38 is Great!

Yahoo!! Take that sinus/cold whatever you were... You didn't stand a chance!

With all my new remedies, doubled all my USANA, upped my treatments to 4 a day, eating healthy and resting, can do the body good! I blew a 38 no 42 but 2 pts higher than last time thats the right direction. I am very happy with my clinic visit today :)

So since I have been streaking and Garlic does act as a blood thinner I am stopping it at this time. I am bummed I was really excited about it. I streak on TOBI and I stop that on Wed so if the streaking stops I will see how I do on taking it 3 days a week. I want to start Elderberry... Anyone tried this? It comes in capsule and juice form. It has similar results to the garlic minus the blood thinning property. I am going to go get some this week I will keep you all posted.

I am loving my honey!! I have been eating honey sandwiches daily. Local honey too, it will be interesting to see how my allergies are this spring.

Yay my background is back!!

Happy Mon everyone!! Make it a GREAT day! Xo

A lil bit of this and that

~Where did my cute background go? I am hoping to have this fixed ASAP!

~So glad Sandra won!!!!! YAHOO! What a great speech too!

~Sandra, Cameron, Michelle, and SJP all looked stunning! Bradley Cooper.... Yes please!! And all you hotties with the accent Colin, Gerard.... feel free to call me anytime to talk about anything and everything. Im a sucker for the accent!

~Really Charlize? Your dress was hideous and all we could stare at were the ruffles cupping your chest!

~Can't wait to read Christy's Oscar review

~I want to watch sixteen candles and Ferris again sometime soon, The 80's sure knew how to make a great flick

~I LOVE UP!!!!! I need to buy this DVD

~Garlic update; Garlic can act as a blood thinner so yep you guessed it had to stop taking it after coughing up some blood so I think I will start it back up tomorrow and just take it M W F I have something else I am going to start more on that later.... Loving my honey sandwiches tho!

~Tomorrow I have a clinic apt.... Here's to hoping I am full of hot air! Fingers crossed the cold/sinus whatever didn't get the best of me!

~I AM IMAGINING THAT 42!!!!!!!!!!!!!!!!!!

The Moon

Thank you guys for all your words of encouragement!

They say if you reach for the stars you may be lucky and land on the moon... Well a 42 was me reaching for the stars... I landed on the moon with a 34. I am still maintaining since March of 08 so I am pretty lucky!

I had a crackle which I usually am very clear so I will go back in a month. I just started TOBI on Fri and am pretty sure its moving all sorts of stuff around, hence the crackle.

I'm off to put another star on my calendar...

Visualizing a...

PFT's tomorrow...

Bustin out the Bubbly

Can I get a Hip Hip!!!!!

HOORAY!!

Today I had to blow and I was a teeny bit worried cause I am still having this stupid pain. I feel great other then this pain in my left upper chest. My doc thinks its muscular or a joint issue so I have been taking Motrin 800s and it seems to be subsiding a bit. I just wish it would go away so I can start back up with my Tracy Andersen and my pushups. Anyways back to my exciting news... so today I blew a 35 which is 1 pt up from March! Yahoo!!!! It's not the 42 I keep visualizing but I honestly think I will hit that after the next time I have IV antibiotics whenever that may be. 

But for now I am 15 months out on parole and counting! Which is a 20+ year record for me!! Life is GREAT!!!! No joint for me. I am ecstatic and am off to celebrate!!! Xo

A quick update

Well I was visualizing a 40 I really thought maybe with all the working out I have been doing that maybe I could blow a 40. They weren't close :( My Fev1 was down a bit from when I was in the joint last March. So maybe a 40 will be more realistic after I have had iv abx whenever that may be. So for now No joint for me :) so I am glad!!! My doc told me to just keep doing what I was doing and to start Tobi but to watch it since it makes me have some hemoptysis, just a lil streaking tho. 

I wanted them to do an x ray since I have been having some pain and have been pretty sore after the bleed. So I did get an xray and they couldn't pull up my last x rays to compare them to but I have some air bubbles on the right lower side but that might be old they didn't know so they just want to make sure it's not a pneumothorax. So I have to go back and get another x ray on Wed. So I figured I'll still take it easy until then just to be safe, since Im guessing a collapsed lung would really suck.  

I'm off to take a nap I didn't sleep at all last night thanks to snorer and snorett. I have renamed my dogs. :)

Happy Mon Everyone!

The Sun is Shining...

It's another beautiful day out! I woke up this morning feeling great! Don't ever under estimate the power of prayer... Thank you guys for all your thoughts and prayers keep them coming for Mon. I really think the blood was from me thinking I was Tracy Anderson :) I guess I just needed a lil reality check to assure my self that I am NO Tracy Anderson!! I am still going to take it easy this weekend tho no treadmill til after the BLOW.

It is so nice out I am going to take the babies for a walk and sit outside at the bucks with a nice cup of coffee and a cupcake of course :) The particulant matter is at 19, so hopefully since its suppose to be nice out all weekend the air will cooperate. 

Cara its crazy how in tune we are... Its our cysterhood working at it's finest I find the same thing with most my cysters. Sare I didn't have to stop any meds or airway clearance as per the team. However being the PP/Dr Love that I am :) I did stop my pulmicort and advair. But I started them back up this morning and knock on wood.... I am good to go!

Have a fabulous weekend everyone!!!

Xo

Somer

They always make it better...

Remember when you were little and you would fall down and you would get an ouchy? Well the only thing besides someone kissing it better that seemed to help was a bandaid. Even if you couldn't see your new hurt a bandaid always helped. Well I need to invent a tube top/tank top band aid...

Warning CF talk below could be TMI

Yesterday I was on a roll on the treadmill when all of a sudden I felt I needed to clear my airways a bit. I tried coughing and didn't get anything up but cleared what ever was in the way it sure didn't feel normal tho. So I continued my workout and then came up stairs and coughed and this time I went to grab a kleenex and yep just what you don't want to see blood. CRAP!! I started to taste that gross metal taste with each cough. So I continued to cough up until it was just streaks in the mucus. It was never straight blood so if there is a good sign when you have hemoptysis that is it. So I went back downstairs turned my O2 back on and laid down, called my CF team and left a message. 

About 30 min later it was just lil dots and streaks of blood. So I figured I maybe over did the work out. When my nurse called back she thought that I could of over done it and popped a blood vessel . Coughing up blood is also a sign of infection, so I am hoping that isn't what is brewing down there. I already had a clinic appt on Mon and since it was getting better she was fine with me just coming in then unless it gets worse. So I am just taking it easy instead of doing the treadmill today it was really nice out so I took the babies for a walk. Now I am just lounging around. My lungs are a lil sore and that is why I need to invent a tank top bandaid. If I could just put a bandaid on these lungs I know they would feel better.

Please pray that there is no infection brewing and that on Mon I blow good numbers.

Breaking Records...

I am very happy to report that I escaped the joint once again. I had to blow today and my PFT's were down a lil, but not enough for lock up. I am so excited and so proud of myself! I could possibly make it thru the holidays. If that is the case this is the longest in 3 years that I have been out of the joint!  Holiday... Celebrate!! HIP HIP HOORAY!! Also another positive note is since I haven't had to use antibiotics since March the next time I do use them I am hoping they will bump my Fev1 a bit higher maybe even back into the 40's!! 

On a not so positive note My baby boy has been throwing up since 4pm its so sad. If he's not better in the morning we are vet bound. He can't seem to get comfortable tonight. I hope he is okay I have no idea what would be wrong with him unless he ate something funky while we were playing outside today. Keep your fingers crossed we can by pass the vet. I have my alarm set for every 2 hours so I can check on him throughout the night.

Sunday...Funday!

Today I took the babies for the first time every to see Santa. Of course Oscar had a bit of anxiety and Lilly was so inquisitive. They had a great time I'm sure... I was nervous Osc might pee on Santa but we made it out with no accidents. I can't wait to get those pics!

After I got together with Fam for a Fo Thanksgiving. Odie and Nannels were in town so we got together with Granny and the whole gang to eat some delicious food. The turkey made me sleepy!!! So now I am just chillaxin at home resting up for the BLOW tomorrow. I am hoping and praying for some good numbers so I won't be spending the Real Thanksgiving in the joint.

The Girls

Just some of the kids

I painted Granny's fingernails... So Fancy!

I hope everyone had a great Sun!

Xo