Showing posts with label honored. Show all posts
Showing posts with label honored. Show all posts

Friday, May 6, 2016

CF Superhero Saturday

I was so honored to be asked to be a part of a series of interviews Jessica Bean has put together for CF Awareness Month. The series is called CF SuperHero Series. So naturally my alter ego 'SML' Super Mucus Lady was Super excited. 

Jessica lives in Australia so it is already CF Superhero Saturday over there...

Throughout May she will be asking some of the people who inspire her in the CF community seven questions about their experience living with this disease. 

Thank you Jess for choosing me to collaborate with you on this project. You yourself are such an inspiration to me and so many!

Click below for the full interview. 

http://www.jessicabean.com.au/uncategorized/cf-superhero-somer-love/

Breathe out Love! Xo❤️


Friday, March 20, 2015

CFVLC2015

Today I was honored to speak on the Adult Panel at the #CFVLC2015 with Andy Lipman and Kristin Dun! I have thoroughly enjoyed getting to know these two, they inspire me and I know we will forever be bonded for life.

There were a lot of emotions today... It truly is an exciting time in the CF community. To speak to a room full of amazing individuals who all have the same goal as you was truly an honor. It's a unspeakable bond I can't quite explain. An understanding, and a love that's shared deep within us all. To know each other is a blessing. We have one thing that connects us all that puts us in the company of some of the most amazing people. Our common thread isn't something you want to have, but there isn't a choice and we make the best of it. We surround ourselves with these amazing people and we stick together. 

The CF community is strong, caring and committed. We fight together for one thing, a CURE!! We will continue to fight until that day that we can all be together!! 
Breathe out love! Xo ❤️