Airway Clearance

What is Airway Clearance?! 

Airway clearance helps loosen the sticky mucus from the lungs so it can be huffed or coughed out. Airway clearance helps Cfers stay healthy and breathe easier. Clearing the airways also reduces lung infections and improves lung function, It is typically done after inhaled medications. There are many different forms of airway clearance and they work differently for everyone. 

I always do PepMask seen in the photo, combined with"Somergenics" which is my own version of a combo between autogenic drainage and active cycle. Which is basically a breathing technique with different levels of breathing that moves the mucus up, so I can huff it out. As the CFer gets older they will be able to tell what works for them and what doesn't. 

Breathe out Love! Xo ❤ 

SML is Super Mucus Lady

After 4 years in the making SML is Super Mucus Lady!! ❤ 

Super powers are... Spreading love and fighting evil with Mucus!! 

We all have a inner super hero, look within yourself and you will find your strengths. How you see yourself is what matters at the end of the day. So be strong! Be kind! Love more! and fight all evil with your super powers. 

Breathe out Love! Xo❤ 

May is CF awareness month

"Alone we can do so little; together we can do so much." -Helen Keller

These words were on the wall at my clinic visit yesterday, such a great quote. It's so true, as much as I'd love to change the world I can only do so little. However if we all worked together and loved a Lil more and were kinder than necessary, we could do so much! We can make it happen!! 

Just like Id love to find a cure for CF, well I can only do so little. I need your help! I know that together we can make great things happen. 

May is CF awareness month so please help me make people aware.... we need a cure!! 

So tell your friends that CF needs a cure and together we can change the world!! Breathe out love! Xo 

Love to Breathe Tokens

They are here!! Finally! So excited!! My Love to Breathe tokens. My next project in my Love Movement .... I hope they will help with my goal to change the world! I want to make everyone breathe out love! So Keep It, Pass It, or Hold It Close. I can't wait to see what people will choose to do. So excited!! You just never know where one will show up. Breathe out love!! Xo ❤ 

Deep breath!

Breathe deep when you can fresh air is priceless, so is that deep breath. 

This X-ray was taken last June, there's still some room left in there. I call these my pearly whites, the white is irreversible scarring from the mucus and the many lung infections which result in loss of lung function. 

"Some days it's ok if all you did was Breathe." 

Breathe it all in, Love it all out! 

Have a beautiful day!! 

Xo 

FTTT

FTTT with this Lil guy this morning. He's doing his vest like a champ. I love to FTTT (FaceTime/treatmenttime) with these Lil kiddos. I love the look in their eyes when they see someone doing else doing a treatment. We are in this fight together, until there's a cure. Breathe out Love! Xo

Get back up

Get back up and keep trying! It'll be frustrating but keep in mind your goals and stay focused. Your struggles make you stronger, and you're strong. So don't give up just keep on keeping on. You got this! 

Breathe out Love! 

Xo ❤ 

Laugh as much as you breathe

Smiling turns into laughter and laughter equals pure happiness! When I hear laughter it makes my heart smile. It means that people are happy. They are not wanting or needing anything more than that very moment. Which is how life should be lived... In the moment. So smile and laugh and be happy, because this very moment is yours to cherish. Breathe out love! 

Xo ❤ 

Love is the best medicine

Your struggle is part of your story, so tell it, be proud of it. Don't let it knock you down. Get up, be brave and show that you're stronger and more aware because of it. 

Keep your eyes and heart open and you will always see love, which to me is the best kind of medicine. Breathe out Love to everyone you see today! Xo❤ 

Take 5

Your breath is a gift. Take 5 min today and really take the time to breathe it all in. Put down your phone, and be in the moment...Breathe it all in, and love it all out! Xo ❤ 

Love, Loyalty,& Kindness

When you love what you have, you have everything you need. 

We can learn a lot from our pets. Love, Loyalty and Kindness make the world go round! So be kind, be loyal and love with all your heart. You may just become the person your pet already thinks you are. Breathe out Love! Xo ❤ 

Headed in the right direction

One week ago today I woke up and was having a hard time getting a deep enough breath, I couldn't breathe. I blew a 18 my lowest ever. Which means I had only 18% of my lungs working for me   I am so grateful for the love, the positive thoughts, the prayers, texts, posts, visits, calls. Today we did it... I blew a 28!! I am so happy and so very thankful!! Another week in here and we are bound to get a 32!! Think BIG and Breathe out Love!! Xo ❤

The Joint

The first time I was in the joint... 

I think I was as scared then as I was on Wednesday. After more admissions than I can count, hearing you will have to be admitted never gets easier.  Not sure if its the realization that I actually am sick and coming to terms with that, or the fact that I have to take a two week time out to focus on something that you never really want to completely focus on. Its frustrating after countless hours and all my energy and efforts it still wasn't enough to have CF not rear its ugly head. CF is inconvenient, CF is not easy, CF is exhausting. However, CF has made me strong and has made me appreciate the Lil things in life. CF makes me Fight harder, Love more and truly appreciate life one breath at a time... A blessing in an ugly disguise. CF is my reality and its made me who I am today, for that I am grateful. So throw these sucker punches my way CF you don't stand a chance. You can strike when you want but you have me and my amazing support system to kick your ass... And don't worry, we will kick your ass!! You picked the wrong girl!! 

Love Life

The trick is to keep breathing and give it all you got!! Each breath is a gift! Go out today and love life and it will love you right back!! Xo ❤ 

Love to Breathe

A fun impromptu photo shoot. Props to my Dad who took the photos. For as windy as it was we got some pretty good shots...

Happy Love day!!

Love is ALL around us today!! 

You just never know where you'll see it... Keep your eyes and heart open and you will always see love! Xo

WWSD

The Love movement is starting... 

Trying to spread love worldwide!! With these Love to Breathe bracelets. 

What is WWSD well it stands for 

What Would Somer Do ;) 

So the question is WWSD? 

Well she would try to change the world...one wrist at a time! By spreading love and kindness, and just by trying to make the world a better place! 

Join the movement!! Xo