EXCITING NEWS

We have some exciting news. We are pleased to tell you that, over the past seven days, Congress and the President took action on four separate bills that champion the rights and health of people with cystic fibrosis.

The Cystic Fibrosis Foundation played a hand in each of the following developments:

• The Senate officially recognized May 2008 as National Cystic Fibrosis Awareness Month.
  


• Congress passed the Genetic Information Nondiscrimination Act (GINA) today.This law makes it illegal for employers and insurance companies to discriminate based on genetic information.
  


• President Bush signed into law the Newborn Screening Saves Lives Act, which provides resources and funding for new and existing newborn screening programs through 2012.
  


• The House of Representatives reauthorized the Small Business Innovation Research (SBIR) program. This program awards grants to small biotechnology companies that conduct important CF research.
  

Each of these initiatives has tremendous potential to help people with CF. These bills help increase awareness of cystic fibrosis, focus research funding on CF, and establish critical legal protections to help people with the disease live longer, healthier lives. 

These successes would not be possible without you. Thank you for your diligence and dedication.

HAPPY NATIONAL NURSES DAY!!!!

I have so many AMAZING nurses in my life! I thank you all so much for all you do and for making a difference everyday!!!!! I appreciate your friendships and can't thank you enough for making 2E my home away from home the best it could be! YOU GUYS TRULY ARE THE BEST!!! THANK YOU FROM THE BOTTOM OF MY HEART!!

Thanks Erin

GREAT STRIDES is the Cystic Fibrosis Foundation's largest and most successful national fund-raising event. 

This year, My cousin Erin is walking in the GREAT STRIDES walk in Minneapolis on May 3, 2008. She has exceeded her goal of $500, this is AMAZING considering 90 cents from every dollar raised goes to funding research for that sought after cure!                                                               

Thank you Erin for all your love & support!!

To visit Erin's walk page click here . 

Yay!!! We did it

May Declared National Cystic Fibrosis Awareness Month

The Cystic Fibrosis Foundation praised the U.S. Senate for officially recognizing May as National Cystic Fibrosis Awareness Month and encouraging public awareness and understanding of CF.

Introduced by Senators Patty Murray (D-Wash.) and Jim Inhofe (R-Okla.), the legislation calls attention to cystic fibrosis, a fatal, genetic disease, and supports research to find a cure.

“We are thrilled to have the Senate’s support for our mission to find a cure for cystic fibrosis. We are making dramatic progress in the development of new therapies for the disease and in extending life expectancy,” said Robert J. Beall, Ph.D., president and CEO of the Foundation. “On behalf of all those affected by CF, we thank Senators Murray and Inhofe for their leadership and commitment to the cystic fibrosis community.”

Thank you everyone who wrote to their members of Congress!! It worked, together we all made a difference!!

May issue of Elle

On news stands NOW!!!!! Tomorrow is the big day Hard Candy, Madonnas new album hits stores! I can't wait.... I pre ordered my copy from I tunes so I think I will be able to get it at Midnight YAY!!! 

Today is suppose to be in the 70s again so I am going riding on the vespa. I did take it out yesterday it was fabulous it was the first time this season I didn't have to wear a coat. I had a sweatshirt on and when I was stopped I was a lil toasty. Once the light went green though the cool breeze was refreshing. Summer is right around the corner :)

Happy Birthday Mom!!!

MOM HAPPY _ _st BIRTHDAY!!! Have fun in Sin city.... Enjoy the sun for the both of us! I love you lots and I hope that you have the best day ever. I hope the next year is your best year yet! Thanks for being so fabulous, I am so lucky to have you as my mom!! XOX

PS Don't celebrate the day with any Irish car bombs ;)

RAIN,SLEET AND SNOW.... O MY!!!

ARE YOU KIDDING ME???

It is April 24th and it is snowing outside... Where is the sun? Of course the only reason it is dumping out there is because I happened to wash my car yesterday. A lot of good that did....

O well one good thing is the air will be clean for the weekend. It is supposed to hit 74 by Monday so keep your fingers crossed, because the vespa is gathering dust and the babies are getting restless and my vitamin D level is at a all time low :)