We need a cure

May is CF awareness month!! 

We are closer than ever to finding that sought after cure. 

Visit www.CFF.org to see how you can help add tomorrows to the lives of over 30,000 children and young adults like myself that have CF. 

We will do great things with those tomorrows, but we just need the chance. I promise you, we won't let you down! 

Together we can change the world. Breathe out Love! Xo ❤ 

Airway Clearance

What is Airway Clearance?! 

Airway clearance helps loosen the sticky mucus from the lungs so it can be huffed or coughed out. Airway clearance helps Cfers stay healthy and breathe easier. Clearing the airways also reduces lung infections and improves lung function, It is typically done after inhaled medications. There are many different forms of airway clearance and they work differently for everyone. 

I always do PepMask seen in the photo, combined with"Somergenics" which is my own version of a combo between autogenic drainage and active cycle. Which is basically a breathing technique with different levels of breathing that moves the mucus up, so I can huff it out. As the CFer gets older they will be able to tell what works for them and what doesn't. 

Breathe out Love! Xo ❤ 

Friends 4 life

College Roomies for a year....Friends for life!! ❤ 

Always surround yourself with amazing people! 17 years ago we were put together by chance, today we are together by choice. Love these girls! Xo 

CF Awareness Month

My "Operation Ditch the Leash" painting.   

May is Cystic Fibrosis awareness month and it just happens to be my Birthday month...coincidence?! I think not!! 

So please join me and let's make everyone aware...CF needs a cure!! CF is a genetic disease that primarily affects the lungs and the digestive system. It causes your body to produce a thick sticky mucus. The mucus builds up in the lungs and can lead to life threatening lung infections. Notice the mucus in my painting. 

A CFers day consists of hours of breathing treatments, airway clearance, exercise, and handfuls of pills to try and stay healthy. We will continue to do our part until that day when CF stands for CURE FOUND!! Breathe out love! Xo

AbbVie CF Scholarhip

AbbVie announced that undergraduate and graduate students living with cystic fibrosis (CF) can now apply for the 2014 AbbVie CF Scholarship, which honors young adults with CF as they pursue higher education. Students can apply for the scholarship from now until Monday, June 9, at www.AbbVieCFScholarship.com.

 

The AbbVie CF Scholarship acknowledges students with CF who demonstrate creativity, academic excellence, community involvement and the ability to serve as a positive role model for the CF community. In honor of the 22nd year of the program, 40 AbbVie CF Scholarship recipients will have the opportunity to compete for public votes to win a Thriving Student Scholarship (based on level of study) for a total award of $22,000.

 

"AbbVie is honored to continue the legacy of recognizing the accomplishments of exceptional students living with CF," said Jim Hynd, vice president, Endocrinology; Metabolic; GI Care and Institutional Accounts, AbbVie. "The scholars serve as ambassadors for the CF community, inspiring others to achieve their individual personal and academic goals."

 

So if you're a CF student go check this out and apply. What an incredible opportunity. 

Always in my heart

 I'm constantly reminded of her and for that I'm grateful. Her memory will forever live on in so many of us. 

I can't believe its been 3 years of living with her in my heart, so crazy... seems like forever some days and then some days it seems like just yesterday. I miss her laugh, her ability to make anyone smile, our chats, our coffee dates.... I miss her. 

So today Ill buy some stranger their coffee in her honor, and Ill get through the day knowing that she's closer than we think.❤ 

Love ya Tiffers!! Xo infinity! 

SML is Super Mucus Lady

After 4 years in the making SML is Super Mucus Lady!! ❤ 

Super powers are... Spreading love and fighting evil with Mucus!! 

We all have a inner super hero, look within yourself and you will find your strengths. How you see yourself is what matters at the end of the day. So be strong! Be kind! Love more! and fight all evil with your super powers. 

Breathe out Love! Xo❤