Thursday, November 26, 2009

Happy Thanksgiving!!

I just wanted to wish you all a very Happy Thanksgiving! I have SO much to be thankful for... I am so lucky and truly blessed! I have a wonderful family, 2 amazing babies and fabulous friends! Life is GREAT!!! Enjoy your day! Xo

Wednesday, November 25, 2009

30 1/2


Today I am 30 1/2 :)

Have a lil Faith

This dog was born on Christmas Eve in the year 2002. He was born with 2 legs - 
He of course could not walk when he was born. Even his mother did not want him. 

His first owner also did not think that he could survive and he was thinking of 'putting him to sleep'. 
But then, his present owner, Jude Stringfellow, met him and wanted to take care of him. 
She became determined to teach and train this little dog to walk by himself.. 
She named him 'Faith'.

In the beginning, she put Faith on a surfboard to let him feel the movement. 
Later she used peanut butter on a spoon as a lure and reward 
for him for standing up and jumping around. 
Even the other dog at home encouraged him to walk. 
Amazingly, only after 6 months, like a miracle, 
Faith learned to balance on his hind legs and to jump to move forward. 
After further training in the snow, he could now walk like a human being. 

Faith loves to walk around now. 
No matter where he goes, he attracts people to him. 
He is fast becoming famous on the international scene and 
has appeared on various newspapers and TV shows. 
There is now a book entitled 'With a Little Faith' being published about him. 
He was even considered to appear in one of Harry Potter movies. 

His present owner Jude Stringfellew has given up her teaching post and plans to take him around the world 
to preach that even without a perfect body, one can have a perfect soul'. 

In life there are always undesirable things, so in order to feel better 
you just need to look at life from another direction. 
I hope this message will bring fresh new ways of thinking to everyone 
and that everyone will appreciate and be thankful for each beautiful day. 
Faith is the continual demonstration of the strength and wonder of life. 

A small request: All you are asked to do is keep this story circulating.

Saturday, November 21, 2009

Did you hear the news?

Click HERE to read and watch Oscar and Lilly in their TV debut.

This new drug is just one step closer to having CF stand for CURE FOUND!!!!

Wednesday, November 18, 2009

Who Loves to Breathe?

That's right... Custom Love to Breathe necklaces!!!

Click here to order your very own and read about our exciting new ideas!

Monday, November 16, 2009

I'm in todays paper

Drug could stop mucus production in cystic fibrosis sufferers

To read more about this article that is in the Salt Lake Tribune click HERE

Saturday, November 14, 2009

The Wooden Bowl

I was sent this e mail and had to share it.... Have a great weekend everyone! Xo

A frail old man went to live with his son, daughter-in-law, and four-year-old grandson. 
The old man's hands trembled, his eyesight was blurred, and his step faltered 

The family ate together at the table. But the elderly grandfather's shaky hands and 
failing sight made eating difficult. Peas rolled off his spoon onto the floor. 
When he grasped the glass, milk spilled on the tablecloth. 

The son and daughter-in-law became irritated with the mess. 
'We must do something about father,' said the son he had enough of his spilled milk, noisy eating, and food on the floor.' 

So the husband and wife set a small table in the corner. 
There, Grandfather ate alone while the rest of the family enjoyed dinner. 
Since Grandfather had broken a dish or two, his food was served in a wooden bowl. 

When the family glanced in Grandfather's direction, sometimes he had a tear in his eye as he sat alone. 
Still, the only words the couple had for him were sharp admonitions when he dropped a fork or spilled food. 

The four-year-old watched it all in silence..

One evening before supper, the father noticed his son playing with wood scraps on the floor. 
He asked the child sweetly, 'What are you making?' Just as sweetly, the boy responded, 
'Oh, I am making a little bowl for you and Mama to eat your food in when I grow up. 
' The four-year-old smiled and went back to work. 

The words so struck the parents so that they were speechless. Then tears started to stream down their cheeks. Though no word was spoken, both knew what must be done. 

That evening the husband took Grandfather's hand and gently led him back to the family table. 
For the remainder of his days he ate every meal with the family. And for some reason, 
neither husband nor wife seemed to care any longer when a fork was dropped, milk spilled, or the tablecloth soiled. 

On a positive note, I've learned that, no matter what happens, how bad it seems today, life does go on, and it will be better tomorrow.

I've learned that you can tell a lot about a person by the way he/she handles four things: 
a rainy day, the elderly, lost luggage, and tangled Christmas tree lights.

I've learned that making a 'living' is not the same thing as making a 'life..' 

I've learned that life sometimes gives you a second chance.

I've learned that you shouldn't go through life with a catcher's mitt on both hands.You need to be able to throw something back sometimes.

I've learned that if you pursue happiness, it will elude you 
But, if you focus on your family, your friends, the needs of others, 
your work and doing the very best you can, happiness will find you 

I've learned that whenever I decide something with an open heart, I usually make the right decision. 

I've learned that even when I have pains, I don't have to be one.

I've learned that I still have a lot to learn

 angels have walked beside me all my life--and they still do.

Monday, November 9, 2009

It's never Tasted So Good!

WOW!!!!! Drum roll please..... The 11th annual Taste of Salt Lake was a success!!! Thank you so much for everyone's hard work it paid off! We raised around $288,000 gross! SO fabulous!

For those of you that couldn't make the great evening you can watch the Taste video HERE the video was very powerful. It will give you a lil glimpse into the CF life, and show you why we truly celebrate every breath!

at my house let the evening begin!

The Love to Breathe Award giving to the Medical Director of Primary Children's CF center
Dr Barbara Chatfield (I painted this plate )
In front of the fancy ice sculpture
De Masked

Ricki and I with are "No swine in '09" masks
Yes we are still smeyeling under them ;)

Sunday, November 8, 2009


Come and support CF at the 1st Annual Charity Paintball Event on Nov 12th from 7pm – 9:30pm in Midvale. The address is 7050 South 400 West. The cost is $20 per person. Should be lots of fun!!

Wednesday, November 4, 2009

The Amazing Will Harbison

Today has been a rough day this afternoon I learned about Lauren getting her wings yesterday, then tonight T called to tell me my super hero Will got his wings this evening.

My heart is heavy with sadness, Will endured more than anyone could ever imagine but he fought a good fight and never complained. So I titled this post the same as this post here. Harbison family you have my thoughts and prayers. I know Will is breathing Easy and looking down at us with 20/20 vision and a pepsi in hand! I love you Super Hero thanks for teaching us SO much, your courage was amazing!

You can read more on Will and follow his blog here. He had such a passion for so many things but I think his true passion was being an amazing Uncle to Kayli she has such a very special angel watching out for her now! He loved her so much and he lit up when he talked about her.


Breathe Easy Lauren!

Breathe Easy Lauren! I am so blessed to have known you! You were an inspiration and a true Hero to the CF community! My prayers are with Brad and both your families~! Xo

God saw that she was getting tired And a cure was not to be. So he put his arms around her And whispered, “Come with me”. With tear filled eyes we watched her suffer And fade away Although we loved her deeply We could not, make her stay. A golden heart stopped beating, Hard working hands put to rest. God broke our hearts to prove to us He only, takes the best.