Friday, May 1, 2009

May is

Officially Cystic Fibrosis Awareness month and we all know we have some awareness to spread. The need for a cure is greater than ever! So keep on keeping on so we can all make CF stand for CURE FOUND!!!

I like to read memoirs about the inspiring stories of people with CF. I was recently asked to read 

SIXTY FIVE ROSES: A sister's Memoir By Heather Summerhayes

I was excited to read it, Pam was diagnosed back in 1958 when she was 4 years old and back then really there was no treatment for children with CF. They weren't expected to live much into their child hood. So during those times the diagnosis was a bit depressing. However, Pam defied the limits and lived life to the fullest and taught her older sister Heather how to live.

I thought it was very interesting to see how far we have come from 1958 to 2009. Just think we now have 30+ drugs in the pipeline, these drugs will allow patients to hopefully live well beyond the 37 year old life expectancy. There is so much more hope now then there was in 1958.
I also thought it was very interesting to hear the perspective of a healthy sibling living with a CFer. It made me reflect a lil bit on what my bros maybe had to deal with and still do to this day.

 Click here to read more about the author and this book. A portion of the proceeds from this book are going to the Canadian Cystic Fibrosis Foundation. Celine wrote the forward and Eva Longoria has purchased the film rights. Have any of you read this book? I would love to know what you thought.


♥Lisa and The Pug Posse ♥ said...

and it just so happends your Birthday is in MAY! woop woop!

Mistie said...

Wow! Sounds like a great story... i'll have to read it sometime. Also, how great that CF awareness month is MAY..the most important month of the year!!!! I dont think that is so much a coincidence.