Monday, June 3, 2013
Thursday, May 16, 2013
Megan Mobley
This month's Hero of Hope Living with CF, Megan Mobley, 25, is an inspirational young woman. Megan is passionate about her involvement in the CF community, raising over $4,000 last year with a new goal of $5,000 for this year. She hopes that the money she raises will help continue research that may one day find a cure. Megan also speaks to parents with newly diagnosed children to talk about her experience and encourage them to stay positive.
"Speaking to parents with newly diagnosed children is really important to me and something I love to do. I'm very positive with the parents I talk to. I tell them how active I am and how I'm still able to do the things I love to do. I also encourage them to think about CF care 20 years ago compared to now. We have come so far, and the landscape is only going to get better."
Learn more about Megan
Visit http://www.heroesofhope.com to access Megan's personal Heroes of Hope webpage.
To nominate your Hero
Visit http://www.heroesofhope.com/nominate
Wednesday, May 1, 2013
May is CF Awareness Month
Never take a simple breath for granted!
Cystic Fibrosis affects about 30,000 in the US and about 70,000 world wide. It is a genetic disease affecting the lungs and the digestive system. It creates a thick sticky mucus which builds up in our bodies. The sticky mucus causes lung infections and eventually causes decreased lung capacity. The average life expectancy is about 37 now, thanks to all the medical advancements made available to us by the CF Foundation. There still is no cure! We are closer now than ever, so we need to keep the momentum up and fundraise like crazy!! Great things are happening!!
If you want to know more visit www.cff.org
Cystic Fibrosis affects about 30,000 in the US and about 70,000 world wide. It is a genetic disease affecting the lungs and the digestive system. It creates a thick sticky mucus which builds up in our bodies. The sticky mucus causes lung infections and eventually causes decreased lung capacity. The average life expectancy is about 37 now, thanks to all the medical advancements made available to us by the CF Foundation. There still is no cure! We are closer now than ever, so we need to keep the momentum up and fundraise like crazy!! Great things are happening!!
If you want to know more visit www.cff.org
Monday, April 29, 2013
Friday, April 26, 2013
WWTD
What Would Tiffany Do?
Buy everyone coffee!! Her favorite, Starbucks of course! So if you find yourself at a Starbucks today buy a stranger their coffee in her honor!
Can't believe it's been two years! I miss her!
Headed to Starbucks....
Buy everyone coffee!! Her favorite, Starbucks of course! So if you find yourself at a Starbucks today buy a stranger their coffee in her honor!
Can't believe it's been two years! I miss her!
Headed to Starbucks....
Thursday, April 25, 2013
Emily to Ellen 2013
May is Cystic Fibrosis Awareness month!! Get ready, great things are happening!
My friend Emily Schaller is campaigning to get on the Ellen show to help raise CF awareness... Lets help make that happen! #emilytoellen2013
My friend Emily Schaller is campaigning to get on the Ellen show to help raise CF awareness... Lets help make that happen! #emilytoellen2013
Wednesday, April 24, 2013
Muck Busters!
Check out Genentech’s new Muck Busters iPhone game at ow.ly/jG5ss its a great tool for CFers to learn more about the disease and encourage adherence in a fun, interactive way!
Users navigate a colorful world battling stubborn enemies including bacteria, white blood cells, and mucus, and overcome obstacles, like blocked airways, with help from fun characters representing Pulmozyme, bronchodilators, hydrators, and antibiotics. Best of all, there is a component that allows users to create a profile which offers tools to help users keep track of their CF treatments.
Go check it out. I just downloaded it to my phone. Ill prob check it out during my afternoon treatment.
Users navigate a colorful world battling stubborn enemies including bacteria, white blood cells, and mucus, and overcome obstacles, like blocked airways, with help from fun characters representing Pulmozyme, bronchodilators, hydrators, and antibiotics. Best of all, there is a component that allows users to create a profile which offers tools to help users keep track of their CF treatments.
Go check it out. I just downloaded it to my phone. Ill prob check it out during my afternoon treatment.
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