She Did It!!!

Click here https://www.facebook.com/video.php?v=963898933638321

That is the link to my FB page. I posted the whole video of Drae doing her very first sinus rinse there. Hooray!!! She did it!! I'm so proud of her... we attempted her very first sinus rinse and she conquered it like a rock star!! There were some tears at first and she was unsure but she wanted to do it so bad. She was a lil nervous it would hurt her owie that she got the day before on the playground. But it didn't and after the first couple of tries she was doing it ALL by herself and she was so proud of herself, she was even a lil sad when the sinus rinse was all gone. I think my favorite part is when she tells Suz "see I told you mom" of course and her wanting to do it together! I just adore her, she melts my heart. 

She has the best Lil Giggle

They say laughter is the best medicine and so thats exactly what we did!! Lots of giggling going on tonight with this adorable CF Princess Warrior. 

This Lil princess made my night...it was so great to finally meet her and chat via FT.  Who knew we were "twinkies" I adore her and I adore her real Twinkie and of course her Momma too! 

Sending lots of love your way my Lil Twinkie and to you too Katie. I hope you get to bust outta the joint soon and get to have a good night sleep in your own high bed. 

Breathe out Love! Xo ❤ 

FTTT

FTTT with this Lil guy this morning. He's doing his vest like a champ. I love to FTTT (FaceTime/treatmenttime) with these Lil kiddos. I love the look in their eyes when they see someone doing else doing a treatment. We are in this fight together, until there's a cure. Breathe out Love! Xo

FTTT

Face Time/Treatment Time

So I've wanted to start this mentoring program for quite some time. I finally implemented it the other night with Drae. I'm not sure who had more fun, Drae or I. 

She is so cute, she was doing everything I was doing. She would take big breaths when I told her to, she would cough when I coughed, she even spit in a cup when I did. 

I think it's so great for the littles to see someone else doing a treatment too. They don't have a chance to see that, so I think FTTT is going to be a great chance for them not to feel so isolated. 

If I can help them take bigger breaths or spit out mucus, well then to me it will be a successful day! 

Drae says we are BFFs and she thinks its pretty cool that I have Cystic Fibrosis too.