30 years ago...

My first grade teacher always used the phrase “patience is a virtue” she repeatedly said this to the class as a whole and the individuals who needed a good reminder. Even tho I may have been too young to really grasp the concept it’s something that stuck with me throughout my life. ⁣

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30 years ago cystic fibrosis made headline news when the CF gene was identified by Dr. Lap-Chee Tsui. This was a HUGE discovery and a very pivotal moment in my life. This breakthrough changed genetic research and led to so many new medical advancements across the board. This was the first glimmer of hope for my family that came at a time when we needed it most. This new discovery solidified our fight and fueled our fire to keep moving forward in hopes that a cure would be right around the corner. ⁣

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Fast forward to today... we are still very hopeful, we are still fighting, and we are still moving forward. I often whisper to myself “patience is a virtue” Some days my patience is tested, its not easy being patient, especially when you see first hand what this disease is capable of. I can’t help but yearn for that day we make headline news again but this time the headlines read “CURE FOUND”. 

There are amazing things happening right now because of that breakthrough discovery 30 years ago. Today we are closer to a cure than we ever have been before, and for the first time in a long time I am filled with more hope than ever. That hope is the virtue that will continue to fuel my fight as we patiently wait for that sought after cure. 

Breathe out love! Xo❤️

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We Did it! Thank You!

Thank you so much!!!! We did it!!! 

Because ALL of you are so awesome, and amazing we surpassed my goal of $3838 at 11:30 pm on my birthday. We are now at $4,596 and counting. Woop woop #38Donate The money raised goes directly to the CF Foundation and 90 cents of EVERY dollar raised goes to funding research... which is so amazing and will get us that much closer to a cure. 

Thank you for ALL your love, your support and for just being right behind me every step of the way today and everyday!! My birthday link will be live until the end of May which is CF awareness month.  http://tribute.tributecff.org/somerlove38


Thank you so very much for all your continued support. I appreciate every single one of you, you truly keep me going. I am so very blessed to be a part of ALL of your lives! 
Breathe out Love! Xo❤️

Cure Cystic Fibrosis

Sometimes we often hear "But you don't look sick"... If only people had X-ray vision.... 

What is CF?! Well, CF is a genetic disease that primarily affects the lungs and the digestive system. It causes our bodies to produce a thick sticky mucus. The mucus builds up in the lungs and can lead to life threatening lung infections. 

This is my actual lung X-ray, I call these my pearly whites. The white is irreversible scarring from the thick sticky mucus and the many lung infections I have had. Both the mucus and the lung infections have resulted in loss of lung function over time, my lung function currently hovers around 27-28%. I literally think about every breath I take. 

A CFers day consists of hours of breathing treatments, airway clearance, exercise, and handful of pills, and that is just the regular maintenance for when we are healthy. We work so hard day in and day out. 

CF is inconvenient, CF is exhausting, and CF will never be easy. However, I believe CF has made me stronger, it makes me fight harder, love more, and truly appreciate life one breath at a time... CF is a blessing in an ugly disguise, it's my reality and its made me who I am today, for that I am grateful. 

I will continue to fight and do my part until that one day CF stands for CURE FOUND!!  Breathe out love! Xo ❤