I created Love To Breathe®️ in 2001 to be a positive voice in the CF community, to help educate and raise awareness about cystic fibrosis, and spread love whenever I can!
This is a beautiful video, Somer... Love the song too... This would be my wish for you as well...
I lived with the promise of a cure "right around the corner" -- if not a cure, a viable treatment... It didn't happen in my "right around the corner"...
Like Will, I've got two beautiful lungs that came to me as an incredible gift... But I know a few things -- some of us won't survive the wait, some of us aren't healthy enough to "qualify" -- and post transplant survival rates, though improving, just aren't long enough... A cure or viable treatment is what's necessary for all of the precious Somers of the world... And the CF Foundation is the key to finding that cure or viable treatment...
And though I've heard it before -- I've never felt as strongly as I do today that there is something around the corner...
You take care, Somer... You keep fighting the good fight... You keep hope alive!!! I did -- and my hopes and prayers were answered in a different, beautiful way...
That video is awesome! I also linked to "breathinsteven"'s site and read his story--pretty amazing stuff! I am so impressed with all you incredible people that make such a difference in the cause you are fighting. You are awesome!
3 comments:
Good Video....
Hey You!!!
This is a beautiful video, Somer... Love the song too... This would be my wish for you as well...
I lived with the promise of a cure "right around the corner" -- if not a cure, a viable treatment... It didn't happen in my "right around the corner"...
Like Will, I've got two beautiful lungs that came to me as an incredible gift... But I know a few things -- some of us won't survive the wait, some of us aren't healthy enough to "qualify" -- and post transplant survival rates, though improving, just aren't long enough... A cure or viable treatment is what's necessary for all of the precious Somers of the world... And the CF Foundation is the key to finding that cure or viable treatment...
And though I've heard it before -- I've never felt as strongly as I do today that there is something around the corner...
You take care, Somer... You keep fighting the good fight... You keep hope alive!!! I did -- and my hopes and prayers were answered in a different, beautiful way...
Love,
Steve
That video is awesome! I also linked to "breathinsteven"'s site and read his story--pretty amazing stuff! I am so impressed with all you incredible people that make such a difference in the cause you are fighting. You are awesome!
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