Be Positive

"There are always flowers for those who want to see them."-Henri Matisse

Every experience we encounter is an experience we can grow and learn from. Its up to you to find the positive and the good from each experience. When we let go of the negative, positive things will start to happen... and I promise you, you will start to see flowers. 

Sometimes taking a step back, and looking at things differently can change your perspective. So when you start to see flowers make sure you take the time to stop and smell them too. Rejoice in the positive and appreciate the true value of every moment... Breathe out Love! Xo❤

We All Have Fears...

"It's better to live one year as a tiger, than 100 years as a sheep"-Madonna  

Its easy to be a sheep when faced with fear. Fear is an unpleasant emotion caused by the belief that someone or something is dangerous, likely to cause pain, or a threat... CF is fear. 

I try to live my life as a tiger. This is not always easy, especially since you never know when CF will strike. Living with fear lurking over you can be daunting at times. However, I try not to let fear decide my fate.... If you can become fearless, your life can be limitless.

We all have fears, our fears help develop our courage... It might not feel like it but our fears make us stronger. The trick is learning how to rise up and be bigger than your fears and show them you are brave and strong. It's important to remember courage doesn't always have to roar. At the end of the day courage can be that quiet voice that says, 'it's ok we can try this again tomorrow.' The important thing is that you keep trying and you never give up. 

You have this one life... so keep living it. Make yourself proud by stepping out of your comfort zone and conquering your fears one day at a time. Breathe deep, and live your life like a tiger! 

Breathe out Love! Xo❤️

You Have To At Least Try

Today marks 11 weeks on the full dose of Orkambi (update coming soon). I was reminded of this post I wrote exactly one year ago today. Re reading this post has even more meaning today as it did one year ago. My thoughts are still very much the same. We are not obligated to do anything we don't want to do, but why would we not try to better ourselves or others around us simply because we can? I'm grateful for my struggles without them I wouldn't have found my strengths... Trust your story. 

Jan. 21 2015

I scrolled by a quote yesterday, I have read it over and over again... For some reason it really resonated with me and at the same time it really rubbed me the wrong way. The quote is... 

"You are not obligated to do everything a healthy person does. You are not obligated to be an inspiration. You are not obligated to hide your illness in order to make other people comfortable. You are allowed to know your limits. You are allowed to have bad days. You are allowed to stay in bed if you can't get up to do anything but go to the bathroom. It is not your fault if other people leave you for your illness. It is not your fault you are sick. You don't have to apologize for something that is out of your control."-Unknown                                            

Everything about this quote is true... I have even had some of these thoughts and for a split second I will think about it, but I wouldn't give them any more thought than that. I am sure I will have some of these thoughts in the future, and maybe even one today. I will not hide my illness but I will always tell you I am fine, this is not to make others comfortable but to make myself comfortable.... Why dwell on bad thoughts or negative energy when I can guarantee you it could always be worse. I know I was given this life because I am strong enough to live it. 

So yes I AM obligated to TRY and do everything a healthy person does. I WANT to be an inspiration. I do know my limits and I FIGHT to surpass them every day. Everyone has limits everyone should try and learn and grow and become stronger from them. Of course I'm allowed to have bad days and believe me I do. In fact everyone is allowed to have bad days, I promise you tho on your worst day there will always, always, be good. 

Having a disability doesn't give you a free pass to be mean, lazy, or rude. In fact it should make you more humble, sincere and more compassionate, it gives you a understanding and a drive to BE and to DO and of course LOVE more. I will never apologize for my CF it's made me who I am and for that I am so very grateful. If someone has a issue with your disability it is clearly just that, their issue. 

So today I will BE me and I will DO my very best. I will LOVE more and I will hold my head up high, smile, and fight.... I will continue to be strong and I will sing!!! I will sing so loud, and maybe even do a lil dance and you better believe it will be to a Madonna song!!! Breathe out Love! Xo

Grateful For This Moment

I saw this quote and I can't stop thinking about it so I wanted to share it with you.... 

"Letting there be room for not knowing is the most important thing of all. When there's a big disappointment, we don't know if that's the end of the story. It may just be the beginning of a great adventure. Life is like that. We don't know anything. We call something bad; we call it good. But really we just don't know."-Pema Chödrön 

I guess we don't really know anything and that's ok. We say things are good and we say things are bad, but do we really know? I guess not, and that actually makes sense. All we can do is be in the moment, and take every moment after that as it comes. So for now, just be grateful for this very moment. 

Breathe out Love! Xo❤️

Be Infinite!

Fear is an unpleasant emotion caused by the belief that someone or something is dangerous, likely to cause pain, or a threat.... CF is fear. Living with fear lurking over you can be daunting at times. Remember to rise up and be stronger than your fears and show them how brave you are, be infinite. Distinguish every fear with your breath. Tell your story, inspire, and be fearless while doing so... You just never know when you can make a difference.

Breathe out Love! Xo

Tell your story

Just like the rose that grew from concrete.... "There's always a story. It's all stories, really. The sun coming up every day is a story. Everything's got a story in it. Change the story, change the world."-Terry Pratchett 

Your struggle is part of your story, so embrace it, tell it, and be proud of it. You write your own story, so don't let it knock you down. Get up, be brave, and show the world that you're stronger and more aware because of it. You're one of a kind, celebrate your story! 

Breathe out Love. Xo❤️ 

Love Your Life

I scrolled by a quote yesterday,  I have read it over and over again... For some reason it really resonated with me and at the same time it really rubbed me the wrong way. The quote is...

"You are not obligated to do everything a healthy person does. You are not obligated to be an inspiration. You are not obligated to hide your illness in order to make other people comfortable. You are allowed to know your limits. You are allowed to have bad days. You are allowed to stay in bed if you can't get up to do anything but go to the bathroom. It is not your fault if other people leave you for your illness. It is not your fault you are sick. You don't have to apologize for something that is out of your control."-Unknown                                            

Everything about this quote is true... I have even had some of these thoughts and for a split second I will think about it, but I wouldn't give them any more thought than that. I am sure I will have some of these thoughts in the future, and maybe even one today. I will not hide my illness but I will always tell you I am fine, this is not to make others comfortable but to make myself comfortable.... Why dwell on bad thoughts or negative energy when I can guarantee you it could always be worse. I know I was given this life because I am strong enough to live it. So yes I AM obligated to TRY and do everything a healthy person does. I WANT to be an inspiration. I do know my limits and I FIGHT to surpass them every day. Everyone has limits everyone should try and learn and grow and become stronger from them. Of course I'm allowed to have bad days and believe me I do. In fact everyone is allowed to have bad days, I promise you tho on your worst day there will always, always be good. 

Having a disability doesn't give you a free pass to be mean, lazy, or rude. In fact it should make you more humble, sincere and more compassionate, it gives you a understanding and a drive to BE and to DO and of course LOVE more. I will never apologize for my CF it's made me who I am and for that I am so very grateful. If someone has a issue with your disability it is clearly just that, their issue. 

So today I will BE me and I will DO my very best. I will LOVE more and I will hold my head up high, smile and fight.... I will continue to be strong and I will sing!!! I will sing so loud, and maybe even do a lil dance and you better believe it will be to a Madonna song!!! Breathe out Love! Xo ❤️