Thursday, July 2, 2015


I have been waiting for a day of this magnitude for quite some time.... I am beyond grateful. Today's news for the CF community brings many emotions but most of all happy tears, I am so happy for all those who will benefit from Orkambi. I am grateful for all involved to help make Orkambi possible including the patients who were in the studies and for the patients who went before the FDA in May to tell their story. We are SO close to that sought after cure, but the reality is we aren't there yet. We need to continue to fight and fight hard! I will not stop until everyone will benefit from a drug of this kind, or even better when headlines read CF stands for CURE FOUND! 
Breathe out Love! Xo❤️ 

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