what does it mean...

Ok I am on a roll :)

Day 2 of the blogging challenge is

What is the meaning behind your blog name?

Well it stems from my paintings specifically my one hearted paintings. They are titled "Love to Breathe" and well I love to breathe and being that Love is my last name well I incorporate it into my daily life in so many ways.

Then in 2007 my brother Shane helped me take it further by starting my Love to Breathe website. Its a place where I can share my story and help raise money for the CFF and help find that sought after cure, and to most importantly give hope to CF families.

If I can make a difference in one person's life... well then that makes me smile from ear to ear. Making a difference is what really makes me happy! I know it sounds cheesy but it's the truth.

jumping in on the band wagon

The 30 day challenge band wagon that is.... I first saw this on my DIK's blog she got sick of doing it and combined  the last 6 days, but hey she finished it... I assume I will also get bored of it, but hey its a challenge and I am up for a lil bloggy challenge considering my recent hiatus and all. And the great thing about this challenge well you can interpret it any way you want. I have seen a lot of my friends stepping up to this or a similar 30 day challenge with photos, I love reading their entries. So here is the challenge and I encourage anyone else who wants to partake.... don't be scared ;)

Day 1-Introduce, recent picture, 15 interesting facts
Day 2-Meaning behind your blog name
Day 3-Your first love
Day 4-Your parents
Day 5-Your siblings
Day 6-A picture of something that makes you happy
Day 7-Favorite movies
Day 8-A place you've traveled to
Day 9-A picture of your friends
Day 10-Something you're afraid of
Day 11-Favorite TV shows
Day 12-What you believe
Day 13-Goals
Day 14-A picture you love
Day 15-Bible verse
Day 16-Dream house
Day 17-Something you're looking forward to
Day 18-Something you regret
Day 19-Something you miss
Day 20-Nicknames
Day 21-Picture of yourself
Day 22-Favorite city
Day 23-Favorite vacation
Day 24-Something you've learned
Day 25-Put your iPod on shuffle, first 10 songs
Day 26-Picture of your family
Day 27-Pets
Day 28-Something that stresses you out
Day 29-3 Wishes
Day 30-a picture 

Day 1

INTRODUCE.... well I have introduced to you the challenge. Remember you can interpret it anyway you want ;) 

A Recent Picture...

Me just doing my meds, playing words with friends, and my babies standing guard.

And last but not least 15 interesting facts... (well not sure how interesting they are but they are recent facts)

1. My newest obsession is Words with Friends... Let's play!! My username is L2B

2. In June I cut out a lot of dairy from my diet I started drinking Almond milk and when I go to Starbucks I drink soy.

3. I have been a piscatorian since July but only eat fish on occasion the rest is lots of veggies and fruit. My dinner last night was a giant artichoke complete with yummy sauces and a giant juicy grapefruit. Yumm!

4. I stopped drinking coffee Oct 25 cause it was making me nauseous when I was on some oral abx and haven't got back on it yet. I just drink teas and chais

5. March is Lilly's Bday month I can't believe she is going to be 6

6. I am terrified of bees and spiders... really I even start shaking.

7. One of my favorite things to do is give gifts.

8. I went and saw Never Say Never last Fri night in 3D. I now have the Beiber Fever. Its such a great show I wasn't to sure but I love a good documentary and it was actually VERY good.

9. 15 facts is harder than you would think

10. Makena is the BIG one hand now if you haven't visited my blog lately. You will have to watch the video in the previous post

11. I gargle with salt water and do a sinus rinse (a bottle a nostril) every night before I go to bed. I strongly recommend  this I believe actually I know it frees your body of germs.

12. I also am suffering from Spring Fever!! I am in need of some type of beach get away!

13. I don't like chocolate but I am a sucker for candy... Just finished a whole bag of speckled jelly beans.

14. St patricks day is my 2nd fav holiday can't wait only 16 more days.

15. Well if St Patricks day is 2nd fav holiday, the suspense of what my number one holiday is probably getting the best of you so.... My first fav holiday is my Birthday of course :)

1. 2. 3 Pierce

Well she did it and was pretty darn brave. She had a bit of a delayed reaction...

The Before shot

The After Shot

Later that night she was all SMILES!!!

Our new matching pug shirts

The BIG One Hand!!

My McNoodle is 5 today!!! Where did the time go.... Seems like yesterday she was just barely crawling.

I am so proud to be her Aunt. She is such a lil princess. We had a sleepover last weekend and had the best time. I love that her favorite dog in the world is a pug and she just loves the babies so much and they absolutely adore her. They are so pooped when she leaves they don't really sleep thru the night when she stays over because they are always checking on her. I don't really sleep thru the night either with kicky kickerson sleeping next to me ;)

I also love the Makena loves hearts and she loves her nick name that I gave her McNoodle. She is quite the ham when ever her picture is being taken and has a variety of poses that she loves to do. We love doing arts and crafts and playing vet and I love when we play beauty parlor :) Two peas in a pod I tell ya!

Today she is getting her ears pierced and then we are having a family bday party for her. I can't wait to give her her gifts. Ill take a pictures for sure, we are going to be pretty cute in our new matching pug shirts :)

VERY good news....

This morning, the CFF announced very exciting results from the clinical study of a new treatment for cystic fibrosis.  The oral drug, known as VX-770, targets the defective protein that causes CF.

A Phase 3 trial evaluated patients who carry at least one copy of a CF mutation called G551D.

Patients who took the drug showed marked improvements in a number of key measures of the disease, including improved lung function, fewer pulmonary exacerbations, patient-reported reductions in respiratory symptoms and weight gain.

In addition, average sweat chloride levels of patients on VX-770 dropped toward normal -- indicating the drug is impacting the underlying defect in CF.

VX-770 is being developed by Vertex Pharmaceuticals, and was discovered in collaboration with the CF Foundation. 

To read more about VX-770 click here

Kathleen Burke

Heroes of Hope Panel member and cystic fibrosis (CF) advocate Isabel Stenzel Byrnes sat down with our newest Hero with CF, Kathleen Burke, 20, to listen to her story and hear how she has been successful in balancing schoolwork as a junior at Drew University, volunteering, her theater classes and taking care of herself. Kathleen is being recognized for her attitude and many theater accomplishments, including winning the Young Rep Outstanding Senior Award in 2008 and the 2010 Robert Oxnam President’s Playwriting Award.

Isa: I’m so excited to talk to you and learn about your amazing, full life. Can you describe for me a typical day for you in college?

Kathleen: I am theater major in college, and so I go to rehearsal daily, and I spend time writing plays. I’m in a show right now so pretty much my schedule is like one long “to do” list: do treatment, go to class, go to rehearsal, do treatment, do homework, eat, go to class, go to rehearsal, do treatment, go to bed. Our rehearsals are 4 hours a night everyday through Tuesday-Friday and 6 hours on Saturday and Sunday. That’s all I have time for, but I’m really enjoying being so busy.

To read more of this fabulous interview click HERE

To nominate your hero click HERE

Im Baaaack!

Ok so if anyone is still out there... Thanks for being patient with me.

I needed a tiny break from cyber world, not just my blog but Face book too.

Logging in blogging it was beginning to become a chore rather then a fun outlet for me so I thought it was time to take a much needed break. I am excited to catch back up on all your blogs and see what has been going on. I have been a lil out of the loop. My goal is to at least post once a week if not more so be checking back.

So far 11 is going great for me. I have been staying busy and knock on wood staying healthy, even tho it seems like everyone around me has been hit by the plague. If you were to only see my hands you would think they were the hands of a 90 year old. Dry, wrinkly but VERY clean ;)

Have a great weekend everyone!
Xo
Somer