Showing posts with label LovetoBreathe. Show all posts
Showing posts with label LovetoBreathe. Show all posts

Monday, September 10, 2012

A Beautiful Angel....



My sweet T earned her wings August 28, 2012 It was a sad day here but I know Tiff had a welcome to heaven party for her. I can only imagine the shenanigans they are getting into up there. Tiff, Tanya and I.... The 3 Musketeers is what the hospital staff started calling us. From all our late night Starbucks visits, to mastering the Wii while still staying 3 ft apart, the late night talks, well the list goes on and on. I am grateful for so many great memories I share with them... my musketeers.

T and I at starbucks of course :)

So Sept 1 Amanda, Ron and I headed to Idaho for T's funeral. Amanda spoke and did such an amazing job. Her talk was perfect and I know T was smiling down at her...




Amanda's words for T

Tanya Lynn Taylor Downs was born on 7/11/83 (In case she hasn’t told you they give free slurpees away for her birthday.
  Tanya came into my life as a patient and left me as a best friend.  For those of us fortunate enough to know Tanya she had that effect on people.
  I met Tanya in 2006.  I had just moved to Utah from Nevada and had only been a nurse for one year.  I started working at the University of Utah Hospital on 2 East, which many of you know became T’s home away from home.  When I was given the job my manager was explaining to me the different types of patients on the unit and while explaining it to me she said CFers.  I had no idea what CF was.  Working with all the other nurses on the floor they would tell me our CF patients mean a lot to us and they know more about their disease then we ever will.  They explained to me how they have been in and out of the hospital most of their lives.  The nurses would tell me how they are very particular with their care and often request certain nurses.  They said don’t be offended if you notice some of us having more CF patients then others.  
  Then one morning I get to work and on my assignment was Tanya Taylor I will never forget she was in room 239.  I walked in so nervous just to see her happy smiling face watching a movie with Jackie.  Tanya was getting to go home that day so I had to de access her port.  (Port a caths were permanent catheter used for their IV access, they were also know as thipples “Third nipples” by Somer and Tanya).  I get her ready to go thought I did well and then realized I had forgotten to put heparin in her port. (Heparin is what keeps it from clotting).  I thought oh crap. I screwed up my first CF patient.  I am calling her frantically on her cell phone and she answers as she is pulling out of the parking garage and I told her what happened.  She said oh I will be right up, she came up to the floor and let me repoke her, and I will never forget what she said, you are a really good nurse and I liked having you even if it was only for a day.  That is the type of person Tanya was she found the good in everyone.  From then on out I was always T’s nurse.
  Tanya had to spend many holidays in what’s known as the joint.  Whether it is Thanksgiving, Halloween or her Birthday she was always ready to celebrate.
  Tanya had CF, CF did not have Tanya.  Right before her transplant she was in the hospital a lot, but she would always have fun.  With Tanya came great friends and family.  Tanya always had someone with her and I will never forget one night she said she was going for “a walk” little did we know that she had a get away car outside waiting to take her to the Moon. (No I don’t mean space I mean the bar).  Starbucks was a big hangout and thank God the one at the U was 24 hours you never knew when Tanya would need a starbucks run.  If everyone wanted to go down together and a doctor was around I would be directing and sneaking Somer, Tiff and Tanya to get away each taking a turn down the elevator (because there is a rule where CF patients have to be 3 feet away from each other).  You would walk by Somers or Tanya’s room and they would have the WII set up perfectly 3 feet apart.
  I know as soon as she saw Tiffany they gave each other a never-ending hug.  We will always have a sweet angel watching over us, but she is with one of her partners in crime so they will be watching us with their newly empowered angelic beings with a touch of teasing and joking too.
  I have to share two remember when’s.  No matter when I would talk To Tanya whether it be a day or a week she would always say remember when.  The first was when Tanya was staying at my house her and I were eating at Taco Bell and across the parking lot was a Hollywood Video, as we were eating I said hey do you want to hear something funny.  I have a 150-200 dollar late fees there (I know who has that much money in late fees at Hollywood Video) after she quit laughing she said lets go take care of this.  This was pre transplant and Tanya walks in with her oxygen and said I am Amanda Hankins I am not paying my fees cant you see I am sick, the lady at the counter said oh maam I am so sorry I will take care of that.  Thank you T.
  The second remember when was when my husband would bring my son Brenden up to see Tanya every Sunday.  Brenden did that about every Sunday she was in the hospital for his first 8 months of life.  He would just lay on her bed with her and as he was getting older he would mimic her cough.  Tanya would cough then Brenden would cough.  Then T got her lungs and once she was up and able to talk she said you know what I am going to miss Brenden's cough, since I won’t cough anymore neither will he.  That was Tanya always finding the humor in everything.
  Lets talk Ambiem the 2-east sleeping pill, which Tanya would often entertain us on.  If you have seen the commercial you know the side effects: People using this medication have engaged in activities such as driving, eating, and making phone calls and later have no memory of the activity.  Well I can say she didn’t drive but she did do all others.  Many of us out her probably got the infamous text of her combing Avril Lavanges hair; cats were coming out of the walls. Oh Tanya how you always made us laugh.
  I was blessed to get to be with her friends and family waiting for her while she got her lungs.  She was so brave and I have said this many times Tanya I aspire to be half as brave as you.  Tanya loved Reba McIntyre and I remember after she had gotten her lungs but was still sleeping a lot Reba had called her cell phone and left a message.  Oh my goodness she must have made me listen to it 100x. I took a quote Tanya had on her facebook. She was so grateful for her donor.  The quote says “There is no greater love then this.  There is no greater gift that can ever be given.  To be willing to give up your organs, so another might live.  There is no greater love then this.”
  Tanya you taught me so much.  You taught me to love when things are hard, you taught me to smile regardless of the fight we are fighting, you taught me to walk on.
  Tanya I will miss you everyday.  I will miss you and your dogs having a sleep over at my house, I will miss are dinner dates, I will miss your laugh and your “oh hells” the phone calls and the texts, but I know you are with us each day taking deep breaths and smiling.
  Tanya I would like to tell you to rest in peace, but don’t’ rest it is your time to run, dance, laugh, and breathe.


The photo above was when we were at her graveside T didn't have her Love to Breathe necklace on and Tiff and Astra both had theirs. On top of her casket were 65 beautiful roses and Amanda took her necklace off and placed on the roses so now T can have her Love to Breathe necklace with her forever too.

Breathe Easy T! You Lived, You Loved, and now you can Breathe!!! Xo infinity your musketeer

Friday, June 3, 2011

32~7~500!!!!

Lucky numbers..... Nope ~ Combination of some sort..... Nope


I am officially 32 aka 32ubular!!!! Technically I am 32 and 9 days but who's counting, so far I am loving every second of it!


Today my sweet lil guy is 7!  Holy cow how is that possible?!?!?! Seems like just yesterday he didn't know how to go up the stairs.



And drum roll please.... This is my 500th post!! Which also doesn't seem possible... Crazy!

It's starting to warm up here, this weekend we will have perfect 70-80 degree weather can't wait! Enjoy your weekend everyone!  I'm excited to get the vespa out! Xo

Thursday, March 3, 2011

what does it mean...

Ok I am on a roll :)

Day 2 of the blogging challenge is

What is the meaning behind your blog name?

Well it stems from my paintings specifically my one hearted paintings. They are titled "Love to Breathe" and well I love to breathe and being that Love is my last name well I incorporate it into my daily life in so many ways.


Then in 2007 my brother Shane helped me take it further by starting my Love to Breathe website. Its a place where I can share my story and help raise money for the CFF and help find that sought after cure, and to most importantly give hope to CF families.

If I can make a difference in one person's life... well then that makes me smile from ear to ear. Making a difference is what really makes me happy! I know it sounds cheesy but it's the truth.

Tuesday, August 3, 2010

Tick Tock

turned one of my Love to Breathe paintings into a clock....

Make Every Breath Count


Wednesday, January 27, 2010

Oh How I LOVE...

"LOVE" Day!!!! Valentines day is coming up!!! My favorite time of year, there are hearts everywhere!!! We have had some major requests to bring the limited edition love to breathe necklace back.... but I am sorry guys that was a limited edition. So we did some brainstorming and for LOVE day we decided to take some styles and give them a lil extra LOVE.....

Click HERE to order yours... I so Need my style with the extra LOVE! Lissa you are AMAZING!!!


I am off to order mine!!!!
Xo




Wednesday, December 23, 2009

The World is My Oyster!!

Ok after 2 days of waiting patiently by my door UPS finally delivered it!

Isn't it SO cute!!! I finally got my EVER GO!! YAhoo it's a portable oxygen concentrator that is FAA approved so I can take it on the plane and have stress free traveling.... Also no more heavy tanks to deal with :) this lil guy is only 10lbs. I think he needs a name... any suggestions?

Thank you all who purchased your limited Love to Breathe necklace I hope you love it as much as I love mine and thank you Lissa for making it ALL possible and for all your Love!!! Xo

To see more of Lissa's necklaces click here


Wednesday, November 18, 2009

Who Loves to Breathe?

That's right... Custom Love to Breathe necklaces!!!

Click here to order your very own and read about our exciting new ideas!

Wednesday, October 21, 2009

Making an impact NOW


Saving money is easier said than done… I have so many things on my list that I need to save up for. The majority of my list has to do with my health and let me tell you it adds up. Who would think that being able to breathe would be considered a luxury. I am in the market for a portable oxygen concentrator. I have done a ton of research and the one I am looking at is the Evergo by Respironics. It's FAA approved and most airlines allow it on their flights. It has 4 batteries and each battery has about 8hrs of life. It weighs less than 10 lbs and would make traveling stress free, not to mention I wouldn’t have to deal with O2 tanks for the times that I use portable O2. Basically all this translates to a luxury item that insurance won’t cover. GRRRRR


Well I was telling my sweet talented friend Lissa about the Evergo one day when she had an idea. See last year she gave me a special Love to Breathe Necklace that was just for her and I, the only 2 of its kind. Well let me tell you how many people lost sleep over not being able to ever own that amazing pendant. After numerous requests for the necklace she asked me what I thought about adding it to the collection, well I was hesitant cause I loved the idea that it was a one of a kind or two of a kind actually. So we were brainstorming back and forth and came up with the idea to only make 65 of them for $65. Sixty Five Roses is what some children call Cystic Fibrosis since it is so hard to pronounce. Then she got this great idea that what if we started getting more personal with our donations we could make a bigger impact now for patients. She is determined to help me get my Ever Go. Then we got to thinking how great it would be to help others with medical equipment etc that cost an arm and a leg. So many great ideas kept coming to mind. My cute friend Suzie will need to get her beautiful daughter a vest soon, well we all know those are expensive. I swear if you squint hard enough when you look at your vest you can almost see a car, or a down payment for a house. So how exciting will it be to help people now and get them the things they need to breathe a lil easier. We have more ideas to make Love To Breathe necklaces more personalized I'll post more on that later.


So with all this said I want to show you the First Limited Edition Love to Breathe necklace… They are numbered on the back and when Emily Schaller went to visit Ellen Degeneres well she took her number 5/65.


Click here to go to Lissa's Etsy site

Thursday, June 18, 2009

She's a Rock*!

Thank you everyone for wearing your Love to Breathe necklaces for Astra. It worked!!!

She had a lobectomy yesterday, she got the right upper lobe removed. It was severely infected and had been causing her a lot of pain and problems. Removing it is going to improve her quality of life and lessen those trips to the joint. 

She did great thru surgery, was off the vent immediately and is already out of ICU! Astra you are a Rock* 

Click here to leave my lil Cys a comment on her blog. I am sure she would love and appreciate the encouraging words as she begins on the road to recovery. 

Bug Crew for Life!!!! Xo

Wednesday, April 29, 2009

Vitamin D and a whole lot more...


Ok I am getting all caught up I just got back from vacation in Az, aka The Valley of the Sun! I had a blast as always! I stayed in my lil slice of heaven with Odie and Nannels. It was very relaxing and the perfect temp. I wasn't as good as laying out as I usually am. I am VERY white right now and I didn't want to burn so I traded off sun and shade and wore 45 all over. 

Sat night I went to a 50th wedding anniversary with some close friends of the fam it was so great to see everyone! The Moskal daughters pulled off a fabulous party for their parents. Two of the daughters are my blogging buddies Kathy and Patty. It was SO good to see them click on their names to read their blogs, I have known them both forever they use to babysit me :) I wish I could of spent more time with them. Hmm perhaps the next Moskal reunion should be in SLC???

Kath,Patty & I


I thought this pic was funny... Our feet ? Looks like it might be the bottom of the pic above.




Sunday I went to a fun BBQ with some friends that I haven't seen for a while as well. It was good to catch up with them. Mon I got to go to lunch with my good friend Summer from High school. Yep 2 of us... We spell it different tho but in high school both of or last names started with Mc. I hadn't seen her for 3 years, she just moved to Az so I am excited to see her more often! I got to meet her cute lil baby Adia who is such a doll. That night I got to spend time with my Cousins which is always fun and Odie cooked us some AMAZING steaks mmmmm! 

Sum and I with Baby Adia


Tues I had to leave and I always wish I could just have a couple more days. I met up with my Cyster Sara for coffee before my flight. I wish we would have had more time together but I will be back again soon. It was SO great to finally meet her in person! She is SO fabulous and at the end of our visit Mike her husband met up with us. I am so glad I got to meet them both they are such an amazing couple. We were so pressed for time and were covering so many things that we forgot to get a photo. I am so bummed, but we will next time for sure! We were talking about the e mails that Sharlie, Sara and I were sending back in forth when we first came up with "Cysters" and Sara asked what we should refer to the guys as.... so now we have Cysters and Fibros! So Ronnie you are our Fibro :) We are looking into getting a patent for these ;)

So I was way paranoid to fly with this whole Swine flu. So I wore a mask from the Az curb to the SLC curb. I wish there was a hidden camera in the mask because the looks and comments were quite entertaining. 

A couple comments I got:

Guy sitting across the aisle from me~ "Should we be afraid of you or are you afraid of us"
 
Husband~"Look she has a mask"
Wife~"jealous"

Daughter to her Mom~ "What? Why is she wearing a mask"

Girl in front of me~ "Sorry I fell asleep did you hear me make a noise"
Me~ "Oh no you're fine" with a sweet chuckle
Girl~"Oh good I didn't want you to think I was a freak"
Me~"Um I am the one in the mask"
Girl~ "Yeah so do you just not want to get sick?"

Lady in front of me in the security line~ "So are you scared of the Swine flu?" a lil snidely
Me~ YES! and I also have a lung disease so I am trying to stay healthy.
LAdy~ "ahh oh stumbling for words I am sorry to hear that" at least she didn't tilt her head :)

wearing my mask
Mother's day is less than 2 weeks away... The perfect gift would be a Love to Breathe necklace!


Wednesday, March 25, 2009

Congrats Christy!

Congrats Christy you are now the proud owner of this Love to Breathe painting. You are starting quite the collection. :)

Christy just headed a wine tasting event for the CFF. I sent one of my paintings to her fundraiser, and she was the high bidder on that one too :) Go check out her blog she is the proud momma of two beautiful lil girls and a fur baby named Eddie, her oldest Mackenzie has CF. Christy is doing all she can to make CF stand for Cure Found!!


Thursday, March 19, 2009

Blogging Auction

Ok after all your requests to do this I thought I would oblige... I had a very hard time choosing which painting to put on here, so I may just have to do this again :)

This is a Love to Breathe painting and it is on a 16x20 gallery wrapped canvas so you can hang it as is, it doesn't need to be framed.  You can bid on it by leaving a comment and who ever is the highest bidder on Wed March 25th will be the proud owner. I'll start the bidding price at $75 a portion of the proceeds will go to the CFF. Last year Love to Breathe raised over $5,000 for the CFF. Remember 90 cents of every dollar goes to funding research for that sought after cure.... Happy bidding :)



Thursday, February 26, 2009

"My CF About Me"


Ok so I have been loving reading these and getting to know so much more about my Cysters. So after much consideration I thought I would put together one myself. I didn't think it would be that long but it has turned out to be quite a novel.

~I was diagnosed with CF when I was 11 months old on a hunch. My mom read a newspaper article that said “kiss your baby disease” If your child tastes salty get them in for a sweat test to see if they have CF. So she licked my bro and I and I guess I tasted salty.  She called my pediatrician and told him she wanted me to come in for a sweat test. He assured her I didn’t have it, I was a very chunky baby and there is no CF in my family history. But she insisted and so he did it and called her the next day crying. The docs told my parents I wouldn’t live to be 10 and from that moment on my two fabulous parents chose to fight my disease and when I was old enough I joined the fight.  Look at those cheeks :)

~My parents started the CF Chapter here in SLC after my diagnosis and I was a poster child for many years and attended many functions in the community to help raise money for a Cure. You can read more of my story and see photos of these events at www.lovetobreathe.com a web site that my bro put together for me.
 ~ I was first hospitalized when I was 7 and I didn’t start enzymes until then either. This is a pic of me in the joint for the first time

~ My lil bro was adopted. My parents always wanted 3 kids but they didn’t want to chance having another Cfer. The pic below is the day we got Shelby

~I went to CF camp when I was younger for only 2 or 3 years my mom didn’t think it was very sanitary (smart lady) However I met some amazing people and we have lasting friendships.
~After my first hospital stay I began to do Ivs at home once a year until I was 10 then I started going into the hospital for a yearly tune up. I would usually go in around Christmas break so I wouldn’t miss much of school since not everyone knew I had CF growing up. When I graduated high school I started to talk more openly about CF. When I was growing up I just didn’t want people being sympathetic and never wanted to be the “sick girl” To this day when someone gives me The head tilt, you know the one it is just a lil irritating. 
~I danced growing up and was in a performing company we traveled many places to perform including Japan. I did ballet, tap, jazz, hip hop, and modern. I stopped dancing with my dance company my senior year in high school so I could be a cheerleader.
~I went to private school all my life so when I went to college for my first year it was hard to be a # rather than Somer. The college was 2 hours away from my home. I moved back after the first year and continued my career at Nordstrom and worked my way to management. I managed Kids shoes, Jewelry and Savvy.
~ Went to Primary Childrens Hospital until I was 22 I was the oldest patient then I finally transitioned to the University of Utah the Adult CF Center.
~Every time I go into the joint My mom chooses a theme and gets decorations and my parents decorate my room for me. It’s a different theme every time. Unless I am in around a holiday it is decorated from floor to ceiling you can see some pics on my website. The two below were from last March. I took my tap shoes to the joint, they made pulmonary rehab more fun :)


~I had a hard time with piccs year after year and finally after forming blood clots in my arms and being on coumadin on 2 different occasions. I got my “Thipple” in 2005. Many of you may know that as a port but I call it my “Thipple” for third nipple. I SO wish I would of gotten it sooner but it seemed so permanent. I flush it once a month and don't mind it at all. When I first got it I was a lil self cautious about it. I have had many people say some interesting things about it. Once when I first got it I was in Vegas with some girlfriends and I wore a low shirt so it was clearly showing it was my first time with a thipplicious shirt on and my friends assured me you could hardly see it. So we went downstairs and I noticed we forgot the camera so I opted to go get it and I was in the elevator with 4 guys all of a sudden I hear a guy scream "OMG what the hell is that" I was mortified right when I was about to answer the doors opened to my floor so I replied back "thats what happens when you go to a third world country and get a boob job" and I kept walking I didn't even look back. I told my friends they were liars :)
~I went to a chiropractor in 2005 and they found a kidney stone the size of a large gumball by accident. I had to have surgery to remove some of it and break the rest up so I could pass it thru a stent I never felt a thing not even passing the rest of the stones.
~I stopped working at Nordstrom in Dec of 2005 after continuing to get really sick. I was admitted when my FEV1 hit 22.
~ I am very involved in the CF community and try to raise awareness whenever I can. I sit on the Heroes of Hope Panel a fabulous program by Genentech (makers of Pulmozyme) I sit on the board of directors with my local chapter and I send my paintings to different fundraisers around the US. I was in the TOBI calendar for 2008 and helped the Boomer Esiason Foundation out with a campaign with Jiffy Lube last year.
~When my bro got prego with Makena Tammy had to be tested to see if she was a carrier and she was not. However my bros blood test came back showing 2 negative genes (which would mean you have CF) So they actually wanted him to go up to Primarys and get another sweat test it came back negative so it turns out one of his negative genes is mutated so with that mutated gene it makes him only a only a carrier. So my doc thinks I may have 3 or more CF genes. Which is very rare! The pic below is Shane getting his sweat test a lil over 3 years ago

~ 2006 I was in the joint 5 times 2007 6 times and  2008 twice all for 2-3 weeks at a time. I am happy to report the last time I was admitted was March 3 2008 almost one year ago. I am not sure I remember the last time I was out for a whole year. In April 08 I started back up on USANA and also got on the aztreonam early access study.
~ The meds I am on are albuterol (3 times a day) ,pulmozyme (twice a day),Tobi, (every other month)Aztreonam (on my off tobi months), Pulmicor 1mg (In the am)advair (twice a day),pancrease MT 16 4-5 with meals 0-3 depending on the snack azythromiacin (daily) Nexium (in the am) AllegraD (in the am) Vitamin C 500mg (3 times a day) USANA(proflavonal 90, hepasil, coquene 30, Essentials) am and pm) nasalcort (twice a day) During flu and cold season I drink 1 to 2 emergen c’s a day I also drink apple cider vinegar and I have a nose and throat spray that I use pretty regularly they are made by Seagate and I get them at the health store. I drink wheat grass when I can and just try to have a healthy diet. The last oral glucose tolerence test after I drank that drink my blood sugars were in the 40s so they said I was hypoglycemic which I guess is borderline CFRD not sure that whole thing is confusing to me. My airway clearance consists of somergenics J a mix of auto genic and other breathing techniques and I use the pep mask 3 times a day I got it after last March and I love IT! I thought why would I use that it is so 10 years ago but I really love it!!! I wear o2 at night and when I work out. I work out on the treadmill and I walk my dogs when its nice. I just started the Tracy Anderson Method and I love it she is Madonnas trainer! Well I think that about wraps it up for my health regime.
I have the old vest but I rarely use it I prefer pounding which I only have done when I am in the joint...

My daily cocktail

~My Last BLOW (PFT) was on Mon My FEV1 was 34 and I am hoping that I will hit a 40 after the next time I receive IV antibiotics. I keep visualizing it.
 ~ I have been blogging for almost a year now I started at the end of March. I am so thankful I did, I have been reconnected with some fabulous friends and I have found some amazing Cysters. The bond I have with my Cysters I tell ya it is something I can’t quite describe! I have two brothers and I think I know now why I never had any sisters.
~If I could change one thing in my life.... I would opt to NOT change a single thing! I believe I was given this life because I am strong enough to live it! I am SO VERY blessed to have such an AMAZING support system my family and friends mean the world to me!!!!!!

So there you have it my CF About Me I am sure I have left some things out but this is what sticks out in my mind. CF is just ONE of the MANY things that makes me who I am and for that I am grateful!

Thursday, February 12, 2009

LOVE DAY QUEST...

As a show of solidarity in the fight to find a cure for Cystic Fibrosis, everyone who has a "Love to Breathe" necklace wear it on Feb 14th LOVE day! The positive vibes coming off so many incredible individuals on such a special day will certainly make a difference! Happy LOVE day! Xo



Tuesday, January 27, 2009

111

DRUMROLL....... As of this week the total number of Love to Breathe necklaces that have sold is yes 111!!!!!

111 necklaces sold x $10 donated= $1,110.00 donated
Just think .90 cents of every dollar donated is going to fund research to find that sought after cure for Cystic Fibrosis!!! 

Click here to go to Lissa's Etsy site to purchase your Love to Breathe necklace. Remember LOVE day is right around the corner and she just added a new unisex necklace so the guys won't feel left out! 

Thank you to everyone who already has one and wears it proudly. Your love and support mean the world to me! I have the one in the first pic and wear it daily! I love it! Not to mention it makes the perfect gift! 

Lissa I also want to thank you!! Without you none of this would be possible. You are so talented and your compassion for this cause has been awe-inspiring! Thank you for being so fabulous! Xo





Another Drumroll please.......  We now have a unisex necklace.

Wednesday, January 21, 2009

"Love to Breathe" paintings

Here are a couple of my "Love To Breathe" paintings the lighting isn't very good when I snapped the shots but you get the idea... 





Thursday, January 1, 2009

Best of 2008!


  • Only having to go in the joint once! 
Best record in 4 years. I am so grateful for Aztreonam and USANA, I think they both are making the world of difference, and contributing to the record.
  • Starting this blog. 
Meeting all my blogging friends! Love you all!! Even though I haven't met most of you our friendships mean a ton and I know they will last a lifetime! 

My Brother did an amazing job putting it together! We raised over $5,000 for this year for Tatse of Salt Lake.

I want to thank Lissa for making the beautiful Love to Breathe Pendants that many of you have. Lisa tell Brad I am thinking about designing a mens line ;) Also want to thank Everyone that has supported Love to Breathe and helping make CF stand for CURE FOUND!! 

  • TASTE OF SALT LAKE
It was our 10th annual year and we raised over 250,000 best year ever!!!! We more than doubled last year. I can't wait to see what 2009 will bring! We are so close to finding a cure I truly believe its right around the corner. So thank you for all your support this last year. I appreciate it more then you will ever know!


  • HOT SAKE 2008 NewPort Beach Reunion
The Newport trip is something I did every year growing up with Rickis fam and when we all grew up we stopped going. I think we had a 7 year lapse but when we got back to that beach house we all picked up right where we left it! I had so much fun! I nicknamed the beach house "THE COMPOUND" and I didn't leave the beach or the beach house for a full week!


  • Every second that I got to spend with My AMAZING Family and friends in 2008 was PRICELESS! 
I am the luckiest girl I know. I have such an amazing support system and for that I am so grateful!



  • My Baby Boy Oscar turned 4. 
He is getting so BIG but he still loves his momma. He lets Lills run the roost he is a very good big bro to her.
  • My Baby Girl Lilly turned 3. 
She is a lil spitfire and thinks she is the boss! But she still loves to cuddle with me and is very protective of me.
  • My Heroes that got a second chance at life thanks to total strangers who chose to give the gift of LIFE!! 
Will, Sara, and Tanya you are an inspiration to so many!! Keep up the Amazing work, I can't wait to see what fabulous things come your way in 2009.

this is one of my paintings... I love hearts!
  • Madonna's STICKY & SWEET tour!
BEST TOUR OF 2007 and 2008 most likely 2009 too!!! Since her CONFESSIONS tour was in 2006 and I don't see her touring again for a while.
  • The University of Utah Football Team 
We went undefeated all year and will be playing in the Sugar Bowl tomorrow! GO UTES!

My Bro & I on the field
  • Being a calendar girl! 
I was selected to be Ms. May on the TOBI calendar for 2008. It was so much fun to have a photo shoot for that. The favorite shot was the one with my babies and I on the grass up in the right hand corner of my blog.

  • Turned into a Mac girl... never going back!
Love My Iphone and my MacBook I recommend them. Apple is genius!

  • Turning 29.... 
( but really can't wait for the BIG 30 in 2009)


2008 was GREAT!!!! I am looking forward to another great year in 2009!!! I wish everyone Health and Happiness in the upcoming year! Today Jan 1st Utah goes smoke free and Utah will also start Newborn screening for CF, I am so excited! Those two milestones alone in my book are a Fabulous start to 2009!!!

Loves to you all!
Xo
Somer