Favorite Dress... Pug O war and a lil in between

This weekend lots of time outdoors and lots of ball was played. Its 75 today and beautiful... For those of you that really know me I am wearing "THE DRESS" today first day of the season :) Ill fill you all in...

You know that one article of clothing that you can't wear enough... Well I have this dress you all have seen me in it it's the one I am wearing in both pics on this blog with my babies the header and the one wear they are dressed up. Yep the turquoise one... I ABSOLUTELY LOVE it!!! It even made it's debut when I was in the TOBI calendar. It fits great is SO comfy and no bra needed. I bought it in NY at H&M 4 years ago and I haven't been able to find anything like it since, that is why it seems to gets cycled in at least once a week in the spring/summer. We all started calling it "The Dress" So just know that I am So comfortable today ;) My mom always is on the look out for something comparable (I think she gets sick of seeing me in it). But honestly nothing comes close. Patty and Kathy I am going to see if your mom can duplicate it for me in other colors when she gets here. I have heard she is Very talented. Then I can wear it EVERYDAY!!!! :)

I also have a Jimmy Buffet T shirt that I seem to wear a ton too... Only in private tho its one of my pj tees. It has holes and I wore it while painting once. oops I am not a neat painter. It started out being a bright yellow it is now a light yellow peach....

I rode my Vespa ALL over this weekend too... Loving this Spring weather. My house is getting hot I refuse to turn the air on tho and I cant open windows because we have these beautiful but VERY STINKY trees that line my street I will have to take a pic. But they are in FULL bloom and In FULL stink!

Video of the babies playing Pug O War I never get tired of watching them do this...

Makena has taken after me in the grab bag closet wardrobe approach to dressing ;) She thought my Vespa was pretty cool!

I'm in todays paper

Drug could stop mucus production in cystic fibrosis sufferers

To read more about this article that is in the Salt Lake Tribune click HERE

KREATIV

I received this award from FRAU she is a really good friend who moved to Germanya lil over a year ago. Her blog cracks me up with all her German shenanigans. She has a great outlook on her new adventure and grows from every opportunity. She has a great fam and a cute baby pup named Sophie, not to mention she's within walking distance of Kinder eggs ;)

Here are the rules for the award:

1. Thank the person who nominated you for this award.


2. Copy the logo and place it on your blog.


3. Link to the person who nominated you for this award.


4. Name 7 things about yourself that people might find interesting.

5. Nominate 7 Kreativ Bloggers.

6. Post links to the 7 blogs you nominate.


7. Leave a comment on each of the blogs letting them know they have been nominated.

Hmmm, 7 Interesting things about me that you don't already know....

~I love candy!!! But I hate Chocolate! Some of my favorites are Swedish fish, sour patch kids, Red Vines, Mambas, Now & Laters, Starburst. I could keep going mmmm

~I have a butterfly tattoo on my R ankle. I got it when I was 17 with my mom for my Grams. I want another one real bad ASAP!

~I have been to Euro Disney. My favorite thing was the Alice in Wonderland maze.

~I was a cheerleader my Senior year in high school

~I got to go to Madonnas friends and family concert in LA 2006

~I use to Dive when I was lil and I can still do an inward off the low and high dive

~I failed my driving test the first time I took it, but passed the written. For my Motor cycle license I failed the written but passed the driving with a 100!

Ok I Nominate...

~Ronnie

~Piper

~Sharlie

~65 Roses for Marcia

~Will and Will's fam

~Aspiemom

~Niki36

New Cystas and Fibros

Well I know I have some new Cystas and Fibros following my blog since I last posted my CF about me so I thought I would re post it. If you haven't done one of these or if you don't have a blog I encourage you to do both. I have found some amazing friendships thru this blog and am so very blessed to have such a great support system that I haven't met. Xo

~I was diagnosed with CF when I was 11 months old on a hunch. My mom read a newspaper article that said “kiss your baby disease” If your child tastes salty get them in for a sweat test to see if they have CF. So she licked my bro and I and I guess I tasted salty. She called my pediatrician and told him she wanted me to come in for a sweat test. He assured her I didn’t have it, I was a very chunky baby and there is no CF in my family history. But she insisted and so he did it and called her the next day crying. The docs told my parents I wouldn’t live to be 10 and from that moment on my two fabulous parents chose to fight my disease and when I was old enough I joined the fight. Look at those cheeks :)

~My parents started the CF Chapter here in SLC after my diagnosis and I was a poster child for many years and attended many functions in the community to help raise money for a Cure. You can read more of my story and see photos of these events at www.lovetobreathe.com a web site that my bro put together for me.

~ I was first hospitalized when I was 7 and I didn’t start enzymes until then either. This is a pic of me in the joint for the first time

~ My lil bro was adopted. My parents always wanted 3 kids but they didn’t want to chance having another Cfer. The pic below is the day we got Shelby

~I went to CF camp when I was younger for only 2 or 3 years my mom didn’t think it was very sanitary (smart lady) However I met some amazing people and we have lasting friendships.

~After my first hospital stay I began to do Ivs at home once a year until I was 10 then I started going into the hospital for a yearly tune up. I would usually go in around Christmas break so I wouldn’t miss much of school since not everyone knew I had CF growing up. When I graduated high school I started to talk more openly about CF. When I was growing up I just didn’t want people being sympathetic and never wanted to be the “sick girl” To this day when someone gives me The head tilt, you know the one it is just a lil irritating.

~I danced growing up and was in a performing company we traveled many places to perform including Japan. I did ballet, tap, jazz, hip hop, and modern. I stopped dancing with my dance company my senior year in high school so I could be a cheerleader.

~I went to private school all my life so when I went to college for my first year it was hard to be a # rather than Somer. The college was 2 hours away from my home. I moved back after the first year and continued my career at Nordstrom and worked my way to management. I managed Kids shoes, Jewelry and Savvy.

~ Went to Primary Childrens Hospital until I was 22 I was the oldest patient then I finally transitioned to the University of Utah the Adult CF Center.

~Every time I go into the joint My mom chooses a theme and gets decorations and my parents decorate my room for me. It’s a different theme every time. Unless I am in around a holiday it is decorated from floor to ceiling you can see some pics on my website. The two below were from last March. I took my tap shoes to the joint, they made pulmonary rehab more fun :)

~I had a hard time with piccs year after year and finally after forming blood clots in my arms and being on coumadin on 2 different occasions. I got my “Thipple” in 2005. Many of you may know that as a port but I call it my “Thipple” for third nipple. I SO wish I would of gotten it sooner but it seemed so permanent. I flush it once a month and don't mind it at all. When I first got it I was a lil self cautious about it. I have had many people say some interesting things about it. Once when I first got it I was in Vegas with some girlfriends and I wore a low shirt so it was clearly showing it was my first time with a thipplicious shirt on and my friends assured me you could hardly see it. So we went downstairs and I noticed we forgot the camera so I opted to go get it and I was in the elevator with 4 guys all of a sudden I hear a guy scream "OMG what the hell is that" I was mortified right when I was about to answer the doors opened to my floor so I replied back "thats what happens when you go to a third world country and get a boob job" and I kept walking I didn't even look back. I told my friends they were liars :)

~I went to a chiropractor in 2005 and they found a kidney stone the size of a large gumball by accident. I had to have surgery to remove some of it and break the rest up so I could pass it thru a stent I never felt a thing not even passing the rest of the stones.

~I stopped working at Nordstrom in Dec of 2005 after continuing to get really sick. I was admitted when my FEV1 hit 22.

~ I am very involved in the CF community and try to raise awareness whenever I can. I sit on the Heroes of Hope Panel a fabulous program by Genentech (makers of Pulmozyme) I sit on the board of directors with my local chapter and I send my paintings to different fundraisers around the US. I was in the TOBI calendar for 2008 and helped the Boomer Esiason Foundation out with a campaign with Jiffy Lube last year.

~When my bro got prego with Makena Tammy had to be tested to see if she was a carrier and she was not. However my bros blood test came back showing 2 negative genes (which would mean you have CF) So they actually wanted him to go up to Primarys and get another sweat test it came back negative so it turns out one of his negative genes is mutated so with that mutated gene it makes him only a only a carrier. So my doc thinks I may have 3 or more CF genes. Which is very rare! The pic below is Shane getting his sweat test a lil over 3 years ago

~ 2006 I was in the joint 5 times 2007 6 times and 2008 twice all for 2-3 weeks at a time. I am happy to report the last time I was admitted was March 3 2008 almost one year ago. I am not sure I remember the last time I was out for a whole year. In April 08 I started back up on USANA and also got on the aztreonam early access study.

~ The meds I am on are albuterol (3 times a day) ,pulmozyme (twice a day),Tobi, (every other month)Aztreonam (on my off tobi months), Pulmicor 1mg (In the am)advair (twice a day),pancrease MT 16 4-5 with meals 0-3 depending on the snack azythromiacin (daily) Nexium (in the am) AllegraD (in the am) Vitamin C 500mg (3 times a day) USANA(proflavonal 90, hepasil, coquene 30, Essentials) am and pm) nasalcort (twice a day) During flu and cold season I drink 1 to 2 emergen c’s a day I also drink apple cider vinegar and I have a nose and throat spray that I use pretty regularly they are made by Seagate and I get them at the health store. I drink wheat grass when I can and just try to have a healthy diet. The last oral glucose tolerence test after I drank that drink my blood sugars were in the 40s so they said I was hypoglycemic which I guess is borderline CFRD not sure that whole thing is confusing to me. My airway clearance consists of somergenicsJ a mix of auto genic and other breathing techniques and I use the pep mask 3 times a day I got it after last March and I love IT! I thought why would I use that it is so 10 years ago but I really love it!!! I wear o2 at night and when I work out. I work out on the treadmill and I walk my dogs when its nice. I just started the Tracy Anderson Method and I love it she is Madonnas trainer! Well I think that about wraps it up for my health regime.

I have the old vest but I rarely use it I prefer pounding which I only have done when I am in the joint...

My daily cocktail

~My Last BLOW (PFT) was on Mon My FEV1 was 34 and I am hoping that I will hit a 40 after the next time I receive IV antibiotics. I keep visualizing it.

~ I have been blogging for almost a year now I started at the end of March. I am so thankful I did, I have been reconnected with some fabulous friends and I have found some amazing Cysters. The bond I have with my Cysters I tell ya it is something I can’t quite describe! I have two brothers and I think I know now why I never had any sisters.

~If I could change one thing in my life.... I would opt toNOT change a single thing! I believe I was given this life because I am strong enough to live it! I am SO VERYblessed to have such an AMAZING support system my family and friends mean the world to me!!!!!!

So there you have it my CF About Me I am sure I have left some things out but this is what sticks out in my mind. CF is just ONE of the MANY things that makes me who I am and for that I am grateful!

The Power Of Touch

A Healthy Mind Has An Easy Breath!

To me there is nothing better than the power of touch! A massage can play a huge role in the healing process for any ailment. To me a massage is one hour of pure bliss. If I could get one every day I would. That hour helps rejuvenate and heal my body and mind in so many ways.

When I get up off that massage table I feel like I can take in the biggest breath ever! 

The Power of Touch can help in:

Relieving pain

Improving Circulation

Enhancing the Immune System

Reducing Stress ( we all know Stress can be HORRIBLE)

There is a day spa right by my house called Sego Lily. The second you walk through the doors you forget all your troubles. It is a retreat for the pampered soul. Let me just tell you my soul LOVES to be pampered!! They are having the most amazing contest known to mankind. They are choosing a Sego Lily Blogger. Read about their contest HERE! Just think if they choose me Lilly can be the mascot :) Lilly Loves to be pampered too!

This is Lilly after a day at the spa

 But in all seriousness I would be honored to win this contest and would love to be able to pamper my soul and have a healthy mind so I can have a easy breath! 

LIVE,LOVE,BREATHE

My Answers

Q: Does it scare you to think that one day you might have to have a lung transplant? If so, what about it scares you the most? Does it help hearing other post-transplant CFers talk about transplant, or has it made your fears (if you have them) worse?

A: It doesn’t scare me to know that I will need a Tx one day! I will embrace that day when it comes.  Hearing post Tx stories only reassures me that this is something that I will want to do! All my Cystas have had amazing experiences. I can’t wait to run just because I can! J

Q: Can you tell us a little about your work with the Heroes of Hope Panel? How did you get involved with that?

 A: The Heroes of Hope program is sponsored by Genentech, Inc., to recognize and salute unique individuals with cystic fibrosis who are stars in their own right for striving to live full and productive lives, and for being role models of hope to others, while continuing to manage their healthcare needs.  Click here to see our latest Hero of Hope Lauren Beyenhof. She is also on my blog roll, you can read her blog here. I was so excited to be given the chance to record her podcast. You can listen to it on the Heroes of Hope Website.

 I sit on this panel with such an amazing group of individuals. I was given this opportunity by a really great friend. She left the CF clinic as a nurse practitioner to go work with Genentech over 1o years ago. She is truly amazing! I am so thankful to be a part of such a wonderful program.

 

Q: Going along with Christy's post, have you ever thought about being evaluated for transplant? Has this ever been discussed?

 A: I have never been evaluated for Tx. My docs have never even brought it up yet. I am sure I will know when the time is right. I am So thankful that I have been able to maintain me FEV1 and I hope that can continue for a long time. 

 

Q: What does it feel like to be the mommy of the two cutest pugs west of the Mississippi?

A: I love my lil babies they truly are my life!! They are my “kids” and they are the best medicine a girl could have. They constantly are making me laugh and their love for life and each new day is inspiring! Read this post about how a dog celebrates life.

 

Q: How do you stay so positive?

A: hmmmm Well I am so blessed with an amazing support system my family and friends are the best. I believe when you are faced with a challenge you have two choices.  You can either, rise-up and overcome your challenge, or you can do nothing and allow your challenge to conquer you. So I choose to stay positive and live each day to the fullest. I have a bracelet that I never take off with the quote engraved on a silver heart….“Nothing is worth more than this day” I promise I have my moments, just not ever body gets to see them. Feel privileged if you have seen me in a moment :)

Q: What, if anything, would you change (future or past) about your CF treatment, they way you, or doctors have treated your CF? How do you keep the motivation to do your treatments on a regular basis, without any lapse? Do you ever get frustrated and have days where you just say, "The heck with it...I need a break!"?

A: For the future I would like to see a cure in my lifetime. 

As far as the past I wouldn’t change anything. I never take a break it sounds nice but in all reality I know it needs to be done. Don’t get me wrong I wasn't always as compliant as I am now. I was a typical teenager, just ask my parents.  When I started taking action and doing my treatments my self and going to my doc apts myself they were trusting me with everything. I didn’t want to let them down but there was still moments then that I would do things a little half ass, and put things first like friends and work. I guess I would regret that but then again it is part of growing up. Now today I go above and beyond when it comes to my health. I try anything and everything. My thoughts are just add it to the list J

 

Q; Are you taking care of yourself and staying out of the hospital?

 A: ABSOLUTELY!!!! See above… Last week was my jointaversary I have been out of the joint now for a year!

Q: When are you coming to Boston to visit??? Love you cuz!!! Oh, and when are we going to Ireland?

 A: I hope to soon, I really would love to come to Boston while you are still living there. I think Ireland 2010 should be in order! If the economy is still shitty Maybe 2012.

 For St Patty’s 2007 I planned a HUGE trip to Ireland and it kept getting bigger and bigger with all my fam. Remember my last name was McNeill we are Irish so we thought the whole fam should get together and go there for St Pattys day. Well the weekend before we were to leave I got the flu it kicked my butt! I went to the doc as soon as Mon rolled around to get some ABX so I could make my trip. Well I felt horrible I don’t even know how I drove to the doc I was so weak and when I got there I had to lay down I couldn’t even keep my head up. I got the ABX and went back home to rest. I started getting nervous about the flight so I ordered O2 for the way there.  Well Wed morning I still didn’t feel any better so my fam was off for the airport and I was off to the jointL I was satting barely 90 on 6 liters of O2 I am glad I didn't go to the motherland being that sick. I went to Ireland in 2002 for St patty’s day and once when I was 12. I'll post more about that next week when we get closer to the  big day!

 

Q: Would you ever want to live in another state? Have u lived in UT your whole life?

 A: I would love to live in San Diego. I love it there and I really love being at sea level. When I went to Newport beach this summer on room air my o2 was 99% I rarely get that here with o2 on. I was born in NJ but moved to Utah with my Dad’s job when I was 9 months old. Traveling is key I think it keeps me sane. I don't think I could really every move unless we could pack up my family and friends too.

 

Q: I am a jean fanatic... always on the search for 'the best pair' that fit 'perfect'... What is your fav kind?

 A: I don’t really have a fav kind. I have a pair of Ernest Sewns that I love and you can tell because I am getting a huge hole on the back upper thigh. I also love my Rock n Republics. I was Savvy Manager at Nordstrom so I have lots of great pairs.

 

Q: Would u ever go back to school? If so, working towards what degree?

 A: I don’t think so. School isn’t for me, I have diagnosed my self with adult ADD J If anything I would maybe take some classes here and there. When I went to school my degree was in Art. Those were the only classes I liked. All the other classes you would think they were my art classes by looking at all my notebooks, they were covered with doodles.

 

Q: When did you start painting?

 A: I have painted for as long as I can remember, But started getting serious about Art in High school

 

Q: What are you non-health related goals for the future?

 A: I have a ton of goals and things I want to accomplish. I have a bucket list and I am slowly crossing things off. One day at a time I guess, and this year being that I will be the big 30 I hope to cross even more off that list. Problem is I keeping getting these big ideas, and the list keeps getting longer and longer. 

Question and Answer

As the official CCC (Christy's Copy Cat)  :) I thought I would try a Q&A. So go ahead and ask away. 

So just leave any questions you may have in the comment section or you can e mail them to me. 

I will post the answers in one week! 

Can't Stomach it

When I was 15 I had to gain some major weight my mom made a deal with me that if I gained 10 lbs by my next appt, she would let me get my belly button pierced. Well I can't even tell you how many cans of ensure I drank in that month. I upped my enzymes and took them with every can. I split them up and took some before, during and after each can. To this day I still have my belly button pierced. But that month ruined me for any type of meal replacement drinks on the market, they all make me gag a bit. 

I am so ruined that if a dessert tastes a bit like the choc, vanilla, or strawberry drinks I can't eat it. Just recently however I can get a USANA Nutrimeal down... I drank the chocolate, it is a powder and I only added water and it wasn't bad considering I don't like chocolate. It tasted like a Wendy's frosty. I can only imagine what it would taste like if I doctered it up a bit.

"My CF About Me"

Ok so I have been loving reading these and getting to know so much more about my Cysters. So after much consideration I thought I would put together one myself. I didn't think it would be that long but it has turned out to be quite a novel.

~I was diagnosed with CF when I was 11 months old on a hunch. My mom read a newspaper article that said “kiss your baby disease” If your child tastes salty get them in for a sweat test to see if they have CF. So she licked my bro and I and I guess I tasted salty.  She called my pediatrician and told him she wanted me to come in for a sweat test. He assured her I didn’t have it, I was a very chunky baby and there is no CF in my family history. But she insisted and so he did it and called her the next day crying. The docs told my parents I wouldn’t live to be 10 and from that moment on my two fabulous parents chose to fight my disease and when I was old enough I joined the fight.  Look at those cheeks :)

~My parents started the CF Chapter here in SLC after my diagnosis and I was a poster child for many years and attended many functions in the community to help raise money for a Cure. You can read more of my story and see photos of these events at www.lovetobreathe.com a web site that my bro put together for me.

 ~ I was first hospitalized when I was 7 and I didn’t start enzymes until then either. This is a pic of me in the joint for the first time

~ My lil bro was adopted. My parents always wanted 3 kids but they didn’t want to chance having another Cfer. The pic below is the day we got Shelby

~I went to CF camp when I was younger for only 2 or 3 years my mom didn’t think it was very sanitary (smart lady) However I met some amazing people and we have lasting friendships.

~After my first hospital stay I began to do Ivs at home once a year until I was 10 then I started going into the hospital for a yearly tune up. I would usually go in around Christmas break so I wouldn’t miss much of school since not everyone knew I had CF growing up. When I graduated high school I started to talk more openly about CF. When I was growing up I just didn’t want people being sympathetic and never wanted to be the “sick girl” To this day when someone gives me The head tilt, you know the one it is just a lil irritating. 

~I danced growing up and was in a performing company we traveled many places to perform including Japan. I did ballet, tap, jazz, hip hop, and modern. I stopped dancing with my dance company my senior year in high school so I could be a cheerleader.

~I went to private school all my life so when I went to college for my first year it was hard to be a # rather than Somer. The college was 2 hours away from my home. I moved back after the first year and continued my career at Nordstrom and worked my way to management. I managed Kids shoes, Jewelry and Savvy.

~ Went to Primary Childrens Hospital until I was 22 I was the oldest patient then I finally transitioned to the University of Utah the Adult CF Center.

~Every time I go into the joint My mom chooses a theme and gets decorations and my parents decorate my room for me. It’s a different theme every time. Unless I am in around a holiday it is decorated from floor to ceiling you can see some pics on my website. The two below were from last March. I took my tap shoes to the joint, they made pulmonary rehab more fun :)

~I had a hard time with piccs year after year and finally after forming blood clots in my arms and being on coumadin on 2 different occasions. I got my “Thipple” in 2005. Many of you may know that as a port but I call it my “Thipple” for third nipple. I SO wish I would of gotten it sooner but it seemed so permanent. I flush it once a month and don't mind it at all. When I first got it I was a lil self cautious about it. I have had many people say some interesting things about it. Once when I first got it I was in Vegas with some girlfriends and I wore a low shirt so it was clearly showing it was my first time with a thipplicious shirt on and my friends assured me you could hardly see it. So we went downstairs and I noticed we forgot the camera so I opted to go get it and I was in the elevator with 4 guys all of a sudden I hear a guy scream "OMG what the hell is that" I was mortified right when I was about to answer the doors opened to my floor so I replied back "thats what happens when you go to a third world country and get a boob job" and I kept walking I didn't even look back. I told my friends they were liars :)

~I went to a chiropractor in 2005 and they found a kidney stone the size of a large gumball by accident. I had to have surgery to remove some of it and break the rest up so I could pass it thru a stent I never felt a thing not even passing the rest of the stones.

~I stopped working at Nordstrom in Dec of 2005 after continuing to get really sick. I was admitted when my FEV1 hit 22.

~ I am very involved in the CF community and try to raise awareness whenever I can. I sit on the Heroes of Hope Panel a fabulous program by Genentech (makers of Pulmozyme) I sit on the board of directors with my local chapter and I send my paintings to different fundraisers around the US. I was in the TOBI calendar for 2008 and helped the Boomer Esiason Foundation out with a campaign with Jiffy Lube last year.

~When my bro got prego with Makena Tammy had to be tested to see if she was a carrier and she was not. However my bros blood test came back showing 2 negative genes (which would mean you have CF) So they actually wanted him to go up to Primarys and get another sweat test it came back negative so it turns out one of his negative genes is mutated so with that mutated gene it makes him only a only a carrier. So my doc thinks I may have 3 or more CF genes. Which is very rare! The pic below is Shane getting his sweat test a lil over 3 years ago

~ 2006 I was in the joint 5 times 2007 6 times and  2008 twice all for 2-3 weeks at a time. I am happy to report the last time I was admitted was March 3 2008 almost one year ago. I am not sure I remember the last time I was out for a whole year. In April 08 I started back up on USANA and also got on the aztreonam early access study.

~ The meds I am on are albuterol (3 times a day) ,pulmozyme (twice a day),Tobi, (every other month)Aztreonam (on my off tobi months), Pulmicor 1mg (In the am)advair (twice a day),pancrease MT 16 4-5 with meals 0-3 depending on the snack azythromiacin (daily) Nexium (in the am) AllegraD (in the am) Vitamin C 500mg (3 times a day) USANA(proflavonal 90, hepasil, coquene 30, Essentials) am and pm) nasalcort (twice a day) During flu and cold season I drink 1 to 2 emergen c’s a day I also drink apple cider vinegar and I have a nose and throat spray that I use pretty regularly they are made by Seagate and I get them at the health store. I drink wheat grass when I can and just try to have a healthy diet. The last oral glucose tolerence test after I drank that drink my blood sugars were in the 40s so they said I was hypoglycemic which I guess is borderline CFRD not sure that whole thing is confusing to me. My airway clearance consists of somergenics J a mix of auto genic and other breathing techniques and I use the pep mask 3 times a day I got it after last March and I love IT! I thought why would I use that it is so 10 years ago but I really love it!!! I wear o2 at night and when I work out. I work out on the treadmill and I walk my dogs when its nice. I just started the Tracy Anderson Method and I love it she is Madonnas trainer! Well I think that about wraps it up for my health regime.

I have the old vest but I rarely use it I prefer pounding which I only have done when I am in the joint...

My daily cocktail

~My Last BLOW (PFT) was on Mon My FEV1 was 34 and I am hoping that I will hit a 40 after the next time I receive IV antibiotics. I keep visualizing it.

 ~ I have been blogging for almost a year now I started at the end of March. I am so thankful I did, I have been reconnected with some fabulous friends and I have found some amazing Cysters. The bond I have with my Cysters I tell ya it is something I can’t quite describe! I have two brothers and I think I know now why I never had any sisters.

~If I could change one thing in my life.... I would opt to NOT change a single thing! I believe I was given this life because I am strong enough to live it! I am SO VERY blessed to have such an AMAZING support system my family and friends mean the world to me!!!!!!

So there you have it my CF About Me I am sure I have left some things out but this is what sticks out in my mind. CF is just ONE of the MANY things that makes me who I am and for that I am grateful!