I have an appt on Aug 18th however with the current events I just wanted to make sure I was doing ok. So I blew 1 point lower then May so I didn't have to be locked up. I will blow again on the 18th and we will go from there. In the mean time I will continue TOBI and then I am due to start back on Aztreonam around the 8th. Aztreonam is that study drug that I started in June. That one that takes only 3 minutes. It is a nice change from The 45 min that TOBI takes.
I created Love To Breathe®️ in 2001 to be a positive voice in the CF community, to help educate and raise awareness about cystic fibrosis, and spread love whenever I can!
Tuesday, July 29, 2008
YAY!! No joint for me.... for now anyways!
Yay!!! I am very HAPPY, I had to blow today (PFT'S) and I was a lil nervous even though I feel so much better then I did last week. Last week I was a lil under the weather and had some Hemoptysis(coughing up blood) My doc thinks it was just going from a very humid climate to a very dry climate. So I upped my Usana and stopped my meds for a bit and then I started them back up and included TOBI which is an inhaled antibiotic and things turned around!
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10 comments:
Somer, I am so glad you didn't have to go into the hospital! I hope you don't have to go in anytime soon. :)
Yay, so glad! See you tomorrow for lunch...I will pick you up around 12:45.
Hi love, I hope you got my message. Haven't been on the computer much since my sis is here but checked on you today and am SO GLAD you are doing better. I am headed down to SANOVIV on Sunday and would love to talk before then since I will be completely unconnected while I am there. Keep up the USANA and lots of rest : ) Love you tons, your cysta shar
So glad that you have avoided the joint this time around! I hope the air quality improves so you can enjoy some time outside! I miss you!!!!
YAYYY! i am so happy that they figured out the coughing up blood thing! That is scary business. Happy also that you dont have to go back in jail for now!!!
I had fun at lunch today!! So great to see my GSB!! And thanks for buying... you are the BEST!
Also, i love your new blog desing. SUper cute. You need to give me some pointers on how i switch-a-roo mine over as well.
Woooo Hooo!!! Glad you are able to avoid the joint! xo
Hooray for avoiding the hospital! Fingers crossed that you can stay out of that horrible place for a while!
Hooray!
You know, it hurts that you try so hard to stay away. I need something more to look at than pics of people's kids on the walls--gets a little old...what's it going to be next time? Circus theme? Pirates? Moulin Rouge? Can't wait! :)
I'm starting that drug too, Aztreonam. What do you think about it? Why do they put you on "home arrest"?? Where are your PFT's if you don't mind me asking?? I went to the clinic today. I can't wait to start that drug. I hope it really helps! :)Take care!
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