May issue of Elle

On news stands NOW!!!!! Tomorrow is the big day Hard Candy, Madonnas new album hits stores! I can't wait.... I pre ordered my copy from I tunes so I think I will be able to get it at Midnight YAY!!! 

Today is suppose to be in the 70s again so I am going riding on the vespa. I did take it out yesterday it was fabulous it was the first time this season I didn't have to wear a coat. I had a sweatshirt on and when I was stopped I was a lil toasty. Once the light went green though the cool breeze was refreshing. Summer is right around the corner :)

Happy Birthday Mom!!!

MOM HAPPY _ _st BIRTHDAY!!! Have fun in Sin city.... Enjoy the sun for the both of us! I love you lots and I hope that you have the best day ever. I hope the next year is your best year yet! Thanks for being so fabulous, I am so lucky to have you as my mom!! XOX

PS Don't celebrate the day with any Irish car bombs ;)

RAIN,SLEET AND SNOW.... O MY!!!

ARE YOU KIDDING ME???

It is April 24th and it is snowing outside... Where is the sun? Of course the only reason it is dumping out there is because I happened to wash my car yesterday. A lot of good that did....

O well one good thing is the air will be clean for the weekend. It is supposed to hit 74 by Monday so keep your fingers crossed, because the vespa is gathering dust and the babies are getting restless and my vitamin D level is at a all time low :)

844 ROOMIES

             

Almost all the college roomies got together yesterday for lunch we were just missing Steph. It was fun to get together and have a mini 844 reunion! Nat, Mistie and Canz thought it was just gong to be the 4 of us but Kell and I were surprising them. Kell came a bit later and we pulled it off. She is in town for a couple weeks so it worked out perfect!!

We even got to hang with sweet lil Seneka she is so cute and such great baby congrats Mistie!

I think we may have even gotten a Well out a Kell and a Stop Now out of Mistie and Nat and I got a pic together overall it was a great day! Can't wait to get together again soon!!!!  

LOVE YA BR's

Happy Earth Day!!

Today I challenge everyone to do 10 "GREEN" projects to better the Earth. 

I thought I would post the perfect video that will inspire you to do your part 

for our Earth. This is Madonna's Hey You video, the video is SO amazing!

This is the song she performed at LIVE EARTH last year.... Enjoy....

www.LovetoBreathe.com

Yay it's official.... I am so excited!!

My Bro finally launched his web site, check it out.....    www.lovetobreathe.com

Our goal this year is to raise $10,000 for the Taste of Salt Lake. There is still some kinks we need to work out like the pay pal isn't working correctly right now and we still have some more pics to add. But by Monday we should be well on our way to our goal! 

Thank you all so much for ALL your support and your VERY generous donations. I don't know where I would be today without my amazing support system. I am truly blessed to know all of you!!!!!

I know one day soon we together will make CF stand for CURE FOUND!! 

Help Make the Month of May be even better!

Bills to recognize May as National Cystic Fibrosis Awareness Month have been introduced in both the U.S. Senate and House of Representatives.

To pass the Cystic Fibrosis Awareness Resolution--and help us find a cure or control for CF--members of Congress need to understand what it means to have the disease. You are their most important resource. Members of Congress will back our efforts because YOU ask them to.

Ask your member of Congress to sign on to the CF Awareness Resolution today! 

Click here to enter your zip code and take action!

Thanks for your support!!

Nothing better then a Sunday nap

Sun after we did some work around the house and some serious ball playing we snuggled up on the couch and took a much needed nap! Lilly made herself nice and cozy right on top of me and Oscar snuggled in on my side.

Prayer Request...

Please take a second and say a prayer for my friend Will. 

He has had some complications with his recovery and is back in the ICU and getting some help from the vent. It's just a lil bump in the road, he is so strong and he will get through all this and it will be so worth it!! His family is by his side and his mom is the most positive person I know! Terri, Tom and Will you are all in my payers!

Madonnas 4 minutes video.... Can't wait for the tour :)

First thing that comes to mind.....

So for every letter of the alphabet the first thing that comes to my mind are;

A...Apple green ones right Torp?

B...Baskin Robbins 31 flavors

C...Car

D...Dog the best breed PUGS

E...Edamame

F...Fun

G...Ghosts

H...Hat

I...Ice cream

J...Jack in the Box mmmmm...Tacos

K...Kite

L...Lilly My Baby girl

M...Madonna HARD CANDY coming soon

N...New York carving a black and white cookie

O...Oscar My baby boy

P...Pheonix

Q...Q Lube

R...Reading

S...Sushi LOVE IT!

T...My "T"....Tanya

U...Unicorn

V...Vespa

W...Wine

X...X box with a mean game of guitar hero

Y...Yogurt Strawberry 

Z...Zebra

The Amazing Will Harbison!

YES!!!! MY Super hero is at it again....

He got the vent out!!! He is walking the halls!!!! He got a GIANT Pepsi and watched the final four games yesterday!!! 

Will I am so proud of you!!! You are AMAZING!!! Keep up the great job! You and your family continue to be in my thoughts and prayers. You are going to be out of the joint in no time!!

Happy 30th Bday Shane!!

                                                 Your 1st Bday

                                               You loving your lil sis
                                                  Us trying out our new skates

 HAPPY 30th BIRTHDAY BRO!!!!!!

Wow 30 years ago today you were born.... On your very first Bday the pic with you and mom and dad dressed up as a clown. I am surprised you aren't screaming in fear!! Although you have always liked clowns. Remember when I was hanging from the clown shelf in your room and they all came tumbling to the ground. I must of been such a pain in your ass :) But you always seemed to love me no matter what!!! Thanks bro for all your support and love throughout the years. I could and can always count on you to have my back. 

You have grown up to be such a great guy...So responsible, a fabulous husband, and an AMAZING Dad!! You are so cute with Makena and she loves you so very much!! I am so proud of you bro! Thanks for being the bestest Big Bro a girl could have. Happy 30th Birthday!! Cheers, to 30 great years........ and so many more to follow.

Xo

♥Hard Candy♥

YAY!!!! I am so excited!!!!!!!!!!!  Madonna's new Album "HARD CANDY" is in stores April 29th.  You can pre-order it now onAmazon. Her first single to be released is titled 4 minutes, featuring Justin Timberlake. 4 minutes is available on itunes now!!!

Bath day!!

Well They are not to happy with me but Oscar is so handsome and Lilly is so petty now! At first they get very excited and they jump right in....

Half way through Lilly jumps out with suds all over and then Oscar tries to escape too. But he is not as quick as Lilly it could be the extra 12 lbs or so. But they are both smelling like mint. 

Oscar absolutely hates getting toweled off. He bites at the towel and started doing a  yelp/scream/singing tune every time the towel gets close.

 I will try to video it next time. 

The real trick is to see if I can bath them without getting drenched myself. Today I was soaked thanks to my escapee. Lilly is a nut!

Happy Birthday Nate (CF Husband)

For those of you that have been following the Confessions of  a CF husband blog.....

It's a go!!!!

Tricia is being prepped for surgery! It could be a dry run but it is sounding like this pair is perfect! Pray for her, the TX team and her donor family.

Today is Nates Bday too! I don't think he could of asked for a better gift.

What a Miracle!

UPDATE: The surgery was a success!!! She should be off the vent later today or tomorrow, and breathing with her new lungs.... Please still keep her and her family and the donors family in your prayers.

Virtual CF Education Days

Here is the next upcoming Web Cast produced by the Cystic fibrosis Foundation. I am already signed up also if you go to the foundations web site they have a list of archived Web Casts. I really like these they give you a chance to hear from other centers and other docs and they update you on all the new developments....

CF Lung Health Anthology: Smoke Exposure, Exercise, Chronic Meds and ACT  A Live Virtual CF Education Day Web Cast Wednesday, April 30, 2008 8 p.m. ET (7 p.m. CT; 6 p.m. MT; 5 p.m. PT) Click here to register

Join the Cystic Fibrosis Foundation for a live 60-minute Web cast. This year's Web cast series will be in a new four part format.  Each part will feature an expert discussing the latest information on a topic of their expertise. Questions can be submitted in advance or during the Web cast to be answered at the end of each segment. The April 30th Web Cast will feature:

• Michael Schechter, MD, MPH, from Emory will discuss the hazards of second-hand smoke for people with CF and the best ways to avoid it.
  
  
• Anne Mejia Downs, PT, MPH, CCS, from the University of Indianapolis will talk about exercise and cystic fibrosis. She’ll give tips on what to do, how it fits in with other therapies and daily life.
  
  
• Patrick Flume, MD, from the Medical University of South Carolina will discuss the recommended therapies that people with CF can use to maintain lung health, according to recently published CFF guidelines for the use of chronic cystic fibrosis medications.
  
  
• Mary Lester, RRT, from the Medical University of South Carolina will demonstrate techniques for airway clearance (ACT). She will show the different forms of airway clearance and give tips for how to fit this therapy into daily life.
  

About this Web Cast Series

Produced by the Cystic Fibrosis Foundation, this innovative series of Web casts brings the cystic fibrosis community together in a “Virtual CF Education Day” forum to learn from the experts about living with CF and the latest in CF research. Each Web cast features different members of the CF healthcare team, or experts in CF research, from across the United States.

The Web cast forum offers an opportunity for questions from the CF community to be answered. This educational tool helps to empower people with CF, families and friends to take an active part in CF care through increased knowledge about the research and the highest quality care.