Sunday, May 1, 2016

CF Awareness Month

Sometimes we often hear "But you don't look sick"... If only people had X-ray vision.... May is Cystic Fibrosis awareness month and it just happens to be my Birthday month...coincidence?! I think not!! 😉 

So please join me this month and let's make everyone aware... CF needs a cure! 

What is CF?! Well, CF is a genetic disease that primarily affects the lungs and the digestive system. It causes our bodies to produce a thick sticky mucus. The mucus builds up in the lungs and can lead to life threatening lung infections. 

This is my actual lung X-ray, I call these my pearly whites. The white is irreversible scarring from the thick sticky mucus and the many lung infections I have had. Both the mucus and the lung infections have resulted in loss of lung function over time, my lung function currently hovers around 27-28%. I literally think about every breath I take. 

A CFers day consists of hours of breathing treatments, airway clearance, exercise, and handful of pills, and that is just the regular maintenance for when we are healthy. We work so hard day in and day out. 

CF is inconvenient, CF is exhausting, and CF will never be easy. However, I believe CF has made me stronger, it makes me fight harder, love more, and truly appreciate life one breath at a time... CF is a blessing in an ugly disguise, it's my reality and its made me who I am today, for that I am grateful. 

I will continue to fight and do my part until that one day CF stands for CURE FOUND!!  Breathe out love! Xo ❤

1 comment:

Unknown said...

I had a girlfriend for 8 months back in 1994-95 during my Freshman year in high school. Our relationship was great, but there was just one factor that played into our relationship, and that was her Dad and step-mom, whom both were nice to me for the first 4-5 months. They just thought I didn't look sick and should've had a real job at that time. I did small work for my neighbors and helped them out when I could. I mean, I was only 16 at the time.

Still to this day at 37, parents' opinions still haunt me.