Saving money is easier said than done… I have so many things on my list that I need to save up for. The majority of my list has to do with my health and let me tell you it adds up. Who would think that being able to breathe would be considered a luxury. I am in the market for a portable oxygen concentrator. I have done aton of research and the one I am looking at is the Evergo by Respironics. It's FAA approved and most airlines allow it on their flights. It has 4 batteries and each battery has about 8hrs of life. It weighs less than 10 lbs and would make traveling stress free, not to mention I wouldn’t have to deal with O2 tanks for the times that I use portable O2. Basically all this translates to a luxury item that insurance won’t cover. GRRRRR
Well I was telling my sweet talented friend Lissa about the Evergo one day when she had an idea. See last year she gave me a special Love to Breathe Necklace that was just for her and I, the only 2 of its kind. Well let me tell you how many people lost sleep over not being able to ever own that amazing pendant. After numerous requests for the necklace she asked me what I thought about adding it to the collection, well I was hesitant cause I loved the idea that it was a one of a kind or two of a kind actually. So we were brainstorming back and forth and came up with the idea to only make 65 of them for $65. Sixty Five Roses is what some children call Cystic Fibrosis since it is so hard to pronounce. Then she got this great idea that what if we started getting more personal with our donations we could make a bigger impact now for patients. She is determined to help me get my Ever Go. Then we got to thinking how great it would be to help others with medical equipment etc that cost an arm and a leg. So many great ideas kept coming to mind. My cute friend Suzie will need to get her beautiful daughter a vest soon, well we all know those are expensive. I swear if you squint hard enough when you look at your vest you can almost see a car, or a down payment for a house. So how exciting will it be to help people now and get them the things they need to breathe a lil easier. We have more ideas to make Love To Breathe necklaces more personalized I'll post more on that later.
So with all this said I want to show you the First Limited Edition Love to Breathe necklace… They are numbered on the back and when Emily Schaller went to visit Ellen Degeneres well she took her number 5/65.
I try to live each day to the fullest by keeping my hopes high, and dreams big!! I think it is important to LOVE as long as you LIVE, and LAUGH as much as you BREATHE!! I am a 37 year old living with Cystic Fibrosis, and an active advocate in the CF community. I make it a priority to raise awareness and help educate everyone on CF. Being diagnosed at 11 months old I was unable to make my own decisions. However, I am fortunate enough to have fabulous parents who chose to help fight my disease. When I was old enough I adopted my parents philosophy and joined the fight. This is my fight.....