Showing posts with label fev1. Show all posts
Showing posts with label fev1. Show all posts

Friday, February 17, 2017

Surviving Is My Reality



"And so she breathed through her life as if it were a battlefield and wished that one day she would actually live, and not just survive."


This quote is so fitting. CF is my battlefield I will tell you that surviving this battlefield is no easy feat! Today my CF apt was loooonnnggg and a lil bit draining to say the least. My mind is always on overload after appointments like today. I truly am in awe and so very grateful for this body of mine, it seriously amazes me everyday at how hard it works just to survive. 

My lungs are on a slow but steady decline. Seeing loss in lung function and facing the reality of what percentage of lung power I have left can be somewhat discouraging. However, I try not to focus on the numbers too much... it's easier said than done, but the mind can be a powerful healing tool. I have one month to turn these numbers around or I'll be joint bound. Until then I will continue to breathe through my battlefield and do everything in my power to survive because surviving is my reality and I have to be ok with that. 
Breathe out Love! Xo❤

Monday, July 7, 2014

Keep Dancing


Love this quote! 

Life is one giant dance party. Don't worry about what others are thinking. Just keep dancing... Dance so hard the only thing they can think about is how to join in! How great will it be when everyone can hear the music?! 

Today I had a doc apt and blew a 29!! Woop Woop 1 point better than when I left the hospital in March. 

My music is blaring and Im dancing my heart out! 
Breathe out Love! Xo ❤