
Remember 7 billion people will experience this day in a different way. How you'll experience it, is up to you. Make it count! 

Breathe out Love! Xo


Thursday, August 13, 2015

Small pieces... Make the BIG picture.

Imagine putting together a puzzle with infinite small pieces?! 
What a pain in my lung... Literally! Ha! 

These lungs of mine are so complex and keep me on my toes at all times. I feel like they are a puzzle with too many small pieces to count. I had a professional photo shoot today, ok fine they were X-rays ; ) but I had the chance to see my pearly whites. This is my actual x-ray, Im pretty sure they keep getting whiter and whiter... my teeth should probably take note ; )  ha. 

Well the good news is I don't have a pneumothorax which could also be referred to as a collapsed lung. The bad news is we aren't to sure what is causing this little yet significant pain of mine. Most likely it's just a cluster of infection, so hopefully I can remedy it soon with even more treatments and airway clearance or it might be time to throw some antibiotics in the mix. 

See I wasn't kidding, more small pieces to my puzzle. Although, I'm not sure I'd have it any other way... after all it's the small pieces that make the BIG picture. 

Breathe out Love! Xo







 


Be Infinite!





Fear is an unpleasant emotion caused by the belief that someone or something is dangerous, likely to cause pain, or a threat.... CF is fear. Living with fear lurking over you can be daunting at times. Remember to rise up and be stronger than your fears and show them how brave you are, be infinite. Distinguish every fear with your breath. Tell your story, inspire, and be fearless while doing so... You just never know when you can make a difference.

Breathe out Love! Xo


Wednesday, August 5, 2015

Bonded For Life

Sending love to all my CYSTERS and FIBROS today and everyday, especially those that are needing a lil extra love right now!! Trough THICK and thin, we are in this together. Keep staying strong! 


Breathe out Love! Xo❤️


Sunday, July 26, 2015

Take The Time To Breathe

"Clouds come floating into my life, no longer to carry rain or usher storm, but to add color to my sunset sky"-Rabindranath Tagore 

Sunset is my absolute favorite color! 

Take the time this week to really be in the moment and breathe. Find a place where you can do just that, because really that's what it all comes down to is needing time to breathe. 

Breathe out Love! Xo❤️



Friday, July 24, 2015

A Decision Within

I had the honor of being a guest writer on the incredible Breathe Bravely 
blog. 
I love reading Ashley's blog and seeing how she finds beauty in every breath she takes. Ashley and I both have CF, we share an unspeakable bond I can't quite explain. An understanding, and a love that's shared deep within us, a "CysterHood" to know each other is a blessing. We are a like in so many ways, yet so different at the same time. We have this one thing that connects us, that puts us in the company of some of the strongest, most amazing people. Our common thread isn't something you want to have, but there isn't a choice and we make the best of it. 
Ashley is one of the many reasons I am grateful for my CF journey. Thank you Ash for the opportunity to be a guest on your blog. 
Breathe out Love! Xo❤️



http://breathebravely.blogspot.com/2015/07/the-decision-within-guest-post-written.html?m=1

Wednesday, July 15, 2015

The Habit Burger Grill

Best Lunch EVER!! We raised a lil over $1100 for the CF Foundation. The Habit Burger Grill is SO amazing I am beyond grateful to all of you. They seriously hire the kindest people to work there. If you have a chance go check them out, they officially open tomorrow. They are located over by Target off Fort Union. You won't be disappointed! Get the fried green beans they are honestly life changing!!  Thank you again so much to everyone who came out and got their grub on.... and to everyone at the Habit thank you from the bottom of my heart! 

Breathe out Love! Xo❤️


Thursday, July 2, 2015

Approved!!!

I have been waiting for a day of this magnitude for quite some time.... I am beyond grateful. Today's news for the CF community brings many emotions but most of all happy tears, I am so happy for all those who will benefit from Orkambi. I am grateful for all involved to help make Orkambi possible including the patients who were in the studies and for the patients who went before the FDA in May to tell their story. We are SO close to that sought after cure, but the reality is we aren't there yet. We need to continue to fight and fight hard! I will not stop until everyone will benefit from a drug of this kind, or even better when headlines read CF stands for CURE FOUND! 
Breathe out Love! Xo❤️ 


Tuesday, May 26, 2015

36 In The Mix

Hooray for another year!! #36inthemix So blessed! Holy cow!! 36 who would of thought?!? ๐Ÿ˜ณ So exciting!! I love every year that I am blessed to be here with ALL of you. I love getting older, it's a privilege denied by many. Aging is a gift that I am so very proud of, I may even be proud of this wrinkle I just found on my forehead. ๐Ÿ˜‰ Each breath I  breathe truly is a gift, better than any gift I can open. Help me celebrate my birthday today by spreading your love to someone who may or may not need it... Make someone's heart smile today! Thank you ALL for being a part of my life and always supporting me and cheering me on. The people in my life are my favorite things...and after that, well nothing else matters. They say "The most important things in life aren't things at all" and I couldn't agree more. Take the time today to count your blessings... I think you will find that your blessings are truly endless, I know mine are. I am truly the luckiest girl I know!! Cheers to 36 in the mix, may it be as amazing as all my other years!! I'm getting so old and I absolutely LOVE it!! Breathe out Love!! Xo❤ 


 

Monday, May 18, 2015

Love To Breathe Pendants

Yay Lissa is at it again... after a well deserved break she is back in the studio. We retired some of the old Love To Breathe® Pendants and are excited to launch some new styles based off my artwork... What better way to promote CF awareness than wearing one of these beautiful pendants next to your heart. 

These pendants are made from precious metal clay, which is organic material infused with pure silver dust. In the kiln the clay burns away leaving 99.9% pure silver behind. 

Check out Lissa's new creations! Her link is on LoveToBreathe.com under the more option. As always, 100% of her profits are donated to the CF Foundation. Thank you so much Lissa!! 
Breathe out Love! Xo❤️

Wednesday, May 6, 2015

Airway Clearance

What is Airway Clearance?! Airway clearance helps loosen the sticky mucus from the lungs so it can be huffed or coughed out. Airway clearance helps CFers stay healthy and breathe easier. Clearing the airways also reduces lung infections and improves lung function, it is typically done after inhaled medications. There are many different forms of airway clearance and because every patient is so different, each technique works differently for everyone. I always do PepMask seen in this photo, combined with "Somergenics" ๐Ÿ˜‰ which is my own technique combining 'Autogenic Drainage' and 'Active Cycle Breathing'. I basically take a variety of breaths at different levels in my lungs that moves the mucus up, so I can easily huff it out. I think everyone should learn how to huff cough it's saved my life many a times. I once choked on a gusher (fruit snack), and had no idea what to do, I kept huff coughing and finally with an extreme amount of force the fruit snack dislodged and flew out of my mouth.... this is just one of the many times CF has been a blessing in disguise. ๐Ÿ˜‰ As a CFer gets older they will be able to tell what form of airway clearance works best for them. As always please feel free to share so we can make more people aware! 

Breathe out Love! Xo❤

Monday, May 4, 2015

I love my Cysters and Fibros

It's a unspeakable bond I can't quite explain. An understanding, and a love that's shared deep within us all. To know each other is a blessing. We are a like in so many ways, yet so different at the same time. Each and every one of us is truly one of a kind, we have one thing that connects us all that puts us in the company of some of the strongest, most amazing people. Our common thread isn't something you want to have, but there isn't a choice and we make the best of it. We surround ourselves with these amazing people and we stick together! The CF community is strong, caring and committed. We fight together for one thing, a CURE...and we will continue to fight until that one day that we can all be together!! I love all my Cysters and Fibros, they mean the world to me. I'm beyond grateful and so lucky to be in the company of these amazing individuals. Please feel free to share or tag someone you love with CF. I whole heartedly believe that together we will find that sought after cure.
Breathe out love! Xo ❤️ 



Friday, May 1, 2015

Cystic Fibrosis Awareness Month

Sometimes we often hear "But you don't look sick"... If only people had X-ray vision. 
May is Cystic Fibrosis awareness month and it just happens to be my Birthday month...coincidence?! I think not!! ๐Ÿ˜‰ So please join me and let's make everyone aware...CF needs a cure!! This is my actual X-ray, I call these my pearly whites. The white is irreversible scarring from the mucus and the many lung infections which result in loss of lung function, my lung function is currently at 27%. 

CF is a genetic disease that primarily affects the lungs and the digestive system. It causes our bodies to produce a thick sticky mucus. The mucus builds up in the lungs and can lead to life threatening lung infections. A CFers day consists of hours of breathing treatments, airway clearance, exercise, and handfuls of pills to try and stay healthy. 
We will continue to do our part, until that one day CF stands for CURE FOUND!! Breathe out love! Xo ❤  


Tuesday, April 28, 2015

Shop til you're out of breath

Utah Peeps... Mark your calendars!! 
May 7th 3-9 pm at Charming Charlie at The District South Jordan. 10% of your entire purchase will go directly to the Cystic Fibrosis Foundation. 
Don't forget Mothers Day is two days away from this event. I'm sure you can find her something real fancy there. 
May is CF Awareness Month... So let's make everyone aware!
Breathe out Love! Xo❤️


Saturday, April 18, 2015

Love to Breathe Tokens

A year ago today I passed out my first Love to Breathe® Token, and they have been circulating ever since. My tokens are in over 23 countries and ALL 50 states... there are about 3,500 in circulation right now. This movement has been so amazing and so rewarding to watch unfold. I am in awe at how far they have spread in just over a year. My goal is that everyone can be touched in some way by these tokens. I created these tokens to spread more love in the world that so desperately needs it, and at the same time raise awareness for Cystic Fibrosis. The stories and the people I have met along this journey have been so rewarding and has filled my heart and soul with so much love. My heart smiles every time I get a email or hear how one of these tokens has made a difference to someone.... I am truly humbled. None of this would of been possible without you guys. 
Thank you from the bottom of my heart to everyone who has helped me spread love all over the world. Keep sharing and spreading the love. Together we can change the world and whatever you choose to do love will follow it through!! 
Breathe out Love! Xo❤️  

Monday, April 13, 2015

Tell your story

Just like the rose that grew from concrete.... "There's always a story. It's all stories, really. The sun coming up every day is a story. Everything's got a story in it. Change the story, change the world."-Terry Pratchett 

Your struggle is part of your story, so embrace it, tell it, and be proud of it. You write your own story, so don't let it knock you down. Get up, be brave, and show the world that you're stronger and more aware because of it. You're one of a kind, celebrate your story! 

Breathe out Love. Xo❤️ 


Friday, March 20, 2015

CFVLC2015

Today I was honored to speak on the Adult Panel at the #CFVLC2015 with Andy Lipman and Kristin Dun! I have thoroughly enjoyed getting to know these two, they inspire me and I know we will forever be bonded for life.

There were a lot of emotions today... It truly is an exciting time in the CF community. To speak to a room full of amazing individuals who all have the same goal as you was truly an honor. It's a unspeakable bond I can't quite explain. An understanding, and a love that's shared deep within us all. To know each other is a blessing. We have one thing that connects us all that puts us in the company of some of the most amazing people. Our common thread isn't something you want to have, but there isn't a choice and we make the best of it. We surround ourselves with these amazing people and we stick together. 

The CF community is strong, caring and committed. We fight together for one thing, a CURE!! We will continue to fight until that day that we can all be together!! 
Breathe out love! Xo ❤️ 

Thursday, February 12, 2015

Love To Breathe Award

It was an honor to present the Love To Breathe Award tonight to Jenn Kinsfather, the adult CF nurse at the University of Utah. I couldn't think of a more deserving, caring person. Jenn is everything this award stands for and more. Jenn is passionate about CF, she's out in the community making a difference and raising awareness, she is loved by so many in the CF community. Jenn ultimately wants CF to stand for CURE FOUND!! She always goes above and beyond for each patient and we are very grateful for that. Jenn has a huge heart and cares about each patient as individuals and a lot of patients myself included consider her not just as our nurse but as a wonderful friend. Her love and compassion for all her patients shows each and every day, not to mention her smile brightens every room she enters. We are very lucky!! Congratulations Jenn and thank you for ALL that you do!! 
Breathe out Love! Xo❤️                                     


Wednesday, January 21, 2015

Love Your Life

I scrolled by a quote yesterday,  I have read it over and over again... For some reason it really resonated with me and at the same time it really rubbed me the wrong way. The quote is...
"You are not obligated to do everything a healthy person does. You are not obligated to be an inspiration. You are not obligated to hide your illness in order to make other people comfortable. You are allowed to know your limits. You are allowed to have bad days. You are allowed to stay in bed if you can't get up to do anything but go to the bathroom. It is not your fault if other people leave you for your illness. It is not your fault you are sick. You don't have to apologize for something that is out of your control."-Unknown                                            

Everything about this quote is true... I have even had some of these thoughts and for a split second I will think about it, but I wouldn't give them any more thought than that. I am sure I will have some of these thoughts in the future, and maybe even one today. I will not hide my illness but I will always tell you I am fine, this is not to make others comfortable but to make myself comfortable.... Why dwell on bad thoughts or negative energy when I can guarantee you it could always be worse. I know I was given this life because I am strong enough to live it. So yes I AM obligated to TRY and do everything a healthy person does. I WANT to be an inspiration. I do know my limits and I FIGHT to surpass them every day. Everyone has limits everyone should try and learn and grow and become stronger from them. Of course I'm allowed to have bad days and believe me I do. In fact everyone is allowed to have bad days, I promise you tho on your worst day there will always, always be good. 
Having a disability doesn't give you a free pass to be mean, lazy, or rude. In fact it should make you more humble, sincere and more compassionate, it gives you a understanding and a drive to BE and to DO and of course LOVE more. I will never apologize for my CF it's made me who I am and for that I am so very grateful. If someone has a issue with your disability it is clearly just that, their issue. 
So today I will BE me and I will DO my very best. I will LOVE more and I will hold my head up high, smile and fight.... I will continue to be strong and I will sing!!! I will sing so loud, and maybe even do a lil dance and you better believe it will be to a Madonna song!!! Breathe out Love! Xo ❤️

Saturday, January 17, 2015

Trust your story

I'm grateful for my struggles, without them I wouldn't have found my strengths... Trust your story! 
Breathe out Love! Xo❤️ 

Thursday, January 1, 2015

Happy New Year


Love To Breathe® has had such an amazing year...I am so excited for what's to come in 2015! 
The goal isn't to live forever, but to create something that will. That is my goal for Love To Breathe®. When I created Love To Breathe back in 2001, I would have never imagined it would have come this far. I'm so happy to announce that my Love to Breathe Tokens are circulating in over 17 countries and ALL 50 states... there are about 2,500 in circulation right now. This movement has been so amazing to watch unfold. I created these tokens in Nov of 2013 so just a lil over a year ago, it's amazing to me to see how far they have spread. None of that would of been possible without you guys!!! Finally, after a lot of paper work and a lengthy process Love To Breathe is a registered Trademark. ® 
I am very passionate about Love To Breathe and its mission to spread Love and CF Awareness. Thank you everyone who has helped make this possible, together we are spreading love in a world that could absolutely use it. I couldn't think of a better way to shed light on Cystic Fibrosis, and raise awareness about this disease that has taken too many, way too soon. I will continue to fight and search for that sought after cure and not just for me, but for all my Cysters and Fibros.
I wasn't kidding...I really do want to change the world and I know I can't do it alone, so thank you ALL from the bottom of my heart for ALL your SUPPORT and LOVE!! Together we can change the world!!! Happy New Year!! 2❤️15!!! 
Breathe out Love! Xo ❤️